Happy New Year!

A wonderful reminder of what truly amazing people you are as we look forward to 2017 and reflect on another 12 months of progress over the 10th year since Invest in ME, now also registered as Invest in ME Research (IiMER), began as a charity with great vision and determination to change the barren landscape of research and treatment of Myalgic Encephalomyelitis (ME), and set out to work with like-minded people and organisations across the globe.

IiMER is an independent charity run entirely by volunteers. They have no paid staff, no income from government funds or membership fees.

This means that your donations, fundraising, philanthropy, and any support you give, is especially vital to enable the work of the charity; including their translational biomedical research, aiming to establish diagnostic tests and treatments for this serious and life-threatening disease.

So we are immensely grateful for another year of amazing efforts by fellow IiMER supporters of all ages; ranging from fabulous, fit and willing wellies going to the ends of the earth, walking, running, climbing, swimming, jumping, skydiving, tennisathons, bounceathons, creating videos, doing sales and charity collections, organising a dazzling host of successful events, giving up treats and donating the money saved to IiMER; to the most severely ill among us, using all their creativity and ingenuity as effective undercover agents for change.

Here are quick links below to the monthly summaries of fundraisers and research updates throughout 2016…

august updates banner
july updates banner
june updates banner
May Updates
April Updates
march header
feb updates

January 2016
January 2016

Our Professor Bear counted up the end of 2016 totals for the gut microbiota and B cells/rituximab research to a whooping £681,000! Happy New Year everyone! Let’s keep doing it for ME!

January updates

Happy new year everyone!

Here at LDIFME we’re all hoping you’re all managing to enjoy some of the festive season this year. In these January updates I’ll be finishing off rounding up last years news and giving you a passing idea of some of the plans IiMER has for 2017. This the last monthly post we’ll be doing as we have plans for change for the LDIFME blog – wait, see and tell us what you think!



The same friend of Geoff Allan who held the Matching Movember offer has also offered to match the amounts raised by Jane Hurst’s last card sale (£186) and Amy Bakewell’s card sale/collection tin totals aswell. This makes his final total donation (with a bit of rounding up) £1,900! That’s £2,375 with Gift Aid! Thank you so much to Geoff Allens friend from IiMER for everything you’ve done this year and also everyone who participated in his fundraising




Sally Hogarth ran the Guys road race, in support of her friend Hayley who has ME, and raised £265.00




After completing the Great Birmingham Run our gem, Gemma Warren, decided just one half marathon this year just wasn’t enough so she has now run the Milton Keynes Winter Half Marathon as well. Afterwards she said “Made it round the MK Winter Half Marathon with the help of my brother-in-law. My favourite bit, running through the calf deep flood! There’s still time to sponsor me for Invest in ME Research 🙂





As a thank you to superstar Mike Harley who is doing a fantastic job raising funds and awareness with his Mike’s EU Marathons. Donation made thanks to earning £31.50 plus gift aid with TopCashback just for using U-Switch when I changed energy provider in November. My dear wife can’t understand why more folks don’t use it 🙁



To sign up to TopCashBack yourself and raise £20 whiles doing so visit www.topcashback.co.uk/ref/paulk22




Stu Nimmo completed climbing Machu Pichu. Big thanks to Stu Nimmo for everything he’s done in fundraising for IiMER




The Tredwells held a 24 hour sponsored bounce at the Mill Bay. Staff took part, customers were also invited to have a go and Shannon Tredwell & Osiris Butcher continued throughout the night until the morning. Afterwards Shannon Treadwell wrote “So happy to say me & Osiris have finally finished the 24 hour bounce.Considering I was crying after just 3 hours I honestly have no idea how we made it 😂 but some how we just did💪🏼 Thank you so much for all the messages, support & sponsors we got, it means a lot to us.Altogether we have raised £352 for M.E



Diane cramp has set up a new justgiving page www.justgiving.com/fundraising/dianecramp

IiMER now has a profile on BT mydonate. Create a page, sponsor a fundraiser or simply donate mydonate.bt.com/charities/iimer




We are pleased to announce that Dr Øystein Fluge and his team from Haukeland University Hospital in Bergen, Norway, will be giving a public lecture in Norwich on 26th January 2017. www.facebook.com/events/608111472709674/




Registration for the 12th IiME International ME conference is now open. The venue for the conference is One Great George Street, London, England SW1P 3AA . The closed colloquium is due to be held between 31st of May-1st of June with the public conference on 2nd of June.  For more details click here www.investinme.eu/IIMEC12.shtml



12 Days of Christmas Competition

12 Days of Christmas Competition launched by the European Federation of Neurological Associations ‘Under the Umbrella’ awareness campaign.

12 Days, 12 Prizes! Join in for your chance to win.

Prizes include:

• 5 Amazon vouchers worth between €50 and €250
• Beats Solo 2 On-Ear Headphones
• A delicious hamper of Luxury Chocolates
• Together Under the Umbrella t-shirts
• Our special Campaign Umbrellas…

And an iPad Air 2 worth €449!

The competition will run for 12 days, from Monday 12th to Friday 23rd December. Each day, at 9am GMT, a new question relating to the brain or brain disorder will be posted on the Facebook Event page. Entries will close at Midnight GMT daily.

Prizes have been randomly allocated numbers from 1 – 12. Winners, announced on the following day, choose a number and we will share a video of their prize being revealed!

Visit http://undertheumbrella.eu/12-days-of-christmas-competition for more information and to read the full terms and conditions.

JOIN IN THE COMPETITION HERE – facebook.com/events/337561703293418

Good luck!

Invest in ME Research is a founder member of the European ME Alliance, which joined the European Federation of Neurological Associations in 2015.

Galaxy Hot Chocolate Fund

It’s that time of year again! You can help win a heart-warming £300 from the Galaxy Hot Chocolate Fund for the charity we all love – Invest in ME Research – by simply voting any time this week until a minute to midnight Sunday 11th December – one vote per person. Click here to read all about it and to enter your email address to cast your vote – galaxyhotchocolate.com/fund/profiles/invest-in-me-research/