May 2020

May News and Updates

We really appreciate all the awareness and fundraising efforts by fellow supporters of Invest in ME Research during this extraordinarily difficult time for everyone affected by the COVID-19 pandemic. If you are doing any awareness or fundraising this month for Invest in ME Research and would like us to share, please contact us.

May is ME Awareness Month

ME Awareness Week 11-17th May

ME Awareness Day May 12th

Let’s Do It for ME is run by patients supporting the charity Invest in ME Research and fundraising for their Centre of Excellence programme of biomedical research into Myalgic Encephalomyelitis.

A chance to win £500 for Invest in ME Research by signing up to use Easyfundraising, plus an extra 2 x £5 for IiMER when people sign up and use this referral link if registering / signing up for the first time. Offer ends 19th May.

Please nominate Invest in ME Research (charity number 1153730) to win a £1,000 Movement for Good Award. Nominations open from 6th to 24th May 2020.

Rosalynde Lemarchand, who writes as The French Femme, will once again be posting a poem for sharing every day in May, with lots of supplementary information about M.E. Read more at 31 Days in May 2020.

ME2UDezignz Jewellery & more, handcrafted by Lynne “which reminds us to stay positive and try to live life to the full as often as possible. Included are items especially for people battling chronic illnesses and raising awareness for such conditions, something which is close to my heart from ME to you made with Love. Thank you to all who support Invest in ME Research.”

New design available for M.E Awareness by Stacy Hart, who makes music as Mama Chill and writes under the pen name Runnin On Empty. Check out our new Mama Chill webpage featuring all of Stacy’s M.E Awareness tracks, poems, videos and original designs.

“For my birthday this year, I’m asking for donations to INVEST in ME RESEARCH. I’ve chosen this nonprofit because their mission means a lot to me, and I hope you’ll consider contributing as a way to celebrate with me. Every little bit will help me reach my goal. I’ve included information about INVEST in ME RESEARCH below.” Masharaya’s Birthday Fundraiser.

“It is over 13 years now since ME came into our lives and changed them forever. Ben went from being top of the class at school, enjoying sport with lots of friends to leaving school at 11, using a wheelchair and almost isolation.
Lockdown hasn’t made much difference to our lives – we were almost there anyway…maybe you could share some of our posts this month and take the time to learn a little more about ME and the devastating illness it is?”
Julie and Ben’s Facebook Fundraiser.

“This year is slightly different to usual, alot of people world wide now know what it feels like to be isolated, and it’s amazing how much people have pulled together over this. I also think its SO important to remind people that for alot of us, this time of isolation will end, but for those with conditions like severe M.E it’s possibly never will. I have friends who have been isolated for years, decades even, and they will continue to do so long after this pandemic is over.” Sophie’s Facebook Fundraiser.

May the fourth be with you! Jen’s R2D2 raising ME awareness and funds for Invest in ME Research via Dress for ME.

Linda Wigman on Facebook is asking for donations to Invest in ME Research for ME Awareness Month.

“Please support us if you can, for a better future for our loved ones who are largly confined to their beds and their homes, not able to get better and live a normal life. Every penny raised will be so enormously appreciated and will go directly towards vital research. Thank you!!!” Run for ME on JustGiving.

Carol Davis is asking for donations to Invest in ME Research via Facebook for ME Awareness Month.

“Our biggest heroes are the children teens and adults who say to lockdown “well this is my life anyway “ thanks to ME.” Michelle Nunn via Facebook says Feel free to share 💙

Sharon Butler is making crochet rainbows for donations to Invest in ME Research.

Wendy Happyhippy Slater is making masks for donations to Invest in ME Research. Read more here…

Shannon is donating £2 from every sale to Invest in ME Research. Find Under The Glass on Facebook and Etsy.

You can watch the recording on Facebook and YouTube of the excellent April meeting, hosted on Zoom by Sheffield ME & Fibromyalgia Group, with Professor Simon Carding talking about the biomedical research programme at Norwich Research Park, hub of Invest in ME Research Centre of Excellence for ME. Talks at the February public engagement meeting at Quadram Institute are here: Event introduces the RESTORE-ME trial.
December 2019 funding news: UK Charity Pledges £500,000 for Research into ME in Norwich Research Park
Huge thanks everyone supporting!

Invest in ME Research wrote, “With the need to cancel our International ME Conference Week this year due to Covid-19 we are instead using some of the time now available to continue releasing past conference videos.” Invest in ME Research YouTube.

Thank you all for supporting Invest in ME Research!