Giving Tuesday News

We couldn’t let this day go by without taking the opportunity to thank everyone generously giving of your precious time, extraordinary efforts, sheer genius and money, to support the work of the volunteer-run UK charity Invest in ME Research and, especially as far as the Let’s Do It for ME campaign is concerned, joining us in enabling the charity’s Centre of Excellence projects to get underway and ongoing.

You are all much appreciated, whether you are a well friend and run a mountain marathon, or are bedbound and feel like you run a mountain marathon every day, supporting by sharing posts and links online.

We highlight a few of these current endeavours today.

Rebeccah Prince’s innovative Five Portions Of Etsy shop closes on 12th December. Five Portions Of is also on Facebook and Twitter.

Rebecca also created a Facebook fundraiser today.

“I am holding a Pop-up Christmas Fair at my house for friends, family and local residents with my stall selling unique themed gift boxes which I put together under the name of Five Portions Of, lovely artisan stalls and a Christmas cafe to raise money for Invest In ME Research. This is my second fair and last year I raised a coupe of hundred pounds for Invest In ME Research. If you are unable to make it to the fair and would like to donate please use this fundraiser. I myself have been a participant in the Gut Bacteria studies by Invest In ME Research so it is a charity that is very important to me.” Read more…

Please send Jane Hurst a private message on Facebook if you’d like to buy a pack or two of her gorgeous nature photo cards.

Thanks again to Jane’s family who braved the cold for another sale of her cards, kindly hosted by O’Flynn’s Budgens in Poringland and with proceeds to Invest in ME Research.

Thanks also to Emma for her stunning 2020 Calendar (sold out) and Chris, whose Unique Gifts from Squirrel Woods raised £574.00!

Choose from a range of lovely jewellery handcrafted by Lynne available on Etsy at ME2UDezignz.

Christmas to a T? The amazing Mama Chill’s limited edition design for men and women available to buy online from her shop on Dizzyjam.

Invest in ME Research shone the spotlight on the brilliant efforts of Jen Govey on Day 3 of their Advent Calendar. Jen joined Team Let’s Do It for ME last year with her absolutey fabulous awareness and fundraising idea #DressForME. She’d love you to join in the fun if you’re well enough to do fancy dress or cosplay or simply like and share.

Day 3 of easyfundraising’s £5k win-win Advent Calendar contest, and still time to nominate IiMER to win £1k in Ecclesiastical’s 12 Days of Christmas.

Finally, one thousand thank yous to the donor of £1,000 to Invest in ME Research lighting up their Christmas Funding Tree!

Happy Giving Tuesday everyone and thank you for your support!

PRESS RELEASE: £500k Pledged by IiMER!

Invest in ME Research has announced a pledge by the charity of £500,000 to the biomedical ME research underway at Norwich Research Park.

As far as we know, this is the largest single pledge for biomedical research into Myalgic Encephalomyelitis ever made by a charity in UK!

IiMER Press Release
Quadram Institute News

The pledge covers joint funding of a PhD position in partnership with University of East Anglia and over 70% of the required funding for a clinical trial of Faecal Microbiota Transplantation being performed alongside other high-quality biomedical research at Quadram Institute.

Invest in ME Research pledged £435,000 towards the FMT trial earlier this year, so this new pledge represents an increase, thanks to the efforts of the charity and their supporters, including patients, carers, parents, friends and families affected by this disease. On their page describing the recent Centre of Excellence projects, IiMER write,

“The efforts of our supporters are exemplified in the Let’s Do It For ME campaign – started by three severely affected patients from their homes. They have enlisted friends and families to join with Invest in ME Research to create a grassroots movement to fund biomedical research into the disease, and thereby compensating for the meagre offical funding that has been given to research into ME over the years.

Invest in ME Research will now have funded or part funded five PhDs performing research into ME and working in partnership with researchers to initiate a foundation of high-quality research in one of the largest and most prestigious research parks in Europe.” Read more:

The press release is announced on Day 2 of the charity’s Advent Calendar.

Together we have helped raise and pledge over £900,000 for Invest in ME Research since the Let’s Do It for ME campaign launched in support of the charity’s plan to establish a UK/European Centre of Excellence for ME.

This includes a hugely generous pledge to the charity from The Hendrie Foundation towards a clinical treatment trial and their substantial donation to the B-cell ME research performed at UCL. We are enormously grateful to the foundation and to everyone supporting the development of the Centre of Excellence for ME and the ongoing research there.

Thank you all so much for supporting Invest in ME Research!

Let’s keep doing it for ME!

Donate to
Invest in ME Research

Donate/Share Let’s Do It for ME’s
fundraising for the FMT trial

Christmas Contests, Fundraising, Shopping

Christmas Tidings

News and Ways to Support Invest in ME Research

Invest in ME Research launched their Christmas / New Year Funding Appeal on Day 1 of the charity’s 2019 Advent Calendar.

This year’s appeal aims to raise funds towards the UK clinical trial of FMT for ME (faecal microbiota transplantation as a potential treatment for Myalgic Encephalomyelitis) planned to begin in 2020 at Norwich Research Park, hub of the UK/European Centre of Excellence for ME.

The charity has kindly linked to our page for donations.

As Wonderful is a fee-free fundraising platform, and as Invest in ME Research is run entirely by volunteers, every penny of your donation helps to fund the clinical trial. You can add Gift Aid if you are a UK tax payer, adding 25% value to your donation at no extra cost to you.

Look for the IiMER advent calendar during the run up to Christmas day – a different story every day. Look especially for the second day of December!

Other Ways to Support Invest in ME Research

✨Send Christmas or New Year eCards via and donate the cost of greeting cards to Invest in ME Research.

✨Nominate Invest in ME Research (charity number 1153730) to win £1,000 in Ecclesiastical’s 12 Days of Giving competition.

✨Enter easyfundraising’s Advent Calendar contest for free to be in with a chance to win daily prizes and £5,000 to spend at John Lewis & Partners on Christmas Day. You can also win donations – including a £5,000 donation on Christmas Day – for Invest in ME Research!
You don’t have to shop. To enter, just visit the easyfundraising Advent Calendar and click the day’s window. Go back every day for a chance to win each day’s prize. It’s as simple as that!

✨See all ways to raise funds for free for Invest in ME Research when shopping online, recycling etc.

✨There has been a good deal of interest in WE – a Community and ME – a new booklet recently produced by Invest in ME Research thanks to an Awards for All grant. A number of copies are now distributed to five other countries. If you would like a copy for yourself or as a gift to help others to understand issues with ME, email the charity at

✨As Invest in ME Research say in their December newsletter, if there are 250,000 people with ME in UK then that is a powerful lobby. The general election is another chance for patients and families to ask prospective candidates what actions they propose to address the serious issues affecting people with ME. Scroll the charity’s page for info
The Let’s Do It for ME page on the recent parliamentary debates on ME research and treatment is here.

“We would like to thank all of our supporters who made incredible efforts in fundraising over the past months.”
Read more from Invest in ME Research December 2019 Newsletter
Subscribe to future newsletters
See past newsletters

✨Season’s Greetings from Team Let’s Do It for ME✨
Thank you for supporting Invest in ME Research!

The Weather Lottery

Join the Invest in ME Research lottery to win up to £25,000!

The Weather Lottery is Great Britain’s leading fundraising Lottery. They guarantee that a minimum of 37% of every £1 you spend goes directly to the charity and it could be up to 65% after all costs and prizes have been paid.

When you join, you’ll be given a unique 6 digit Lucky Number to be entered into the weekly Weather Lottery draw. If you choose more than one entry, you’ll be given a separate Lucky Number for each entry.

The Weather Lottery result is based on the last digit of the Fahrenheit temperatures from 6 popular European destinations that are currently published in the Daily Mail on the day of the weekly draw.

The more numbers you match in order, the bigger the prize, and it’s easy to see if you’ve won. Match all 6 numbers and you win £25,000! The prize money won’t be shared and it doesn’t cost the charity a penny if you win.

To join and read all about it click here.

Players T&C here.

Thank you for supporting Invest in ME Research!

Let’s Win £1,000 Again!

Please nominate Invest in ME Research (charity number 1153730)

Earlier this year, your nominations won Invest in ME Research a wonderful £1,000 award in specialist insurer Ecclesiastical’s #MovementForGood. Here is our chance to do it again thanks to the company’s #12Days of Giving.

Nominations are open now and remain open until midnight before the day of each draw. You need only nominate once and your nomination carries over to the next day if the charity does not win.

Draws will take place each weekday from 5 – 20 December 2019. 

Winners will be drawn at random and the more nominations Invest in ME Research receives the greater the chance of them winning, so please spread the word and encourage your friends, family, contacts, to nominate too!

Click here and scroll the page for the nomination form.

Charity number: 1153730

Charity name: Invest in ME Research

Charity type: Health

Mark Hews, Group CEO of Ecclesiastical, said: “As a company whose purpose is to contribute to the greater good of society, charitable giving is at the heart of our business. Our annual 12 days of giving Christmas campaign will help charities change lives for the better and we know that for many charities, £1,000 can make a real difference. We’re encouraging everyone to nominate a cause close to their hearts this Christmas to be in for a chance to win a festive financial boost.”

Thank you for this opportunity Ecclesiastical and thank you everyone nominating Invest in ME Research!

About Invest in ME Research

The charity believes that biomedical research into ME is crucial in order to make progress in treating this disease. We also believe that education of healthcare staff, the media, government departments, patient groups and patients is to be a priority.

The charity’s objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.

We are a small charity but with supporters who have big hearts – and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.

We have links nationwide and also internationally. Read more…