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Barnaby’s Birthday Fundraiser for Invest in ME Research

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That excellent Eaton-Jones fellow is celebrating his birthday by fundraising for Invest in ME Research. Barnaby wrote,

“On Saturday, I turn 45. Every year is a struggle for most people with health issues but this is a charity about the most underfunded and maligned of diseases that affects so many people that it *should* be up there with the more ‘known’ ones. I’ve suffered with it for over 25 years and I have fought for better awareness and understanding. Of all the many M.E. charities, this one – for me – seems to be doing the most to get to the root of this disease and work out a way to somehow give all level of sufferers hope for the future. If you can spare the minimum donation of £4, I’d be most grateful. But, I also understand if you can’t in these times of austerity and uncertainty. Thanks for reading and, if you’re able to, thank you for supporting.”

Barnaby’s Facebook Fundraiser is open for two weeks and if it doesn’t give you the option to donate in your currency you can follow his friends’ kind lead and donate via our current JustGiving page Let’s C Research!

There’s also some exciting news. It has been Barnaby’s lifelong dream to have something broadcast on BBC Radio and it will happen! ‘I’m Sorry I’ll Read That Again…. Again!’ airs on BBC Radio 4 Extra from 21st December. See the tweet below for dates and times for the four weekly episodes and read all about it here.

 


 

Best Birthday Wishes Barnaby Eaton-Jones and congratulations on your news!

Thanks everyone supporting Invest in ME Research!

 

Barnaby’s Birthday Fundraiser on Facebook

Let’s C Research on JustGiving

Will’s Birthday Fundraiser for Invest in ME Research

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(Alex Woodvine pictured before and after Myalgic Encephalomyelitis)

Fundraiser for Invest in ME Research by Will Woodvine

As many of you know, ME has destroyed my youngest Son’s life and had a devastating impact on my family.

Alex is bed-bound for the vast majority of the day and is housebound the remainder of the time. He has lost the majority of his friends and feels isolated from the world. He faces a bleak and uncertain future.

My wife gave up a job she loved to care for Alex full time and this has had its own impact on her, with no time for Kathryn to live the life she should have.

Matthew, my eldest son, has also had to deal with the effect that ME has had on our family. This has not been easy for him at all, and is something that no teenager should have to deal with.

You can probably imagine the impact this has had on the family that I love, and how it makes me feel.

A father (and husband) is supposed to protect his family.

ME affects more people in the UK than Multiple Sclerosis but it is little heard of, misunderstood by the medical profession in general and there is no funded research into this chronic condition.

For my birthday this year, I’m asking for donations to INVEST in ME RESEARCH. I’ve chosen this non-profit for very obvious reasons, and I hope that you’ll consider contributing as a way of celebrating with me. Every little bit will help me reach my goal. I’ve included information about INVEST in ME RESEARCH below.

Invest in ME Research is an independent UK charity facilitating/funding a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS) and promoting better education about ME. The charity is run by volunteers – patients or parents of children with ME. No paid staff & all work is performed for free.
We are a small charity but with a growing number of supporters with big hearts and determination to get the best possible research carried out to find the cause of ME and develop treatments. investinme.org

Click here for Will’s Facebook Fundraiser for Invest in ME Research

Best Birthday Wishes to Will and thank you for your support.