Blog Posts

May ME Awareness Month

Welcome to ME Awareness Month May 2019! A bit about us… Let’s Do It for ME is a patient-driven campaign supporting the work of the charity Invest in ME Research and helping to raise funds for the biomedical research of

Nova Magazine Spotlights ME

Nova Magazine has published an excellent article by Will and Kathryn Woodvine featuring their teenage son Alex, who is severely ill with Myalgic Encephalomyelitis, and their amazing friend Arry’s Mountain Mayhem 100 miles in 24 hours off road cycle challenge

31 Days in May

New book of poems for May ME Awareness Month by The French Femme Rosalynde Lemarchand is pleased to announce the publication of her new book ’31 days in May’ under her nom de plume The French Femme. Ros’s new book

Welcome to Pets Walkies for ME 2019!

All pets are welcome to join Team Walkies for ME, an adorable offshoot of the annual May ME Awareness and Fundraiser Walk for ME. Walkies for ME is arranged by Ian McPhee. The team comprises a group of wonderful pets



Facebook Updates

12 hours ago

Let's Do It for ME

DAY 22 - SCREAM

Sometimes you just need to scream, shout, swear, yell and have a good cry because - your pain is unbearable and unrelenting; you feel so incredibly ill like you've been poisoned; your brain no longer works and feels like it's full of cotton wool; you were looking forward to something but had to cancel at the last minute as you felt so ill; something reminds you of the life you once had and what you have lost; you had a period of feeling relatively better and then you have a relapse which puts you back at square one or worse

Hopefully you find some relief in letting out your frustration and your anger but be careful not to spiral down into a well of depression and self pity.

Instead share how you feel with others who suffer the same, if you are able talk to a friend who understands, find something that you can enjoy no matter how small and be kind to yourself.

Pleas feel free to share my poem.
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1 day ago

Let's Do It for ME

DAY 21 - PARALLEL UNIVERSE
This poem is inspired by stories in science fiction of people moving into a parallel universe. A parallel universe, also known as an alternate universe or alternate reality, is a hypothetical self-contained reality co-existing with one's own.
When we suddenly become ill with M.E. (and this could also apply to another chronic illness) it's as if we have moved to another dimension where everything is unfamiliar and alien.
We are accustomed to being ill from time to time but this is completely different. We go into shock. We are unprepared. We don't know how to cope in those early days of illness.
We are still alive and everything seems to be the same but something has dramatically changed in us.
We have to learn how to live in this alternate reality.
Please feel free to share my poem.
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2 days ago

Let's Do It for ME

A big thank you to our own Super Hero Mike Harley for completing the Riga Marathon on Sunday despite difficult conditions. The donations smashed through the £17k marker, apologies to those who had difficulties donating, do hope you will try again.

Please read more below....No. 22 is done!

A very tough day, 27c and struggled with my legs and cold. I was out there at least an hour longer than usual but played it safe and got the medal. Fantastic course and crowds, def recommend it.

That was for people with M.E in Latvia, I know they're out there and struggling to be heard.

Also big thanks to Martin for sorting my calves out, I couldn't run a mile without breaking down 2 weeks ago. Amazing work mate.

Well done to Ben for getting around Portadown Marathon today for Invest In ME - he's great isn't he?!

Sponsor thanks later but so happy to see so much come through today 😊

Off to Hungary in Sept for no. 23, plenty of time to recover and come back strong.

Thanks for all your awesome support.

Www.justgiving.com/mikeseumarathons
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A big thank you to our own Super Hero Mike Harley for completing the Riga Marathon on Sunday despite difficult conditions.  The donations smashed through the £17k marker, apologies to those who had difficulties donating, do hope you will try again.

Please read more below....

2 days ago

Let's Do It for ME

DAY 20 - NEW LIFE
Life will inevitably change with a chronic illness like M.E. or any other chronic illness.
It's difficult to accept changes that have to be made to our life when we become seriously and chronically ill.
Some may say that they no longer have a life.
Maybe you were like me and found it hard to accept illness and the need to change. I'm the sort of person that doesn't give up easily. I pushed myself to carry on working. I have since read that it's possible that those who push themselves too much and for too long at the start of the illness M.E. become severely affected.
Eventually I had to accept that I needed to rest and pace, that I could no longer go to work , that I could no longer pursue the same interests and hobbies, that my social life had to change and that I had to learn how to live with this illness as it wasn't going away.
Now my life is very different from the one I had 17 years ago. I had no choice but to accept my illness, to change and to adapt. How have you fared?
Please feel free to share my poem.
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