Barnaby’s Birthday Fundraiser for Invest in ME Research

That excellent Eaton-Jones fellow is celebrating his birthday by fundraising for Invest in ME Research. Barnaby wrote,

“On Saturday, I turn 45. Every year is a struggle for most people with health issues but this is a charity about the most underfunded and maligned of diseases that affects so many people that it *should* be up there with the more ‘known’ ones. I’ve suffered with it for over 25 years and I have fought for better awareness and understanding. Of all the many M.E. charities, this one – for me – seems to be doing the most to get to the root of this disease and work out a way to somehow give all level of sufferers hope for the future. If you can spare the minimum donation of £4, I’d be most grateful. But, I also understand if you can’t in these times of austerity and uncertainty. Thanks for reading and, if you’re able to, thank you for supporting.”

Barnaby’s Facebook Fundraiser is open for two weeks and if it doesn’t give you the option to donate in your currency you can follow his friends’ kind lead and donate via our current JustGiving page Let’s C Research!

There’s also some exciting news. It has been Barnaby’s lifelong dream to have something broadcast on BBC Radio and it will happen! ‘I’m Sorry I’ll Read That Again…. Again!’ airs on BBC Radio 4 Extra from 21st December. See the tweet below for dates and times for the four weekly episodes and read all about it here.

 


 

Best Birthday Wishes Barnaby Eaton-Jones and congratulations on your news!

Thanks everyone supporting Invest in ME Research!

 

Barnaby’s Birthday Fundraiser on Facebook

Let’s C Research on JustGiving

Invest in ME Research Christmas/New Year Fund Appeal

Help Us Fund the Future for Research into Myalgic Encephalomyelitis…
 

 

Invest in ME Research has launched a funding appeal for Christmas and New Year. The Press Release is here. Please feel free to share the link far and wide.

Over this Christmas and New Year period IiMER is hoping to raise funds toward another PhD studentship and to allow more medical students to participate in research as part of building a Centre of Excellence for ME.

The charity has kindly linked to our latest JustGiving page Let’s C Research for this appeal and we will add other donations to keep a running total on the page.

You can also keep posted on the funding appeal here, where a generous £1000 donation by Bombardier Shorts of Belfast in support of Ben Scott’s fundraising for IiMER appears as the first bauble on the Christmas tree.

There is a news page and Advent Calendar.

Our Christmas 2018 page shows some ideas to help raise awareness and funds for Invest in ME Research this festive season. Please contact us if you’d like us to share your event or fundraising for the charity on our blog or social media.

This can be a very tough time of year for people with disabling chronic illness and their loved ones, so let’s make this Christmas count for ME.

Thank you for supporting the Invest in ME Research Funding Appeal!

 

Donate Here

 

Christmas Shopping
Awareness and Fundraising
IiMER Funding Appeal
 

GIVE IT UPtober 2018

Let’s give it up for our simple October fundraiser for Invest in ME Research…


We warmly welcome you to invite friends and family to join us in giving up a treat or small luxury during the month of October and donating the money saved to Invest in ME Research – the small charity with a BIG CAUSE!

As supporters will know, Invest in ME Research is dedicated to finding cause/s and cure/s for this disease. The charity is run entirely by hard working volunteers so every penny donated is spent on their biomedical research strategy.

An estimated 250,000 people in UK have ME (Myalgic Encephalomyelitis). 10% of them are children diagnosed from as young as two years of age. 25% are severely ill, some unable to move, speak or swallow. Some sadly lose their lives.

Please join us in helping Invest in ME Research to change that.

The fourth year of our GIVE IT UPtober fundraising page on JustGiving starts with a current total of £4676.11 plus £396.88 gift aid thanks to your efforts and some generous matching sponsors! justgiving.com/fundraising/giutober

The code for text donations is GIUT88 followed by £1 to £5 or £10 to 70070.

You can, of course, use other ways to donate if you prefer.

If on Facebook, you can invite friends to our GIVE IT UPtober event page or you can join the event page hosted by Paul Kayes for each week of October 2018 via our Facebook group in support of the Invest in ME Research Centre of Excellence.

Twitter hashtags #GiveItUptober #Uptober #LetsCresearch

Let’s give it up for the amazing charity that gives so much for others.

Thank you so much for your support!

800k…and Counting to a Million!


WAYS TO DONATE TO INVEST IN ME RESEARCH

We’re off on the next leg of our fundraising journey to raising a million pounds for Invest in ME Research Funds for their Centre of Excellence biomedical research programme aiming to establish diagnostic tests and medical treatments for Myalgic Encephalomyelitis (ME).

We’ve created a new JustGiving fundraising page.

You can also raise donations to Invest in ME Research at no extra cost to you when shopping online, or by buying from sellers donating some or all of their profits to the charity, and simply sharing links on social media helps to raise awareness of the charity’s work on establishing a Centre of Excellence for ME.

Thank you so much for your support!

* June 2018 Status Update on Invest in ME Research Centre of Excellence for ME

* Write to your MP

* Our summary of parliamentary debate on ME treatment and research

Donate to Invest in ME Research

You can donate directly to Invest in ME Research via bank transfer, cheque, text, Big Give, BT MyDonate, Everyclick, JustGiving, PayPal.

Gift Aid gives the charity an extra 25% of your donation from the government if you are a UK tax-payer, so please tick the Gift Aid box when you donate via a fundraising platform, or download a Gift Aid declaration form.

Bank Transfer

Bank: Lloyds TSB Heartsease

Sorting code: 77-66-53

Account number: 22439568

Bank Transfer from outside the UK

IBAN: GB63 LOYD 77665322439568

BIC/SWIFT: LOYDGB21E05

Cheque

Send cheques payable to ‘Invest in ME Research’ to:

Invest in ME Research
PO Box 561,
Eastleigh,
Hampshire,
SO50 0GQ

(add Gift Aid to your donation with Invest in ME Research Gift Aid form)

UK Text IBRF33

£1, £2, £3, £4, £5 or £10

to 70070

(you can add your name and Gift Aid if eligible by text)

Click on the icons below to donate online to Invest in ME Research

or to: paypal@investinme.org



Please help spread the word….

Let’s Do it for ME is a patient-driven campaign launched in 2011 in support of the proposal by UK charity Invest in ME Research to establish a centre of excellence for biomedical research and patient care based in East Anglia, and in collaboration with other leading UK and international biomedical researchers.

We help to raise funds for the biomedical research into Myalgic Encephalomyelitis that the charity is organising and/or funding. Our crowdfunding for specific ME research is the first of its kind in UK and has inspired similar projects in Europe and USA. We have helped to raise over £800,000 enabling the biomedical research strategy to get underway, and we are aiming for £1,000,000.

The current focus of the research is on the role of the immune system, including infection and autoimmunity. The research projects are described here: investinme.org/ce-projoverview.shtml

There is also a scheme for medical students to be directly involved in biomedical research by intercalating in their fourth year: investinme.org/ce-ms-studs.shtml

Invest in ME Research is also renowned for their international conference events, which have grown year on year since the first in 2006, bringing patients and carers together with doctors and scientists and others to galvanise change in the way that ME is researched and treated across the world. Sponsorship is welcome: investinme.eu/index.shtml#sponsors

Invest in ME Research is a founder member of the European ME Alliance of 15 like-minded patient organisations, member of the European Federation of Neurological Associations and formed the European ME Research Group.

Invest in ME Research is run entirely by volunteers who either have ME or are parents and carers of ME patients. They are driving the agenda of scientific research into diagnostic tests and treatments for myalgic encephalomyelitis in UK in collaboration with international researchers of world renown.

Please join us in helping them to do all of this for ME.

Thank you for your support!

June 2018 update: Invest in ME Research and the Centre of Excellence for ME were referred to by Sir Henry Bellingham and Sir Edward Davey during a debate in Westminster Hall on 21st June secured by Carol Monaghan. We’ve added a page to the website about this with the relevant clips: Parliamentary Debate on ME research and treatment

Let’s Do It for ME
ldifme.org

in support of Invest in ME Research
investinme.org

Invest in ME Research Centre of Excellence for ME
investinme.org/research-centre.shtml

Invest in ME International Conference & Biomedical Researchers Colloquium
investinme.eu

European ME Research Group
http://www.investinme.org/em-index.shtml