Blog Posts

May ME Awareness Month

Welcome to ME Awareness Month May 2019! A bit about us… Let’s Do It for ME is a patient-driven campaign supporting the work of the charity Invest in ME Research and helping to raise funds for the biomedical research of

Nova Magazine Spotlights ME

Nova Magazine has published an excellent article by Will and Kathryn Woodvine featuring their teenage son Alex, who is severely ill with Myalgic Encephalomyelitis, and their amazing friend Arry’s Mountain Mayhem 100 miles in 24 hours off road cycle challenge

31 Days in May

New book of poems for May ME Awareness Month by The French Femme Rosalynde Lemarchand is pleased to announce the publication of her new book ’31 days in May’ under her nom de plume The French Femme. Ros’s new book

Welcome to Pets Walkies for ME 2019!

All pets are welcome to join Team Walkies for ME, an adorable offshoot of the annual May ME Awareness and Fundraiser Walk for ME. Walkies for ME is arranged by Ian McPhee. The team comprises a group of wonderful pets



Facebook Updates

15 hours ago

Let's Do It for ME

A big thank you to our own Super Hero Mike Harley for completing the Riga Marathon on Sunday despite difficult conditions. The donations smashed through the £17k marker, apologies to those who had difficulties donating, do hope you will try again.

Please read more below....No. 22 is done!

A very tough day, 27c and struggled with my legs and cold. I was out there at least an hour longer than usual but played it safe and got the medal. Fantastic course and crowds, def recommend it.

That was for people with M.E in Latvia, I know they're out there and struggling to be heard.

Also big thanks to Martin for sorting my calves out, I couldn't run a mile without breaking down 2 weeks ago. Amazing work mate.

Well done to Ben for getting around Portadown Marathon today for Invest In ME - he's great isn't he?!

Sponsor thanks later but so happy to see so much come through today 😊

Off to Hungary in Sept for no. 23, plenty of time to recover and come back strong.

Thanks for all your awesome support.

Www.justgiving.com/mikeseumarathons
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A big thank you to our own Super Hero Mike Harley for completing the Riga Marathon on Sunday despite difficult conditions.  The donations smashed through the £17k marker, apologies to those who had difficulties donating, do hope you will try again.

Please read more below....

17 hours ago

Let's Do It for ME

DAY 20 - NEW LIFE
Life will inevitably change with a chronic illness like M.E. or any other chronic illness.
It's difficult to accept changes that have to be made to our life when we become seriously and chronically ill.
Some may say that they no longer have a life.
Maybe you were like me and found it hard to accept illness and the need to change. I'm the sort of person that doesn't give up easily. I pushed myself to carry on working. I have since read that it's possible that those who push themselves too much and for too long at the start of the illness M.E. become severely affected.
Eventually I had to accept that I needed to rest and pace, that I could no longer go to work , that I could no longer pursue the same interests and hobbies, that my social life had to change and that I had to learn how to live with this illness as it wasn't going away.
Now my life is very different from the one I had 17 years ago. I had no choice but to accept my illness, to change and to adapt. How have you fared?
Please feel free to share my poem.
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2 days ago

Let's Do It for ME

DAY 19 - NEW BODY

There are many symptoms in M.E.
These symptoms vary from person to person, in the degree of severity and are forever fluctuating.
These symptoms may also develop and change as the illness progresses. This makes it a very difficult illness to diagnose and to manage.

Symptoms include overwhelming post-exertional fatigue from mental or physical activity; dysfunctional sleep; pain; problems with memory; sensitivity to light, touch and sound; problems with standing and balance; problems with body temperature and weight; and recurrent flu-like symptoms; that persist for at least six months in adults; or three months in children (Carruthers et al, 2003).

The late Jodi Bassett said that there are 64 individual symptoms of M.E. and she produced a very extensive full list as well as a short list www.hfme.org/mesymptoms.htm

It feels like a complete breakdown of the body.
It's often said that we could do with a whole body and brain transplant!
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2 days ago

Let's Do It for ME

All the best tomorrow Mike 🙂Lovely afternoon in Riga! Stunning architecture, cracking little city.

It's been 26c today and apparently tomorrow is 28c, their hottest day of the year so far. Somewhat confused as they seem to be on the same line of latitude as Inverness. But that usually happens when I'm in town to run of course.

I'm not sure how tomorrow will go, I'm hopeful I can finish, much as I like the place I'd rather be coming back for a holiday than a marathon.

Race starts at 8.40am (6.40am GMT).

Good luck to Ben Scott taking on Portadown Marathon, N. Ireland at the same time for Invest In M.E. Ben - we'd die of laughter if someone told us 10 years ago that we'd clock up nearly 40 marathons between us before we were 40 🤣

Thanks to all the kind sponsors, will name you all tomorrow. Would be amazing to get up to £17k before I get home 😉

Catch up tomorrow!

Www.justgiving.com/mikeseumarathons
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All the best tomorrow Mike :)