Invest in ME Research and Quadram Institute are arranging a Public Engagement Event in Norwich on 7th February 2020 and are inviting patients, carers and supporters to send them any input to the meeting.
They are collecting information now in order to plan the agenda. If you have specific issues or questions that you feel should be addressed at the public meeting then please use the contact form on this page.
Supporters will know that work has been ongoing to establish a Centre of Excellence for ME (Myalgic Encephalomyelitis) based at Norwich Research Park, which houses Norfolk and Norwich University Hospital, University of East Anglia, Norwich Medical School, Earlham Institute (formerly The Genome Analysis Centre) and the new Quadram Institute.
Invest in ME Research is run by volunteer parents and patients. The charity published a detailed proposal for a centre in 2010 and began crowdfunding in 2011 to enable the biomedical research programme to get underway in 2013. The next phase is a clinical treatment trial of faecal microbiota transplantation for ME planned to start in 2020.
IiMER and QI are keen to discuss the planned research with patients and carers, and wish to get views and additional insights to help them shape their future research. They will be discussing logistics for this meeting and will be meeting in the New Year to plan the event.
Please contact them through the contact form on this page.
The meeting itself will be on the morning of 7th February 2020 (the likely time being 10:30 – 12:00) in the new Quadram Institute building near the Norfolk and Norwich University Hospital; postcode NR4 7UQ.
More details will be provided nearer the time.
Many of us are too ill to leave our homes or are unable to attend meetings in person for other reasons, but please do take this opportunity to share your thoughts and ask any questions to help shape the agenda.
Let’s Do It for ME is run by severely ill patients supporting Invest in ME Research and their Centre of Excellence for ME projects.
Day 23 of the Invest in ME Research Advent Calendar is about the Centre of Excellence for ME so you can read more about it here.
Link to the meeting info and contact form here.
Thank you for supporting Invest in ME Research!