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Nova Magazine Spotlights ME

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Nova Magazine has published an excellent article by Will and Kathryn Woodvine featuring their teenage son Alex, who is severely ill with Myalgic Encephalomyelitis, and their amazing friend Arry’s Mountain Mayhem 100 miles in 24 hours off road cycle challenge fundraising for Invest in ME Research.

The article is in the SpotLight section on page 26 of the May 2019 issue of Nova Magazine. You can find it in flipbook format on the home page of the magazine’s website, and also share the text directly from this webpage:
novamagazine.co.uk/invest-in-m-e/

Titled Invest in M.E, the piece also features One Stupid Dot, the poem by musician Mama Chill (aka Stacy Hart of Team Let’s Do It for ME) which has struck a chord with so many people and was performed on What’s Up TV. You can find the poem on Stacy’s Runnin On Empty M.E awareness page along with her music videos for ME Awareness: officialrunninonempty.com/m-e-2

Nova Magazine is also delivered free to every household in Newport, Shropshire and the surrounding area, so this is wonderful awareness and Kathryn is absolutely delighted, “Hopefully it’ll raise a lot of ME awareness and maybe even a donation or two! Thanks Teresa for organising such a fab article 💙”

Please feel free to share widely during May ME Awareness Month.

Arry is fundraising at: justgiving.com/fundraising/wwwinvestinmeorg



Thank you for supporting Invest in ME Research!

https://twitter.com/LetsDoIt4ME/status/1121350158736875520

31 Days in May

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New book of poems for May ME Awareness Month

by The French Femme

Rosalynde Lemarchand is pleased to announce the publication of her new book ’31 days in May’ under her nom de plume The French Femme.

Ros’s new book of 31 short poems about the reality of living with ME (Myalgic Encephalomyelitis) has been especially written for May ME Awareness Month.

Each day in May Ros will be sharing a poem from the book, so keep an eye on her blog or Facebook page or @frenchros on Twitter.

All proceeds from the book will be donated to Invest in ME Research and the charity’s Chairman, Kathleen McCall, has written the foreword. Ros has set up a JustGiving page Rosalynde’s 31 days in May for donations to the charity.

Ros writes,

Please feel free to share my blog and any of my poems.

I don’t write and publish my poetry to make a living but rather to increase awareness and understanding and to help others who suffer like myself.

It takes a great deal of time and effort and there is always payback on my health. 

I hope my collection of poems convey a strong and simple message. I want better understanding and support. I want the suffering to end.

Please support me and Invest in ME Research.

Thank you.

À bientôt
from the French Femme
xxx

The book is available in both paperback and kindle versions on Amazon in many countries throughout the world. Links to some of these are in Ros’s blog: roslemarchand.blogspot.com/2019/04/31-days-in-may.html

If buying anything from Amazon UK you can generate an extra donation to Invest in ME Research by using this referral link or via Amazon Smile.

Merci Beaucoup!

Thank you for supporting Invest in ME Research!

Ecclesiastical’s Movement for Good £1,000 Awards

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UPDATE June 2019: You did it! Your nominations helped Invest in ME Research win a wonderful £1,000 Ecclesiastical Movement for Good Award:
investinme.org/IIMER-Newslet-190601eccles.shtml

Thank you for supporting Invest in ME Research!


*****

Please nominate Invest in ME Research – charity number 1153730 –
for a chance to win £1,000 award in Ecclesiastical’s Movement for Good.

Ecclesiastical is giving £1,000 donations to 500 charities and £50,000 grants to 10 charities, £1m in total. First up are the £1000 awards.

Nominations are open from Tuesday 23 April to Friday 17 May. 

500 winners will be drawn at random from the pot of nominations.

Anyone can nominate a charity and it’s quick and easy to do.

You can only nominate a charity once and your nomination is identified by your unique email address.

The more nominations the greater the chance of winning.

“Charitable giving is at the heart of what we do – and has been for over 130 years. Today, we’re the only financial services group that exists to gives its profits to charity. We’re proud to be doing things differently. To be giving back to the communities we serve and championing the issues that really matter to them – working together to build a movement for good.” Ecclesiastical

Nominate here: ecclesiastical.com/movement-for-good/nominate-a-charity/

You will need the charity name Invest in ME Research
and the charity number 1153730

Thank you for your support!

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS), as defined by WHO-ICD-10-G93.3. and promoting better education about ME.

Invest in ME Research is run by volunteers – patients or parents of children with ME – with no paid staff.

Overheads are kept to a minimum to enable all funds raised to go to promoting education of, and facilitating and funding biomedical research into, ME.

The charity believes that biomedical research into ME is crucial in order to make progress in treating this disease. We also believe that education of healthcare staff, the media, government departments, patient groups and patients is to be a priority.

The charity’s objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.

We are a small charity but with supporters who have big hearts – and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments. Read more…


Welcome to Pets Walkies for ME 2019!

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All pets are welcome to join Team Walkies for ME, an adorable offshoot of the annual May ME Awareness and Fundraiser Walk for ME.

Walkies for ME is arranged by Ian McPhee. The team comprises a group of wonderful pets whose humans have Myalgic Encephalomyelitis.

These lovely dogs, cats, horses and others will be doing a walk on their human’s behalf or resting with them, providing comfort and love.

They have their own JustGiving page justgiving.com/fundraising/walkies-for-me-2019 and are raising funds for Invest in ME Research charity.

You can, of course, create your own fundraising page for the team, like Cheyenne Hope’s for dynamic duo Lizzie and Kenzo planning to do 31 walks in 31 days for Invest in ME Research!

Walkies for ME also has a Facebook page facebook.com/WalkiesforME/ where folks can share photos of their pets and where you can let the team know if your pet would like to join in. All Pets Are Welcome!

Thank you for supporting Invest in ME Research!

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS). The charity is run by volunteers – patients or parents of children with ME – with no paid staff. Overheads are kept to a minimum and all funds raised to go to promoting education of, and funding for, biomedical research into, ME. Our efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations, diagnosis and in time treatment(s)/cure(s).