May ME Awareness Month

Welcome to ME Awareness Month May 2019!

A bit about us…

Let’s Do It for ME is a patient-driven campaign supporting the work of the charity Invest in ME Research and helping to raise funds for the biomedical research of their UK Centre of Excellence for ME initiative.

We want tests to enable accurate diagnosis and effective medical treatments established for Myalgic Encephalomyelitis (ME).

ME is a chronic disease involving muscle, brain, spinal cord, and dysfunction of immune, gastro-intestinal, endocrine, and cardiac systems. For more about ME see IiMER Awareness Leaflet and FAQs about ME.

Our crowdfunding enabled the Centre of Excellence biomedical research projects to commence in 2013 and the ongoing efforts were noted by MPs in recent Parliamentary debates on ME treatment and research.

Let’s Do It for ME awareness and fundraising is fully inclusive of age and illness severity, from the most severely ill supported by carers, to fit and healthy friends and family, our wonderful willing wellies!

We’ve had sponsored silences, screen-free weekends, readathons, sleepathons, through to some pretty extreme challenges, such as Mike Shepherd’s North Pole Marathon. You name it, Invest in ME Research supporters have probably done it!

Click on the images in the grid below for ways to take part in or to support May ME Awareness 2019 in aid of Invest in ME Research charity.

There’s also a page for May 2019 fundraisers here.

If you’re only able to share links that is still much appreciated.

We are severely ill ourselves but aim to update throughout May 2019 so please contact us with anything you’d like added or highlighted.

Special dates for May include renowned international Invest in ME Research Conference Week including Thinking the Future for Early Career Researchers 28th; Biomedical Researchers Colloquium 29-30th; ME Conference 31st; and Janet Smart’s Black Dress Day 31st May.

Until 17th May you can nominate Invest in ME Research for a Movement for Good donation of £1,000.

Please email Invest in ME Research directly at for help with other awareness and fundraising aids, such as the charity’s T-shirts, wristbands, info materials, collection boxes etc.

To support our awareness you can also buy a range of products, such as our famous bear, with the Let’s Do It for ME and other logos and slogans from our online shops with 100% seller profit paid directly to Invest in ME Research. Spreadshirt’s offering free delivery til 7th May.

You can also buy the new book of poems 31 Days in May by The French Femme or simply share the poems she posts each day of the month.

Fundraisers can create pages for Invest in ME Research on these platforms


Here’s to Happy May ME Awareness and Fundraising!

Thank you for supporting Invest in ME Research! 

Take Part…

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Thank you for supporting Invest in ME Research!

Happy Birthday Paul Kayes!

Let’s celebrate to kick off ME Awareness Month May 2018!

Fab friends of Paul Kayes have been busy organising an online surprise for his birthday today. Paul is co-founder of the Let’s Do It for ME campaign to support the charity Invest in ME Research, and founding admin of The M.E Chat Room Facebook group for Myalgic Encephalomyelitis, among the many ways he shows ceaseless kindness, generosity, and good humour to people across the globe.

Message from Paul’s friends…

Paul as it’s your birthday we all felt that the best way to celebrate was to raise funds for our favourite charity.

Paul you are a great friend you have supported so many of us through good times and bad times and we are honoured to call you a friend so here’s our way of celebrating your special day Happy Birthday 🎁

Many thanks to Nadine Pennington for setting this up and coming up with such a fantastic idea.

Ways you can help celebrate Paul’s birthday…

🎁 Donate to the fundraising page created by Michelle, Makayla and Sophie:
(JustGiving accepts any amount from £2 and now has an option to add 5% of your donation to cover their platform fees.)

🎁 Leave a message on the Kudoboard created by Alison:
(It’s easy to register/sign in, click ‘add kudo/image/video’ to type your message, upload image/video or choose from the Kudoboard picture/GIF library.)

🎁 Post a ‘Paul joke’ online to pay him back for all the giggles and groans!

🎁 Join Jen Govey later today in a special birthday surprise for Paul at Dress for ME on Facebook:

(Update: Jen’s video is here:
and she tweeted)…

Happy Birthday Paul Kayes!

Happy ME Awareness Month everyone!

Thank you for all your support!