Lynn Gilderdale’s 40th Birthday

By Becca Hams

A donation page to celebrate what would have been
Lynn Gilderdale’s 40th Birthday on 20th September 2017. https://mydonate.bt.com/fundraisers/lynngilderdale40

On 20th September of this year it would have been my very courageous friend’s 40th Birthday.

Sadly she is no longer here to celebrate this special birthday with us. Lynn (aka Jessie) took her life aged 31 in 2008 after enduring endless suffering from very severe ME since the age of 14. It broke my heart, and many others, the day she died. I think of her all of the time, everything that I achieve whilst being ill however little it is, I always keep her in my thoughts and do it for her too.

To celebrate what would have been her 40th Birthday I asked her Mum, who was Lynn’s selfless, dedicated full time carer, if she would mind people donating towards a charity that was close to Jessie’s heart in celebration of her first ‘big birthday’ since she passed away.

I’ve set up this donation page where money will go to the charity Invest in ME in Jessie’s memory, however big or small, I know it’s something she would’ve been thrilled about as raising money and especially awareness was always something she was passionate about. I hope we can raise some funds and I will also be hoping to make it down to her memorial garden in East Sussex to lay some flowers for her too. Thanks for reading.

Donate here to celebrate Lynn Gilderdale’s 40th Birthday https://mydonate.bt.com/fundraisers/lynngilderdale40

Thank you for your support.

Back the Future of Biomedical Research for ME!

Dates have been announced for the 2018 international biomedical research conference events, organised and hosted by Invest in ME Research, and held at One Great George Street, Westminster, London SW1P 3AA.

This will be the 13th Invest in ME Conference (IIMEC13) and the 8th Biomedical Research into Colloquium (BRMEC8), with an international reputation as events that can drive forward progress in this disease, which will benefit patients and healthcare organsations and, ultimately, society.

The BRMEC* colloquiums are two-day events which bring together researchers and clinicians from countries around the world. The intent is to make progress in research into ME via collaboration, sharing, discussion and creation of new initiatives. As such the charity considers this a key event in the week’s proceedings. The IIMEC* conferences attract researchers, professionals working in healthcare (GPs, nurses, paediatricians etc.), students, media personnel, politicians and ME patient groups, patients and carers from around the world.

The conferences maintain a friendly atmosphere with the focus on research, treatments and progress.

Registration is now open for the conference with Early Bird ticket prices available until 3rd March 2018: http://investinme.eu/IIMEC13.shtml#register

If you belong to a local ME support group, there’s an option to recommend a GP or other healthcare professional for a concessionary rate. The conference is CPD-accredited so this a good opportunity.

Invest in ME Research is run by volunteers and all work is carried out for free. The charity does not receive government funding or huge donations from big institutions to run the conference. Therefore, to enable them to provide the best events possible they welcome donations or sponsorship from companies, organisations, support groups and individuals to make the International ME Conferences and Colloquiums a success.

The undercover agents at Let’s Do It for ME can’t attend these important annual events in person as we are housebound by ME, so this year we had the idea of donating what it would cost us to the charity instead.

We thought other supporters might like to do the same, whether as one lump sum or as smaller donations throughout the year, so we have set up a JustGiving page as an easy option for like-minded supporters: https://www.justgiving.com/fundraising/fundraising-4me

You could donate just the ticket price, or add in travel and accommodation costs, but every donation helps this small charity to make their international biomedical research conference events bigger and better year on year, enabling an increasing number of outstanding scientists from around the world to get involved in finding answers to this dreadful disease, so please feel free to donate any amount from £1 upwards if you wish to, or just help spread the word to help raise awareness and education about biomedical research into ME (Myalgic Encephalomyelitis).

Here’s a JustTextGiving option for UK sponsors.

Text BRME75 (e.g. £10) to 70070

Text donations add to the totals here: https://www.justgiving.com/fundraising/fundraising-4me

For other ways to sponsor the conference events see: http://investinme.eu/IIMEC13-sponsorship.shtml

If you are an organisation or potential corporate sponsor then please see the charity’s conference site for info on sponsorship opportunities and contact details: http://investinme.eu/index.shtml#sponsors

If you would like to see the full presentations from previous conferences (including June 2017) then you can order the conference DVDs: http://investinme.eu/IIMEC13-pastconferences.shtml
Past editions of the Journal of IiMER and newsletters are also at the above link.

Whether like us, you can’t go in person, or would just like to be part of the future of biomedical research into this disease by sponsoring productive international cooperation, we thank you for your support!

DONATE TO THE FUTURE OF BIOMEDICAL RESEARCH FOR ME

Razor is rocking out this ME awareness month

Lewis’s school band, Razor, is holding an hour long gig to raise funds for IiMER, Lewis, aged 13, will be playing the drums in support of his older sister Maddie who has ME

His mother says of ME;

“Many children lose their identity, self worth , friends, ability to cope with every day life because of the terrible way that this illness preys apon them. The unrelenting pain, the sickness , the fatigue , the head aches. Unable to walk or go outside in the sunshine. Do what we take for granted every day. 

So please even a pound would help boost funds to help Maddie have a better life and maybe if enough funds are raised a cure could be found. ”

Visit www.justgiving.com/fundraising/Alyson-Sharpe1 to donate 

Rebecca Ayling is on the hunt for a cure for ME…


“I was diagnosed with M.E when I was 13 years old. I had symptoms for a few years before this, but it took me those few years to be diagnosed because there is no criteria to be diagnosed with M.E. During this time, I felt like I wasn’t living, I was just existing. I was in my bedroom sensitive to light, noise and smells so I was unable to be around anyone else, unable to watch TV, unable to use a mobile phone, pretty much unable to do anything. I lost a lot of weight because I couldn’t eat because I always felt sick. I slept nearly 20 hours everyday. I had to leave school as my school didn’t believe I was ill and began court proceedings with my parents for my attendance. Luckily, the judge saw my medical records and instantly proved that I was ill and it was not mine nor my parents fault that my attendance was poor. This stress only made my illness worse so I left school. Thankfully, the removal of this stress helped me to improve enough to be able to do my GCSE’s at home. My parents had to fund these online courses, each costing £295. The LA refused to help fund any of my education from home. I was very grateful to manage to get 6 GCSE’s, 4 of these being grades A*-C. I have also managed to go to sixth form and do my A levels. I am on a part-time timetable and I have taken my A levels over a 3 year period. That’s my story. 


However, it’s important to note that I am only a moderate sufferer of M.E. There are people who suffer severely from M.E who are permanently bed bound. Recently, I had a 2 week period of being mostly bed bound and I couldn’t leave the house. This gave me a taste of what it really is like to have severe M.E. It made me realise just how cruel and heartless this illness is. It has no mercy. This is why I wanted to share my story and try and raise money for Invest in M.E who are currently carrying out research into the causes and possible treatment options for those M.E sufferers. 


Any donations, even £1 would mean the world to us.” Rebecca Ayling

Visit Rebecca’s justgiving page www.justgiving.com/fundraising/Rebecca-Ayling2


BT Donation Doubler

Raise over £100 before 20th February and BT could match your fundraising up to £1000!
BT donation-doubler

Invest in ME Research (IiMER) recently registered with BT MyDonate, a fundraising platform with no set up fees or commission or monthly charges. You can simply donate direct to the charity or set up your own fundraising page.

BT wants to help out five fundraisers by matching their funds for their chosen charity up to the value of £1,000.

To support our cause, all you have to do is set up a BT MyDonate fundraising page for Invest in ME Research and raise £100 by midnight on 20th February 2017 to be entered into the prize draw, or you could sponsor a fundraiser.

The £100 raised excludes gift aid, offline donations and donations made by the person who set up the fundraising page.

The Prize Draw is open to UK residents including employees of BT, their families or its agencies.

Want to help Invest in ME Research win a DD from BT?

Let’s do it for ME!

Read the full terms and conditions of the BT Donation Doubler here – http://home.bt.com/-nbsp/terms-and-conditions-11364123582464

Invest in ME Research profile on BY MyDonate is here – https://mydonate.bt.com/charities/investinmeresearch
Thank you for your support!