Over £600k on Our Way to a Million!

A winning combination of philanthropy and proactive patient power has sped us past the £600,000 milestone on the way to our fundraising target of £1,000,000 for the charity Invest in ME Research biomedical research strategy.

Invest in ME Research announced that the Hendrie Foundation has kindly increased their funding pledge to the charity’s B-cell / Rituximab Research Fund by a further £50,000 to a total of £275,000 pledged.

Together with recent donations, including £10,000 from a sponsor wishing to remain anonymous, this generous gesture takes the current total raised by our community crowdfunding campaign to well over £600,000 and rising.

The Invest in ME Research Centre of Excellence translational biomedical research is designed to establish reliable diagnostic tests and effective treatments for myalgic encephalomyelitis (ME) to benefit patients and doctors alike.

Two current major research projects are: the role of the gut microbiome in ME at IFR/UEA; and the role of B-cells in ME at UCL, adding value to the current Phase 3 multi-centre clinical trial of rituximab in ME patients in Norway and leading to a UK clinical trial of rituximab in Norwich (Invest in ME Research update here).

Both projects include progressive national and international collaboration with clinicians and scientists involved in biomedical research. This collaboration is ongoing and facilitated by the Invest in ME Conference (IIMEC) and Biomedical Researchers into ME Colloquium (BRMEC).

If you already help to raise funds for this vital research strategy then we cannot thank you enough. We have long-term and severe ME and we are intent on helping Invest in ME Research to change the landscape of diagnosis and treatment of this disease for the next generation, as well as maintaining realistic hope for our own futures, thanks to their extraordinary vision and work.

If you are new to our site, then we extend a warm welcome and invite you to join us in our proactive support of Invest in ME Research charity’s work on establishing a Centre of Excellence for ME – the first of its kind in UK/Europe and with national and international collaboration. This is urgent and vital work.

The charity itself is run by dedicated volunteers working in their own time and without pay. Funds we raise are for their biomedical research strategy.

Please browse our site to find a number of ways you can help raise funds for the charity at no extra cost to yourself, such as using a referral link or cash-back site when shopping online, buying cards and gifts from supporters donating full or part profits to Invest in ME, braving the heat of the Chilli M.E. Challenge, or being sponsored for anything from going Facebook-free to climbing Kilimanjaro.

You can subscribe to our blog to receive updates by email. Contact us if you’d like to write a guest blog. Recent posts are also featured in our news stream.

Thank you for your support!


Further reading on our site:

March on a Million

IIME Research on Gut Microbiome

IIME Research on B-cells / Rituximab

IIME Conference & Colloquium

IIME Centre of Excellence



GIVE IT UPtober is a simple idea for supporters, if willing and able, to give up a small luxury during the month of October and donate the saving to ‘Invest in ME Research’.  The charity is run by dedicated volunteers working hard on our behalf to find cause & cure for ME (Myalgic Encephalomyelitis).

Paul Kayes has set up a page for donations on JustGiving. UK Text Code: GIUT88 (£1-£10) to 70070. And an event page on Facebook.

This follows on from ‘Stoptober Stop for M.E!’ initiated last year by Ali Head, which raised a whopping £1188.80 + £245.52 Gift Aid for the charity’s biomedical research funds.  In appreciation of the efforts of the charity’s supporters, a kind sponsor has offered to match the funds raised this year by ‘GIVE IT UPtober’ up to £1000 + £250 Gift Aid.


12029846_10153581167589318_6787769671529880722_oIn return for donations by their friends and family to GIVE IT UPtober, some people are staying off Facebook or other online sites in October. Other supporters plan to give up take-aways, snacks, sweets, chocolate, coffee, bottled mineral water, buying records.  If a friend plans to go smoke-free for Stoptober, maybe they’d donate what they save to our cause?  Lyndsey Ormiston and Tanya Mawer were ahead of the game, going alcohol-free and meat-free respectively during September.


12028782_10153581397289318_6725432414338150015_oTo support GIVE IT UPtober, Lynne Allan is donating the cost of materials of her delightful ‘ME-2-U Creations’ as well as the profit so that 100% of the price you pay will be donated to Invest in ME.  An ideal opportunity to browse her shop for early Christmas gifts with an extra bonus to the charity or if you fancy buying a treat instead of forgoing one!  You can contact Lynne Allan via Facebook and she now also has a shop on Etsy.

Whether you choose to donate the price of a one-off treat or brave the whole month or simply donate to support others taking part – we thank you and our generous anonymous matching sponsor for your support.


Ready to GIVE IT UPtober?  Let’s Do It for ME!

On Facebook   On JustGiving