The Weather Lottery

Join the Invest in ME Research lottery to win up to £25,000!

The Weather Lottery is Great Britain’s leading fundraising Lottery. They guarantee that a minimum of 37% of every £1 you spend goes directly to the charity and it could be up to 65% after all costs and prizes have been paid.

When you join, you’ll be given a unique 6 digit Lucky Number to be entered into the weekly Weather Lottery draw. If you choose more than one entry, you’ll be given a separate Lucky Number for each entry.

The Weather Lottery result is based on the last digit of the Fahrenheit temperatures from 6 popular European destinations that are currently published in the Daily Mail on the day of the weekly draw.

The more numbers you match in order, the bigger the prize, and it’s easy to see if you’ve won. Match all 6 numbers and you win £25,000! The prize money won’t be shared and it doesn’t cost the charity a penny if you win.

To join and read all about it click here.

Players T&C here.

Thank you for supporting Invest in ME Research!

London Calling Runners for Royal Parks Half Marathon!

Entry closes 23rd August for 13th October 2019

There are currently (now 2) places still available to run for Invest in ME Research in the London Royal Parks Half Marathon on Sunday 13 October 2019. The charity has 12 places in total and 9 people are already signed up for the team, so if you know anyone who might like to join Team IiMER for this event please let them know of this opportunity – details here.

Contact Details for IiMER

  • Invest in ME Research Charity Nr. 1153730
  • Address: PO Box 561 Eastleigh Hampshire SO50 0GQ
  • Phone: 02380 643736 / 07759 349743
  • Email: info@investinme.org

This will be another great opportunity for the charity to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – and raise awareness of the need for biomedical research into this disease. 

  • This Royal Parks Half Marathon route winds through four Royal Parks (Hyde Park, Kensington Gardens, St James’s Park and The Green Park) in all their autumnal splendour.
  • There are 16000 runners in the marathon.
  • The course is 13.1 miles (21 km) long.
  • The route takes in the capital’s world-famous landmarks on closed roads, and four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens.

Details here: investinme.org/IIMER-Newslet-1903-01RPHM.shtml

To past and future members of Team IiMER Royal Parks Half
thank you for supporting Invest in ME Research!

Phoebe & Georgina’s Sponsored Kayak!

By Georgina & Phoebe

Even a live Second World War grenade  couldn’t stop us! 

On Sunday the 28th of July we began our quest to conquer a 25 mile kayak to raise money for Invest In ME Research. This journey consisted of a very early start, a late end to our tiring day and a shed load of rain in between. We started at Little Haywood, near Rugeley with our team of many supportive helpers including one in a kayak too, who without them it wouldn’t have been possible. Our planned route was to follow the Trent & Mersey canal from here through 14 locks and all the way to Willington in Derbyshire 25 miles by canal.

After an hour and a half of non-stop rain Georgina began to feel the cold and we decided it would be the right decision to stop at the next lock to collect a vital and necessary dry jumper. Another hour or so passed and we were nearing Fradley where we knew we would be provided with hot food and supportive friends and family. 

After lunch we knew there was a long way to go but our friend’s banner gave us a helping boost of perseverance. The next 10 miles were rather tough, as we knew we still had a long way to go. As we neared Shobnall Marina we were instructed by police to leave the water as a live grenade had been discovered in the canal by a magnet fisherman. The canal was full of boats as it had been shut for sometime and soon the bomb disposal team were also in attendance! We decided the only option was to walk with the 3 kayaks along the main road to get back to the canal. But thankfully before we reached the road a kind family let us through their garden to get to the canal quicker. 

When we approached the last 4 miles of our trek it was encouraging to see many family members reminding us we could do it. However as time passed it became gradually harder as it was getting later and we were getting more tired.

We finally reached our destination where we were greeted by familiar faces and lots of support. We both were exhausted, proud and ready for a hot drink. We had completed 26.3 miles in total with an average speed of 2.7 mph. Everyone there was very supportive and donated generously. We would like to thank everyone who helped, donated and supported us as this is such an important yet small charity. https://www.wonderful.org/fundraiser/endurancekayaking-49b77049

A huge well done and thank you to Phoebe and Georgina and everyone supporting and cheering on these two stars, undaunted by an unexploded grenade! The girls did a lot of training to lead up to this grueling challenge. They wrote on their fundraising page,

“We are two total novice 13 year olds taking on a huge challenge to kayak 25 miles in order to raise vital funds for biomedical research into ME. We are doing this after Georgina’s sister was hit with this horrid illness age just 14 and became very poorly. ME is a multi- system disease affecting not only the neurological system but also the immune , muscularskeletal, endocrine and cardio vascular. Its life changing in short with a quality of life generally worse than a person with end stage cancer.”

The girls have raised over £2,200 including Gift Aid thanks to their Wonderful sponsors! Wonderful is a fee-free fundraising platform so every penny donated will be spent on vitally-needed biomedical ME research: https://www.wonderful.org/fundraiser/endurancekayaking-49b77049

Thank you Phoebe and Georgina for doing a Kayak for ME!

Thank you for supporting Invest in ME Research!

P.S. To our blog subscribers, apologies that you did not receive our last blog by email, marking 8 Years Doing It for ME!

May ME Awareness Month

Welcome to ME Awareness Month May 2019!

A bit about us…

Let’s Do It for ME is a patient-driven campaign supporting the work of the charity Invest in ME Research and helping to raise funds for the biomedical research of their UK Centre of Excellence for ME initiative.

We want tests to enable accurate diagnosis and effective medical treatments established for Myalgic Encephalomyelitis (ME).

ME is a chronic disease involving muscle, brain, spinal cord, and dysfunction of immune, gastro-intestinal, endocrine, and cardiac systems. For more about ME see IiMER Awareness Leaflet and FAQs about ME.

Our crowdfunding enabled the Centre of Excellence biomedical research projects to commence in 2013 and the ongoing efforts were noted by MPs in recent Parliamentary debates on ME treatment and research.

Let’s Do It for ME awareness and fundraising is fully inclusive of age and illness severity, from the most severely ill supported by carers, to fit and healthy friends and family, our wonderful willing wellies!

We’ve had sponsored silences, screen-free weekends, readathons, sleepathons, through to some pretty extreme challenges, such as Mike Shepherd’s North Pole Marathon. You name it, Invest in ME Research supporters have probably done it!

Click on the images in the grid below for ways to take part in or to support May ME Awareness 2019 in aid of Invest in ME Research charity.

There’s also a page for May 2019 fundraisers here.

If you’re only able to share links that is still much appreciated.

We are severely ill ourselves but aim to update throughout May 2019 so please contact us with anything you’d like added or highlighted.

Special dates for May include renowned international Invest in ME Research Conference Week including Thinking the Future for Early Career Researchers 28th; Biomedical Researchers Colloquium 29-30th; ME Conference 31st; and Janet Smart’s Black Dress Day 31st May.

Until 17th May you can nominate Invest in ME Research for a Movement for Good donation of £1,000.

Please email Invest in ME Research directly at info@investinme.org for help with other awareness and fundraising aids, such as the charity’s T-shirts, wristbands, info materials, collection boxes etc.

To support our awareness you can also buy a range of products, such as our famous bear, with the Let’s Do It for ME and other logos and slogans from our online shops with 100% seller profit paid directly to Invest in ME Research. Spreadshirt’s offering free delivery til 7th May.

You can also buy the new book of poems 31 Days in May by The French Femme or simply share the poems she posts each day of the month.

Fundraisers can create pages for Invest in ME Research on these platforms

EveryclickGoFundMEJustGivingMyDonateWonderful

Here’s to Happy May ME Awareness and Fundraising!

Thank you for supporting Invest in ME Research! 

Take Part…

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Thank you for supporting Invest in ME Research!

Nova Magazine Spotlights ME

Nova Magazine has published an excellent article by Will and Kathryn Woodvine featuring their teenage son Alex, who is severely ill with Myalgic Encephalomyelitis, and their amazing friend Arry’s Mountain Mayhem 100 miles in 24 hours off road cycle challenge fundraising for Invest in ME Research.

The article is in the SpotLight section on page 26 of the May 2019 issue of Nova Magazine. You can find it in flipbook format on the home page of the magazine’s website, and also share the text directly from this webpage:
novamagazine.co.uk/invest-in-m-e/

Titled Invest in M.E, the piece also features One Stupid Dot, the poem by musician Mama Chill (aka Stacy Hart of Team Let’s Do It for ME) which has struck a chord with so many people and was performed on What’s Up TV. You can find the poem on Stacy’s Runnin On Empty M.E awareness page along with her music videos for ME Awareness: officialrunninonempty.com/m-e-2

Nova Magazine is also delivered free to every household in Newport, Shropshire and the surrounding area, so this is wonderful awareness and Kathryn is absolutely delighted, “Hopefully it’ll raise a lot of ME awareness and maybe even a donation or two! Thanks Teresa for organising such a fab article 💙”

Please feel free to share widely during May ME Awareness Month.

Arry is fundraising at: justgiving.com/fundraising/wwwinvestinmeorg



Thank you for supporting Invest in ME Research!

https://twitter.com/LetsDoIt4ME/status/1121350158736875520