Amy Tooley’s 500km of running in 2017

Amy Tooley has set up the first JustGiving page for Invest in ME Research of 2017! She explains why in her story on JustGiving ….

I have the best big brother that you could hope for. He is kind, caring and very funny (annoying sometimes too like an older brothers usually are)!

I have spent my life looking up to him, his opinion of me and my life choices matter greatly to me.

I have watched him go through life having fun and being successful in everything he has put his mind to which is why it is so hard to now see him struggling daily all because of him having ME.

I have seen this cruel illness, that very little is known about, take so many things from Luke. I have seen it wear him down to some scary places but I have also witnessed my amazing brother fight back everytime. I knew he was tough but I never realised how tough until he got ill. Those of you who know me well know how much ME has affected Luke and all his family.

I cannot even imagine half of what he goes through every day due to this illness and what makes it all even worse is that unlike other illnesses there is no medication to cure it or lessen the symptoms.

Luke is reading and researching everything he can on ME and is trying to raise money for research charities such as liME by setting up an annual “Walk for ME” event with his friends which has raised over £70,000 to date to fund this vital research.

I have not run 10k since August 2015 when I found out I was pregnant with Josh so the thought of running an average of 10k each and every week for a year is pretty daunting but if I can raise £500 for ME research then every km and shin splint will be worth it.

Fitting running into my days with two little ones to look after and returning to work in May is a bit of a daunting task so even if you can only spare a couple of quid to help me get to my target I would greatly appreciate the support and motivation.


Amy x

Thanks for taking the time to visit my JustGiving page.

Proud big brother Luke Remnant sent us the photos above of Amy with him as children and with her husband Rich. Luke plans to write a guest blog later, when he is feeling a little better, as and when his health allows. He has been busy, along with Sarah-Louise Jordan and Ian McPhee, launching Walk for ME 2017, the 5th year of this successful month of May ME Awareness fundraiser for biomedical research into ME (Myalgic Encephalomyelitis). Here is our page with further information and all the links for anyone wishing to support Invest in ME Research by taking part in Walk for ME 2017 –