Nova Magazine Spotlights ME

Nova Magazine has published an excellent article by Will and Kathryn Woodvine featuring their teenage son Alex, who is severely ill with Myalgic Encephalomyelitis, and their amazing friend Arry’s Mountain Mayhem 100 miles in 24 hours off road cycle challenge fundraising for Invest in ME Research.

The article is in the SpotLight section on page 26 of the May 2019 issue of Nova Magazine. You can find it in flipbook format on the home page of the magazine’s website, and also share the text directly from this webpage:
novamagazine.co.uk/invest-in-m-e/

Titled Invest in M.E, the piece also features One Stupid Dot, the poem by musician Mama Chill (aka Stacy Hart of Team Let’s Do It for ME) which has struck a chord with so many people and was performed on What’s Up TV. You can find the poem on Stacy’s Runnin On Empty M.E awareness page along with her music videos for ME Awareness: officialrunninonempty.com/m-e-2

Nova Magazine is also delivered free to every household in Newport, Shropshire and the surrounding area, so this is wonderful awareness and Kathryn is absolutely delighted, “Hopefully it’ll raise a lot of ME awareness and maybe even a donation or two! Thanks Teresa for organising such a fab article 💙”

Please feel free to share widely during May ME Awareness Month.

Arry is fundraising at: justgiving.com/fundraising/wwwinvestinmeorg



Thank you for supporting Invest in ME Research!

31 Days in May

New book of poems for May ME Awareness Month

by The French Femme

Rosalynde Lemarchand is pleased to announce the publication of her new book ’31 days in May’ under her nom de plume The French Femme.

Ros’s new book of 31 short poems about the reality of living with ME (Myalgic Encephalomyelitis) has been especially written for May ME Awareness Month.

Each day in May Ros will be sharing a poem from the book, so keep an eye on her blog or Facebook page or @frenchros on Twitter.

All proceeds from the book will be donated to Invest in ME Research and the charity’s Chairman, Kathleen McCall, has written the foreword. Ros has set up a JustGiving page Rosalynde’s 31 days in May for donations to the charity.

Ros writes,

Please feel free to share my blog and any of my poems.

I don’t write and publish my poetry to make a living but rather to increase awareness and understanding and to help others who suffer like myself.

It takes a great deal of time and effort and there is always payback on my health. 

I hope my collection of poems convey a strong and simple message. I want better understanding and support. I want the suffering to end.

Please support me and Invest in ME Research.

Thank you.

À bientôt
from the French Femme
xxx

The book is available in both paperback and kindle versions on Amazon in many countries throughout the world. Links to some of these are in Ros’s blog: roslemarchand.blogspot.com/2019/04/31-days-in-may.html

If buying anything from Amazon UK you can generate an extra donation to Invest in ME Research by using this referral link or via Amazon Smile.

Merci Beaucoup!

Thank you for supporting Invest in ME Research!

Swim a Mile in May for ME

UPDATE ON TOTAL RAISED BY TEAM SWIM FOR ME

A challenge for swimmers in aid of Invest in ME Research!

Swim a mile in May for ME is a new fundraiser for Invest in ME Research.

Anyone is welcome to take part and the idea is that a team, or an individual, swim a mile in May ME Awareness Month to raise funds for the charity Invest in ME Research for biomedical research into Myalgic Encephalomyelitis (ME).

It can be a relay, an individual swim or a number of swims throughout May to reach your total.

The target is a mile but individuals and teams can choose to do more or less or whatever is appropriate for them.

Absolutely everyone is welcome to join the team regardless of distance aimed for and there are no set fundraising targets just whatever feels appropriate.

Please do join in if you can!

There’s a team page on JustGiving but if you’re using another fundraising platform just let us know if you want to be included in the team total raised. We’d love to hear about any swims people are planning and will help if we can.

Supporters can also email the charity directly at info@investinme.org for fundraising aids such as T-shirts, wristbands, info materials, collection boxes and if you are also collecting money offline, you can download sponsorship forms.

To create your own fundraising page and join the Swim a mile in May for ME team on JustGiving:

1. Go to justgiving.com/investinm-e
2. Click the box ‘fundraise for us’
3. Either log in to your account or sign up if you’re new to JustGiving
4. Click on ‘personal challenge’ under ‘What are you doing?’
5. Follow the steps and choose your JustGiving web address
6. Click on ‘create your page’ and personalise it however you like
8. Then go to justgiving.com/teams/swimforme and scroll down and click on ‘Join the team’
9. Select your fundraising page to add it to the team
10. You can then send your own JustGiving address to friends to raise sponsorship. Any target you set on your own page will automatically add to the team target.

Signed up at the time of writing are Amanda Buckley, Cath Clapton,
and young Izzy and Chloe and Ruby for “Our lovely dad Luke Remnant has had ME for ten years and we desperately want him to get well so he can live a normal life again and do all the things with us that he wants to so much.”

There’s also a public Facebook group you can join here run by Luke Remnant, Ian McPhee, Sarah-Louise Fittall Jordan, Geoff Allen, and Paul Kayes.

Please share widely if you’d like to support.

Let’s pool resources and Swim a mile in May for ME!
 

 

Thank you for supporting Invest in ME Research

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS). The charity is run by volunteers – patients or parents of children with ME – with no paid staff. Overheads are kept to a minimum and all funds raised to go to promoting education of, and funding for biomedical research into, ME. Their efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations, diagnosis and in time treatment(s)/cure(s).
 

Welcome to Wonderful!


 

Invest in ME Research is now officially a Wonderful Charity

Wonderful.org is a fab fundraising platform which is completely free to use. Supporters can create online fundraising pages or simply donate.

 

 

Most fundraising platforms charge for providing the service, whereas Wonderful.org is a non-profit funded entirely by like-minded, philanthropic businesses making it possible for them to pass EVERY PENNY raised from your fundraising efforts and generous donations to the charity, including Gift Aid.

Invest in ME Research itself is run by volunteers and has no paid staff. It’s a small charity supported by people with big hearts. Overheads are kept to a minimum to enable all funds raised to go to promoting education of ME, and facilitating and funding biomedical research, which the charity believes is crucial in order to make progress in treating this disease. Education of healthcare staff, the media, government departments, patient groups and patients is also a priority.

First to sign up as Wonderful Fundraisers for IiMER are Georgina and Phoebe!

 

Huge thanks Georgina and Phoebe and all your wonderful sponsors helping Invest in ME Research to change the landscape of medical research and treatment for sufferers of all ages with Myalgic Encephalomyelitis.

Please share Georgina and Phoebe’s fundraising page and help spread word of this excellent new option to fundraise online and donate to a wonderful charity.

Georgina and Phoebe’s Endurance Kayaking

Invest in ME Research on Wonderful.org

 

 

Thank you for supporting Invest in ME Research!

 

Play for IiMER


 

Play for Invest in ME Research Launches With Love

 

Music was the food of love for ME at The Spinning Top in Stockport on Sunday 17th Feb. The Valentines Music Fundraiser launched ‘Play for Invest in ME Research’ created by Karen Morris to raise money for the charity’s Biomedical Research Fund while also raising awareness of Myalgic Encephalomyelitis.

The idea of Play for IiMER is to organise gigs around the country in aid of the charity. Karen hopes to organise more gigs herself if health allows (Karen has ME) and hopes that others in UK will help her to make Play for Invest in ME Research go nationwide by organising and filming similar gigs in aid of the charity.

Click here for a super selection of photos of the Valentines Music Fundraiser, where you may notice Let’s Do It for ME Bear taking centre stage!

Karen added the money to the total raised on her JustGiving page –
I Support ME Research
and there’s an option to donate by texting ISMR99 £10 (or £1-£5) to 70070.

The performances were recorded and are uploaded with each artist’s name to the Play 4 IIMER playlist on Karen Morris YouTube channel.

Many thanks to Karen and everyone who donated, watched, performed.

If you (or anyone you know) would like to join in with this event, please contact Karen Morris. You can also contact Invest in ME Research charity for help with awareness and fundraising aids, banners, wristbands, collection boxes etc.

Play for Invest in ME Research: facebook.com/play4iimer

Donate: justgiving.com/isupportmeresearch

or text ISMR99 £10 (or £1-£5) to 70070

YouTube: youtube.com/playlist
 

 

Thank you for supporting Invest in ME Research!