Merry Christmas everyone!
With 5 PHD studies now being funded by IiMER and 1/2 million raised/pledged for the UK B-cell Research/Rituximab Trial (see here for more details) the climax of the year looks to be a glittering one for IiMER. So let’s attempt to celebrate it by making this the most fabulous festive season we can with plenty of fun fundraisers to donate towards/participate in.
Congratulations to hardy runners, John Adams and his nephew Rob, who braved storm Angus to run the Brighton Brooks 10km marathon, coming joint first! John’s firm kindly donated an extra £500 to the £873.03 + £201.25 Gift Aid raised on JustGiving by the intrepid duo, bringing the total to over £1500 by John’s Brighton Brooks 10k adventure! . John posted, “Feel really pleased! Thanks to all my family, friends and colleagues who supported the effort.”
A big thank you to Ann Phanco Mcneilage and Pooch Pageant for a fantastic donation of £50 towards Makayla’s just giving page which goes to Invest in ME Research. It means so much to Makayla, and both Trixie and Marley enjoyed their first pageant. (Trixie is pictured taking part in Black Dress Day)
CONGRATULATIONS NOVEMBER COMPETITION WINNERS: Geoff Allen, Joanne Seller & Bernard Adams, you have each won yourselves;
a sleepyhead Cushion,
Mini Cheese Board,
Plaque: Any Day Is Better Once You’ve Put The Kettle On,
Box 10 Christmas Cards,
Small Box Milk Tray,
Galaxy Duet Choc,
3 x Daim Bars,
Thank you everyone who took part for raising awareness, it was a wonderful turn out
This year for our “No-Men-Bar for Myalgic Encephalomyelitis” month, our take on Movember awareness of men’s health, a very generous friend of our great supporter Geoff Allen launched a matching donations offer of £1,500. We successfully reached that target – and – Geoff’s amazing friend also offered to match the amounts raised by Jane Hurst’s last card sale (£186) and Amy Bakewell’s card sale/collection tin totals (£150), bringing the total raised for our ‘Matching Movember’ to well over £4000 including Gift Aid!
One donor to the matched donation offer was Grumpy Gramps who donated £500 plus gift aid and left the message “We live in hope”.
On Twitter Jan added “My dad 😀. He gave up driving for October. Broke out his bus pass & donated cost of petrol he’d have paid plus £1 a mile when he did drive.”
and “as for who gave him the nickname grumpy gramps. I couldn’t possibly comment.. 😊”. Thanks Duncan.
Warm thanks to everyone who donated and rose to the challenge set by Geoff’s very generous friend. www.justgiving.com/fundraising/Geoff-MMO
On 1st December Sophie Tennent posted – So I did it guys!!!! I actually spent a whole month off of Facebook, and for someone like me who relies on it so much because of my M.E, this was really a big deal for me!
But it’s all for an amazing cause, to help raise money for research trials into M.E.. So for anyone who said they would sponsor me, please donate it to the link below and if anyone else would like to make a donation I would be SO grateful! I’ve seriously missed you all an unbelievable amount and I can’t wait to catch up with you all, especially all my online friends 💙😘 Donations to justgiving.com/fundraising/GIUtober
Actor Jon Campling celebrated his 50th birthday in November and raised £102 for Invest in ME. He tweeted, “Amazing 2 days at #MCMComiccon Birmingham met so many lovely people and raised £102 for my charity Invest in ME”. Find him on Twitter @joncamping
See our ME Awareness page for another of Jon’s videos and other resources.
Visitors to www.phoenix-trading.co.uk/web/alisonorr/ could choose from a selection of advent calendars, Christmas cards, wrap, decorations, with free shipping over £25 with all proceeds to Invest in ME Research from Alison Orr’s online shop.
Also posted by Alison Orr – I have a new 🌟Golden Ticket 🌟worth £70 of stock to give away to the first person who joins my team in December! Have a look at https://www.phoenix-trading.co.uk/web/alisonorr/area/join-me/ then contact me if you’re interested in helping to raise funds for yourself and for Invest in ME Research!
Julie Whitham, owner of TheSwiftRedFox, wrote that £3.75 from each set of these original design cards taken from her own painting, will be donated to Invest in ME. Find them here on Etsy – White Hart
This delicate, utterly unique flower, leaf and tendril lariat is a labour of love, handknitted in the Scottish West Highlands on tiny needles with fine cotton yarn. Special Christmas price £45 folksy.com/items/2353193-Spring-Flower-Lariat
Visit our pages to find out how to raise funds for free at 1000s of online retailers whilst doing your online Christmas shopping this year
Sign-up via our Tell-a-Friend link and TopCashback will make an extra donation to Invest in ME via Let’s Do It for ME co-founder Paul Kayes. Current offer is that IiMER will receive £20 for everyone who signs up using the link www.topcashback.co.uk/ref/paulk22
Paul Kayes added, “As a thank you to superstar Mike Harley who is doing a fantastic job raising funds and awareness with his Mike’s EU Marathons, donation made thanks to earning £31.50 plus gift aid with TopCashback just for using U-Switch when I changed energy provider in November. My dear wife can’t understand why more folks don’t use it”.
See our page for all ways to raise funds for free for Invest in ME Research
“Instead of Christmas presents I’d love donations for IiME because there’s nothing I want more than to get better.” Hannah Radenkova asked people to give her donations towards IiMER this Christmas instead of presents www.justgiving.com/fundraising/Hannah-Radenkova
Sally Hogarth ran the Guys road race on 4th December, in support of her friend Hayley who has ME, more than doubling her fundraising target for Invest in ME. As Sally wrote, if you’d still like to donate, please feel free! It would be awesome to raise even more money for this very important charity ❤️ x justgiving.com/fundraising/Sally-Hogarth
Big thanks to Amanda Kayes and her friend Penny Hunt who organised another bike ride raising £400 for Invest in ME Research.
Stu Nimmo landed in Peru, recovering from a broken thumb and minus luggage, for his latest adventure raising funds for Invest in ME Research – trekking, cycling, and climbing Machu Picchu. 3.5 hours in a taxi to Cusco and back…Finally Stu had his lost luggage and charity shirt. Just in time for the main bit of his trek to Inca Trail and Machu Picchu! That completes Stu Nimmo Runs for Invest in ME Research 2016! Thank you Stu and to all who donated, supported, liked or shared on Facebook – www.facebook.com/stunimmorunsiime or JustGiving – www.justgiving.com/isupportmeresearch
After completing the Great Birmingham Run in October, our gem, Gemma Warren, decided just one half marathon this year just wasn’t enough so she has now run the Milton Keynes Winter Half Marathon as well. Afterwards she said, “Made it round the MK Winter Half Marathon with the help of my brother-in-law. My favourite bit, running through the calf deep flood! There’s still time to sponsor me for Invest in ME Research 🙂
The Tredwells held a 24 hour sponsored bounce at the Mill Bay. Staff took part, customers were also invited to have a go and Shannon Tredwell & Osiris Butcher continued throughout the night until the morning. Afterwards Shannon Treadwell wrote – So happy to say me & Osiris have finally finished the 24 hour bounce.
Considering I was crying after just 3 hours I honestly have no idea how we made it 😂 but some how we just did 💪🏼
Thankyou so much for all the messages, support & sponsors we got, it means a lot to us.
Altogether we have raised £352 for M.E
You can support the Tredwell family’s fabulous fundraising here – www.justgiving.com/fundraising/fundraisingforME
and find them on Facebook here – Awareness & Fund Raising For ME – Myalgic Encephalomyelitis
Thanks to Diane Cramp, who’s set up a new page on JustGiving – Diane’s Cards for ME Research
The 12 Days of Christmas Competition was launched by the European Federation of Neurological Associations ‘Under the Umbrella’ campaign to raise awareness of the wide range of neurological conditions. Thanks to them, well done everyone answering the question on Day 11, ‘ME is a serious, disabling and chronic disorder, ME has been classified by the World Health Organisation (ICD 10 G 93.3) as a neurological illness. What do the letters ME stand for?’ All together now…. Myalgic Encephalomyelitis! Congratulations to the winner, Sven-Olof Silveruddwinner.
Posted by Bill Clayton on 23rd December –
The York ME Community Inter Company Fantasy Football League – Christmas Prize !
Congratulations to Bransby Wilson Ltd, the York based Parking Solutions company who have supported The York ME Community this year. One of their teams entered into our Inter Company Fantasy Football League look to be top on Christmas Day !
One of our other supporters, Nestle of York, have given us a box of goodies to give to the top team at Christmas, and so a big thank you to them and all the York businesses taking part and supporting us.
Despite the season being about half way through, there is still an opportunity for a sponsor to come forward to have their name added to the trophy for this and future seasons. Why not take this opportunity to support your local community and raise the profile of ME Awareness in York, an illness that affects around 800 people in the York area, with 200 being severe, meaning house or bed bound.
Finally, to all our supporters, we wish you and yours a Happy Christmas, and a prosperous and healthy New Year, and a huge thank you for all your support in 2016.
In November, Carmel Cunningham spoke on BBC Radio Scotland The Kaye Adams Programme, discussing amongst other ME-related subjects, the PACE trial and how ineffective CBT is (one of the psycho-behavioural therapies tested in the trial).
A couple of years ago, Carmel met with David Tuller on his visit to UK, pictured above with Let’s Do It for ME bear. Dr. Tuller is academic coordinator of University of California Berkeley’s joint masters program in public health and journalism.
We were thrilled to see Invest in ME Research announce in December that David will be the guest presenter at the evening dinner prior to their 12th Invest in ME Conference (#IIMEC12) in 2017.
His presentation – #TearItUp – will include his work in exposing the flaws in the PACE Trial (Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome).
IiMER wrote, “The results of his thorough journalism has brought hope to people with ME and their families who have long called for independent review of the PACE trial, and related research.
— Tom Kindlon (@TomKindlon) December 26, 2016
Our deepest sympathy to Linda Wigman whose wonderful Mum passed away recently, and had kindly asked her friends to donate to her two favourite charities upon her death- Arthritis UK and Invest in ME Research. Many condolences Linda on your sad loss.
On the subject of grief for loved ones lost, Stacy Hart was back online in her inimitable style on Boxing Day with an article ‘Forever Wonky‘, including news as usual direct from Invest in ME Research.
Invest in ME Research now has a profile on BT mydonate. Create a page, sponsor a fundraiser or simply donate mydonate.bt.com/charities/iimer
1st of the month! The day to Donate £1 to Invest in ME Research 🙂
It all adds up as you can see…
Happy New Year everyone and huge thanks to everyone for your support!
Invest in ME Research Centre of Excellence for ME