Ecclesiastical’s 2020 Movement for Good £1,000 Awards

JUNE UPDATE: You did it again! Well done and thank you!
Read about it here: investinme.org/IIMER-Newslet-20601eccles.shtml

Please nominate Invest in ME Research (charity number 1153730) to help them win £1,000 in the 2020 #MovementForGood Awards: movementforgood.com/#nominateACharity

Charity Number: 1153730
Charity Name: Invest in ME Research
Charity Type: Health

Nominations are open from 6th May to 24th May.

Winners will be drawn at random. The more nominations for Invest in ME Research the greater the chance of them being selected. Entrants must be 18+ years. Only one nomination per Entrant is permitted so please share widely.

Hopefully, good timing to share as May is ME Awareness Month.

Following last year’s successful campaign, specialist insurer Ecclesiastical is giving a further £1million to charities, initially £1,000 to 500 charities.

Mark Hews, Group CEO of Ecclesiastical, says: “We’re delighted to announce the launch of Ecclesiastical’s Movement for Good awards for the second year running. The coronavirus is having a major impact on charities and many are facing financial difficulties. Our Movement for Good awards will continue to help charities at a time when they need it most and we know that for many charities, £1,000 can make a real difference.”

Let’s Do It for ME is run by patients supporting Invest in ME Research.

Invest in ME Research is an independent UK charity finding, facilitating, and funding a strategy of biomedical research into Myalgic Encephalomyelitis and promoting better education about ME.

Invest in ME Research is run by volunteers – patients or parents of children with ME – with no paid staff. Overheads are kept to a minimum to enable all funds raised to go to the charity’s work.

“We are a small charity but with supporters who have big hearts – and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.”

The charity was among the lucky winners last year thanks to your nominations and spreading the word. Let’s hope we can do it again.

Thanks to Ecclesiastical for this opportunity.

Nominate here: movementforgood.com/#nominateACharity

Thank you for supporting Invest in ME Research!

May 2020 Updates

Our 40 x £1k Fundraisers Challenge

40 x £1k Fundraisers Challenge for Invest in ME Research

Our 40 x £1k Fundraisers Challenge aims to raise £40,000 to reach the milestone of £1,000,000 raised and pledged for Invest in ME Research for the charity’s Centre of Excellence biomedical research programme and medical education projects for ME (Myalgic Encephalomyelitis).

Any individual, group, team, company, is welcome to join in.

There is no pressure at all to reach your fundraising target.

Simply contact us with the link to your fundraising page or event and we’ll add it to our 40 x £1k Fundraisers grid and share on social media.

Let’s Do It for ME is run by patients supporting Invest in ME Research and helping to crowdfund the charity’s Centre of Excellence for ME projects.

Invest in ME Research can provide fundraising aids such as their charity collection boxes, wristbands, T-shirts, posters, banners, as well as leaflets and other awareness or informational materials.

We’ve set up our own £1k target fundraising page on JustGiving and a team page which you’re welcome to join.

Wonderful.org closed end of March, so we’ve transferred our fundraising page Remembering Anne Örtegren to JustGiving.

Here are the details if you wish to send your donation to Invest in ME Research by cheque or bank transfer.

UK Bank Transfer
Bank: Lloyds TSB Heartsease
Sorting code: 77-66-53
Account number: 22439568

Bank Transfer from outside UK
IBAN: GB63 LOYD 77665322439568
BIC/SWIFT: LOYDGB21E05

Cheque
Send cheques payable to ‘Invest in ME Research’ to:
Invest in ME Research
PO Box 561,
Eastleigh,
Hampshire,
SO50 0GQ
(UK tax payers can add Gift Aid)

Let’s Do It for ME is run by patients supporting Invest in ME Research and fundraising for the charity’s Centre of Excellence for ME projects.

Our 40 x £1k Fundraisers Challenge

New Total £960,000

Walk for ME 2020

Do you know anyone who might like to do a sponsored walk or other activity in 2020 to help raise awareness of Myalgic Encephalomyelitis and biomedical research funds for Invest in ME Research?

Sarah-Louise Fittall Jordan, Luke Remnant, Ian McPhee and Geoff Allen, have launched Walk for ME 2020, their 8th consecutive year of fundraising in which they have raised over £150,000 for ME research thanks to walkers, runners and swimmers across England, Scotland, Wales, Ireland and the Isle of Man as well as in France, Germany, Spain, Malaysia, Australia, New Zealand and on both coasts of America!

The original idea behind Walk for ME was that friends and family of an ME sufferer did a sponsored walk on their behalf, hence the name. Since then, supporters have chosen several other activities too, in their quest to help the team raise money for biomedical research into ME.

The hope is that this will be a fun event even though it is poignant. The whole idea is that a friend or family member is doing something that their loved one would love to be able to do but can’t because of their illness.

Walk for ME has its own fundraising page for Invest in ME Research on JustGiving and a team page for fundraisers to join. This makes it easier for them to keep tabs on totals raised but if you prefer to use another fundraising platform just let them know the link.

To create your own page and join the Walk for ME fundraising team on JustGiving in suppport of Invest in ME Research:

1. Go to justgiving.com/investinm-e
2. Click the box ‘fundraise for us’
3. Either log in to your account or sign up if you’re new to JustGiving
4. Click on ‘personal challenge’ under ‘What are you doing?’
5. Follow the steps and choose your JustGiving web address
6. Click on ‘create your page’
7. Personalise your page. You can say who you are walking for and why
8. Then go to justgiving.com/teams/walkforme2020 and scroll down and click on ‘Join the team’
9. Select your fundraising page to add it to the team
10. You can then send your own JustGiving address to friends to raise sponsorship. Any target you set on your own page will automatically add to the team target.

You can find Walk for ME on Facebook and Twitter.

https://twitter.com/Walk_4_ME/status/1212000928322248705?s=20

A big THANK YOU Team Walk for ME and supporters!

Our 40 x £1k Fundraisers Challenge

New Total £960,000!

Invest in ME Research announced in their Christmas and New Year Funding Appeal that £960,000 has been raised and pledged to support the charity’s Centre of Excellence for Myalgic Encephalomyelitis projects.

The Let’s Do It for ME campaign is run by severely ill patients supporting the charity’s Centre of Excellence programme of biomedical research and medical education projects. Our original crowdfunding goal of £100,000 enabled this work to get underway in 2013 (patient samples for the lab work obtained since 2014) and we would love to reach £1,000,000!

So to start off the new year, we have created a grid with 40 vacant slots with a funding target of £1,000 each and invite you to contact us if you’d like to aim to raise £1,000 whether as an individual or group, private or business. Read more on the page for Our 40 x £1k Fundraisers Challenge.

Many thanks to everyone helping Invest in ME Research to achieve their goals relating to maintaining a programme of high quality biomedical reseach with international collaboration focused on establishing diagnostic tests and medical treatments for this disease.

The charity wrote in December,

“To our supporters we owe great thanks – you helped create something that was thought unachievable. A sustainable Centre of Excellence for ME is now harnessing the benefits of a strategy of collaborative international biomedical research in modern facilities with world-class researchers.”

With very best wishes to you for 2020 and the new decade ahead and grateful thanks for supporting Invest in ME Research.

In case you missed it, your input is needed to inform the agenda for an upcoming public engagement meeting at Quadram Institute.

Our 40 x £1k Fundraisers Challenge

Your Input Needed for 2020 Public Engagement Event

Invest in ME Research and Quadram Institute are arranging a Public Engagement Event in Norwich on 7th February 2020 and are inviting patients, carers and supporters to send them any input to the meeting.

They are collecting information now in order to plan the agenda. If you have specific issues or questions that you feel should be addressed at the public meeting then please use the contact form on this page.

Supporters will know that work has been ongoing to establish a Centre of Excellence for ME (Myalgic Encephalomyelitis) based at Norwich Research Park, which houses Norfolk and Norwich University Hospital, University of East Anglia, Norwich Medical School, Earlham Institute (formerly The Genome Analysis Centre) and the new Quadram Institute.

Invest in ME Research is run by volunteer parents and patients. The charity published a detailed proposal for a centre in 2010 and began crowdfunding in 2011 to enable the biomedical research programme to get underway in 2013. The next phase is a clinical treatment trial of faecal microbiota transplantation for ME planned to start in 2020.

IiMER and QI are keen to discuss the planned research with patients and carers, and wish to get views and additional insights to help them shape their future research. They will be discussing logistics for this meeting and will be meeting in the New Year to plan the event.

Please contact them through the contact form on this page.

The meeting itself will be on the morning of 7th February 2020 (the likely time being 10:30 – 12:00) in the new Quadram Institute building near the Norfolk and Norwich University Hospital; postcode NR4 7UQ.

More details will be provided nearer the time.

Many of us are too ill to leave our homes or are unable to attend meetings in person for other reasons, but please do take this opportunity to share your thoughts and ask any questions to help shape the agenda.

Let’s Do It for ME is run by severely ill patients supporting Invest in ME Research and their Centre of Excellence for ME projects.

Day 23 of the Invest in ME Research Advent Calendar is about the Centre of Excellence for ME so you can read more about it here.

Link to the meeting info and contact form here.

Thank you for supporting Invest in ME Research!