We’re off on the next leg of our fundraising journey to raising a million pounds for Invest in ME Research Funds for their Centre of Excellence biomedical research programme aiming to establish diagnostic tests and medical treatments for Myalgic Encephalomyelitis (ME).
You can also raise donations to Invest in ME Research at no extra cost to you when shopping online, or by buying from sellers donating some or all of their profits to the charity, and simply sharing links on social media helps to raise awareness of the charity’s work on establishing a Centre of Excellence for ME.
In a Westminster Hall debate on ME treatment and research on 21 June 2018, Sir Henry Bellingham, MP for North West Norfolk, called for government support for the Invest in ME Research Centre of Excellence for Myalgic Encephalomyelitis.
Sir Edward Davey (Kingston and Surbiton) and Dr. David Drew (Stroud) voiced their agreement, and Steve Brine, Under-Secretary of State for Health and Social Care, said it sounds very promising.
We’ve drafted a letter, which you are welcome to copy and paste or adapt to send your own MP to inform or update them on the progress of the Centre of Excellence and to ask them to support Sir Henry’s call on your behalf.
To find your MP’s contact details, put your postcode in the box on this page.
I write to request your support for the Invest in ME Research Centre of Excellence for ME (Myalgic Encephalomyelitis), as highlighted by Sir Henry Bellingham during a Westminster Hall debate on ME treatment and research on 21 June 2018.
Two main points of note are that the research and treatment of ME is a cross-party matter of public health for people and public services in every constituency; and that the Invest in ME Research Centre of Excellence for ME is of national and international importance.
The proposal to establish a hub-and-spoke model UK Centre of Excellence for ME, based at Norwich Research Park with international cooperation, was published May 2010 by UK charity Invest in ME Research.
The work is now well underway, currently involving researchers based in Norwich, Oxford, Cambridge, London, Surrey, and in collaboration with other countries.
As noted by Sir Henry Bellingham:
“That was funded by patients and carers, who raised a staggering £800,000 for what will be groundbreaking, world-class research.”
“Invest in ME Research has set up a centre of excellence for research in the Norwich Research Park, and it is planning to create a hub for European biomedical research, which is good news indeed. It already has five PhD students and is hoping to push out a consultant-led clinical service. Here we have the infrastructure and base for that extra Government funding, to build on the money that has been raised by patients and carers.”
“I hope the hon. Gentleman will support my campaign to get the Government to invest in the Invest in ME Research Centre of Excellence in Norwich. I did not mention that it has a really good chance of forging first-class links with not only European biomedical research institutes but institutes in the United States and Asia, where other groundbreaking research is being done. The Government should support and invest in success.”
Please read the June 2018 update on the Invest in ME Research Centre of Excellence, a bullet-point summary of the current status of this project, which has impressed USA’s NIH and is deserving of support by all UK political representatives and the relevant government departments: http://www.investinme.org/ce-cofeforme.shtml#exsu
The summary concludes on page 7:
“Invest in ME Research is therefore asking for support from MPs to engage actively with this project with a view to securing the final, and vital, elements of the UK Centre of Excellence for ME and create a future whereby people with ME may be given back their lives.”
Gift Aid gives the charity an extra 25% of your donation from the government if you are a UK tax-payer, so please tick the Gift Aid box when you donate via a fundraising platform, or download a Gift Aid declaration form.
Bank: Lloyds TSB Heartsease
Sorting code: 77-66-53
Account number: 22439568
Bank Transfer from outside the UK
IBAN: GB63 LOYD 77665322439568
Send cheques payable to ‘Invest in ME Research’ to:
Invest in ME Research
PO Box 561,
(add Gift Aid to your donation with Invest in ME Research Gift Aid form)
UK Text IBRF33
£1, £2, £3, £4, £5 or £10
(you can add your name and Gift Aid if eligible by text)
Click on the icons below to donate online to Invest in ME Research
or to: firstname.lastname@example.org
Please help spread the word….
Let’s Do it for ME is a patient-driven campaign launched in 2011 in support of the proposal by UK charity Invest in ME Research to establish a centre of excellence for biomedical research and patient care based in East Anglia, and in collaboration with other leading UK and international biomedical researchers.
We help to raise funds for the biomedical research into Myalgic Encephalomyelitis that the charity is organising and/or funding. Our crowdfunding for specific ME research is the first of its kind in UK and has inspired similar projects in Europe and USA. We have helped to raise over £800,000 enabling the biomedical research strategy to get underway, and we are aiming for £1,000,000.
The current focus of the research is on the role of the immune system, including infection and autoimmunity. The research projects are described here: investinme.org/ce-projoverview.shtml
There is also a scheme for medical students to be directly involved in biomedical research by intercalating in their fourth year: investinme.org/ce-ms-studs.shtml
Invest in ME Research is also renowned for their international conference events, which have grown year on year since the first in 2006, bringing patients and carers together with doctors and scientists and others to galvanise change in the way that ME is researched and treated across the world. Sponsorship is welcome: investinme.eu/index.shtml#sponsors
Invest in ME Research is a founder member of the European ME Alliance of 15 like-minded patient organisations, member of the European Federation of Neurological Associations and formed the European ME Research Group.
Invest in ME Research is run entirely by volunteers who either have ME or are parents and carers of ME patients. They are driving the agenda of scientific research into diagnostic tests and treatments for myalgic encephalomyelitis in UK in collaboration with international researchers of world renown.
Please join us in helping them to do all of this for ME.
Thank you for your support!
June 2018 update: Invest in ME Research and the Centre of Excellence for ME were referred to by Sir Henry Bellingham and Sir Edward Davey during a debate in Westminster Hall on 21st June secured by Carol Monaghan. We’ve added a page to the website about this with the relevant clips: Parliamentary Debate on ME research and treatment