What’s Up TV Wants Your Voice for ME

Message from Invest in ME Research

Invest in ME Research has been contacted by a researcher on a Sky One programme called What’s Up TV – an arts and culture magazine show with a reach of 100,000 households, and with a young demographic of 16-25.

Every series they pick a campaign, this is generally a cause they feel deserves more attention, and this series their campaign is M.E.

As part of this campaign they are producing an item on M.E.

This item will give an introduction about M.E. to viewers – how it affects patients, and the challenges the community currently faces.

As part of this they wish to feature the voices of people who live with the condition – this would entail people sending in short videos (no more than 20 seconds) of individuals speaking about the condition and their life to camera.

Therefore, we are sharing this request to our supporters.

If you are able to share a very short video talking about your experience – how having M.E. has changed your life, the medical treatment and support made available, and the level awareness that you believe M.E. has – then these videos will be cut together and used as part of the item.

The videos should be as high quality as possible, but a webcam recording would be fine. They can be sent to this email address, preferably in MP4 form – Robyn@whatsuptv.co.uk

To summarise
– the experience of anyone who lives with M.E.
– under 20 seconds
– they would need them by Tuesday 29th May
– email to Robyn@whatsuptv.co.uk

Web site is https://www.whatsuptv.co.uk/

Happy Birthday Paul Kayes!

Let’s celebrate to kick off ME Awareness Month May 2018!

Fab friends of Paul Kayes have been busy organising an online surprise for his birthday today. Paul is co-founder of the Let’s Do It for ME campaign to support the charity Invest in ME Research, and founding admin of The M.E Chat Room Facebook group for Myalgic Encephalomyelitis, among the many ways he shows ceaseless kindness, generosity, and good humour to people across the globe.

Message from Paul’s friends…

Paul as it’s your birthday we all felt that the best way to celebrate was to raise funds for our favourite charity.

Paul you are a great friend you have supported so many of us through good times and bad times and we are honoured to call you a friend so here’s our way of celebrating your special day Happy Birthday 🎁

Many thanks to Nadine Pennington for setting this up and coming up with such a fantastic idea. justgiving.com/fundraising/paulkbirthday

Ways you can help celebrate Paul’s birthday…

🎁 Donate to the fundraising page created by Michelle, Makayla and Sophie: justgiving.com/fundraising/paulkbirthday
(JustGiving accepts any amount from £2 and now has an option to add 5% of your donation to cover their platform fees.)

🎁 Leave a message on the Kudoboard created by Alison: kudoboard.com/boards/j2Tfv2Ks
(It’s easy to register/sign in, click ‘add kudo/image/video’ to type your message, upload image/video or choose from the Kudoboard picture/GIF library.)

🎁 Post a ‘Paul joke’ online to pay him back for all the giggles and groans!

🎁 Join Jen Govey later today in a special birthday surprise for Paul at Dress for ME on Facebook: facebook.com/DressForMEchallenge/

(Update: Jen’s video is here: facebook.com/DressForMEchallenge/videos/1634459776675575/
and she tweeted)…


Happy Birthday Paul Kayes!

Happy ME Awareness Month everyone!

Thank you for all your support!