Our 40 x £1k Fundraisers Challenge

40 x £1k Fundraisers Challenge for Invest in ME Research

Our 40 x £1k Fundraisers Challenge aims to raise £40,000 to reach the milestone of £1,000,000 raised and pledged for Invest in ME Research for the charity’s Centre of Excellence biomedical research programme and medical education projects for ME (Myalgic Encephalomyelitis).

Any individual, group, team, company, is welcome to join in.

There is no pressure at all to reach your fundraising target.

Simply contact us with the link to your fundraising page or event and we’ll add it to our 40 x £1k Fundraisers grid and share on social media.

Let’s Do It for ME is run by patients supporting Invest in ME Research and helping to crowdfund the charity’s Centre of Excellence for ME projects.

Invest in ME Research can provide fundraising aids such as their charity collection boxes, wristbands, T-shirts, posters, banners, as well as leaflets and other awareness or informational materials.

If you want to support this challenge but don’t want to aim for £1k, just tell us to add your fundraising or donations to our totals.

We’ve set up our own £1k target fundraising pages on the fee-free Wonderful website and on JustGiving (which gives us the option to add offline donations and a team page).

We have also added our new fundraising page Remembering Anne Örtegren and thank you to those supporting.

Donations may be made anonymously if preferred.

If you are joining a team such as Walk for ME and want your fundraising to be added to our 40 x £1k challenge, just let us know.

Here are the details if you wish to send your donation to Invest in ME Research by cheque or bank transfer.

UK Bank Transfer
Bank: Lloyds TSB Heartsease
Sorting code: 77-66-53
Account number: 22439568

Bank Transfer from outside UK
IBAN: GB63 LOYD 77665322439568
BIC/SWIFT: LOYDGB21E05

Cheque
Send cheques payable to ‘Invest in ME Research’ to:
Invest in ME Research
PO Box 561,
Eastleigh,
Hampshire,
SO50 0GQ
(UK tax payers can add Gift Aid)

Let’s Do It for ME is run by patients supporting Invest in ME Research and fundraising for the charity’s Centre of Excellence for ME projects.

Our 40 x £1k Fundraisers Challenge

New Total £960,000

Walk for ME 2020

Do you know anyone who might like to do a sponsored walk or other activity in 2020 to help raise awareness of Myalgic Encephalomyelitis and biomedical research funds for Invest in ME Research?

Sarah-Louise Fittall Jordan, Luke Remnant, Ian McPhee and Geoff Allen, have launched Walk for ME 2020, their 8th consecutive year of fundraising in which they have raised over £150,000 for ME research thanks to walkers, runners and swimmers across England, Scotland, Wales, Ireland and the Isle of Man as well as in France, Germany, Spain, Malaysia, Australia, New Zealand and on both coasts of America!

The original idea behind Walk for ME was that friends and family of an ME sufferer did a sponsored walk on their behalf, hence the name. Since then, supporters have chosen several other activities too, in their quest to help the team raise money for biomedical research into ME.

The hope is that this will be a fun event even though it is poignant. The whole idea is that a friend or family member is doing something that their loved one would love to be able to do but can’t because of their illness.

Walk for ME has its own fundraising page for Invest in ME Research on JustGiving and a team page for fundraisers to join. This makes it easier for them to keep tabs on totals raised but if you prefer to use another fundraising platform just let them know the link.

To create your own page and join the Walk for ME fundraising team on JustGiving in suppport of Invest in ME Research:

1. Go to justgiving.com/investinm-e
2. Click the box ‘fundraise for us’
3. Either log in to your account or sign up if you’re new to JustGiving
4. Click on ‘personal challenge’ under ‘What are you doing?’
5. Follow the steps and choose your JustGiving web address
6. Click on ‘create your page’
7. Personalise your page. You can say who you are walking for and why
8. Then go to justgiving.com/teams/walkforme2020 and scroll down and click on ‘Join the team’
9. Select your fundraising page to add it to the team
10. You can then send your own JustGiving address to friends to raise sponsorship. Any target you set on your own page will automatically add to the team target.

You can find Walk for ME on Facebook and Twitter.

A big THANK YOU Team Walk for ME and supporters!

Our 40 x £1k Fundraisers Challenge

New Total £960,000!

Invest in ME Research announced in their Christmas and New Year Funding Appeal that £960,000 has been raised and pledged to support the charity’s Centre of Excellence for Myalgic Encephalomyelitis projects.

The Let’s Do It for ME campaign is run by severely ill patients supporting the charity’s Centre of Excellence programme of biomedical research and medical education projects. Our original crowdfunding goal of £100,000 enabled this work to get underway in 2013 (patient samples for the lab work obtained since 2014) and we would love to reach £1,000,000!

So to start off the new year, we have created a grid with 40 vacant slots with a funding target of £1,000 each and invite you to contact us if you’d like to aim to raise £1,000 whether as an individual or group, private or business. Read more on the page for Our 40 x £1k Fundraisers Challenge.

Many thanks to everyone helping Invest in ME Research to achieve their goals relating to maintaining a programme of high quality biomedical reseach with international collaboration focused on establishing diagnostic tests and medical treatments for this disease.

The charity wrote in December,

“To our supporters we owe great thanks – you helped create something that was thought unachievable. A sustainable Centre of Excellence for ME is now harnessing the benefits of a strategy of collaborative international biomedical research in modern facilities with world-class researchers.”

With very best wishes to you for 2020 and the new decade ahead and grateful thanks for supporting Invest in ME Research.

In case you missed it, your input is needed to inform the agenda for an upcoming public engagement meeting at Quadram Institute.

Our 40 x £1k Fundraisers Challenge

Your Input Needed for 2020 Public Engagement Event

Invest in ME Research and Quadram Institute are arranging a Public Engagement Event in Norwich on 7th February 2020 and are inviting patients, carers and supporters to send them any input to the meeting.

They are collecting information now in order to plan the agenda. If you have specific issues or questions that you feel should be addressed at the public meeting then please use the contact form on this page.

Supporters will know that work has been ongoing to establish a Centre of Excellence for ME (Myalgic Encephalomyelitis) based at Norwich Research Park, which houses Norfolk and Norwich University Hospital, University of East Anglia, Norwich Medical School, Earlham Institute (formerly The Genome Analysis Centre) and the new Quadram Institute.

Invest in ME Research is run by volunteer parents and patients. The charity published a detailed proposal for a centre in 2010 and began crowdfunding in 2011 to enable the biomedical research programme to get underway in 2013. The next phase is a clinical treatment trial of faecal microbiota transplantation for ME planned to start in 2020.

IiMER and QI are keen to discuss the planned research with patients and carers, and wish to get views and additional insights to help them shape their future research. They will be discussing logistics for this meeting and will be meeting in the New Year to plan the event.

Please contact them through the contact form on this page.

The meeting itself will be on the morning of 7th February 2020 (the likely time being 10:30 – 12:00) in the new Quadram Institute building near the Norfolk and Norwich University Hospital; postcode NR4 7UQ.

More details will be provided nearer the time.

Many of us are too ill to leave our homes or are unable to attend meetings in person for other reasons, but please do take this opportunity to share your thoughts and ask any questions to help shape the agenda.

Let’s Do It for ME is run by severely ill patients supporting Invest in ME Research and their Centre of Excellence for ME projects.

Day 23 of the Invest in ME Research Advent Calendar is about the Centre of Excellence for ME so you can read more about it here.

Link to the meeting info and contact form here.

Thank you for supporting Invest in ME Research!

Team Catherine’s Christmas Cracker

These girls did!

Team members: FFion Hicks, Verity Ballard, Sophie Martin, Claire Bloomer, completed the Weston Athletic Club Christmas Cracker 10k run in aid of Invest in ME Research for their friend Catherine Halford.

Catherine’s Story

I was first diagnosed with ME at the age of 12 after having glandular fever,  I did not recover from this so many months of hospital visits led to my diagnosis. This had a big impact on my teenage years spending much of my time unable to join in with school activities and general growing up.  I was always very active and enjoyed many sports. I spent 5 years managing my health along with my education with lots of support from my family.  Much of my time was spent in bed unable to move and many nights of severe pain.  I was then very lucky and things started to get easier for me, my pain levels went down and I had more energy.  As the years went on I was able to lead a relatively ‘normal’ life with my ME in the background.  I was well enough and able to train for and run the London Marathon which is an achievement I am very proud of and can only dream about doing again.  In 2018 I caught the flu, this hit me hard and with my immune system hitting a low my ME was re-triggered.  This has been life changing for me, I have had to give up a job I love, my hobbies and can not always be there for my husband and children as much as I would like.  I spend my days trying to manage my illness once again while being there for my family.  I would love to be out running again but this is just not a possibility.  My lovely friends are running the 10k Christmas Cracker in order to raise money to support a fantastic charity.  I am so grateful to them and charities that support ME, one day treatment and a cure will be found to stop many others going through these life changes due to the illness.

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS).The charity is run by volunteers – patients or parents of children with ME – with no paid staff.Overheads are kept to a minimum and all funds raised to go to promoting education of, and funding for biomedical research into, ME.Our efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations, diagnosis and in time treatment(s)/cure(s).

WAC Christmas Cracker 10k: justgiving.com/fundraising/crackerrun

Big thanks Team Catherine and all supporting Invest in ME Research!

✨Christmas Shopping and Fundraising for Invest in ME Research✨