Donate £1 to 1st Class ME Research

The original idea by Ruth Gilchrist for One Day – One Pound and event by Louise Cairns was for as many people as possible to donate just £1 on May 12th International ME Awareness Day to the charity Invest in ME Research to show support and help raise vital funds for 1st class biomedical research for tests and treatments for ME (Myalgic Encephalomyelitis). We extended this to include a reminder of our ongoing fundraising for this vital cause on the 1st of each month.

Donations at any time are welcome. Every £1 makes a big difference to the vital work of this small charity – Invest in ME Research.

Donation options include JustGiving, PayPal, Bank Transfer, Cheque, or JustTextGiving. They are also registered with Big Give, and BT mydonate

Gift Aid is an extra 25% of your donation from the government if you are a UK tax-payer, so please tick the Gift Aid box when you donate if this applies to you.

DONATION OPTIONS

JustGiving

UK Text APFR99

£1-£5 or £10

to 70070

(you can add your name and Gift Aid if eligible by text)

or donate from any country, any amount from £2 here:

https://www.justgiving.com/onedayonepound/

PayPal

To: paypal@investinme.org

Bank Transfer

Bank: Lloyds TSB Heartsease

Sorting code: 77-66-53

Account number: 22439568

Bank Transfer from outside the UK

IBAN: GB63 LOYD 77665322439568

BIC/SWIFT: LOYDGB21E05

Cheque

Send cheques payable to ‘Invest in ME Research’ to:

Invest in ME Research
PO Box 561,
Eastleigh,
Hampshire,
SO50 0GQ

(add Gift Aid to your donation with Invest in ME Research Gift Aid form)



Please help spread the word….

Let’s Do it for ME is a patient-driven campaign launched in 2011 in support of the proposal by UK charity Invest in ME Research to establish a centre of excellence for translational research and patient care based around Norwich Research Park in East Anglia; the first of its kind in UK/Europe and in collaboration with other leading UK and international biomedical researchers.

We help to raise funds for the biomedical research into myalgic encephalomyelitis that the charity is organising and/or funding in their development of the centre of excellence. Our crowdfunding for specific ME research is the first of its kind in UK and has inspired similar projects in Europe and USA. We have now helped to raise over £690,000 for the IiME Research strategy to develop and are aiming for £1,000,000.

The current focus of the research is on the role of the immune system, including infection and autoimmunity. Two major research projects are on the role of the gut microbiome and research on B-cells leading to a UK clinical treatment trial of rituximab. There is also a scheme for medical students.

Invest in ME Research is run entirely by volunteers who either have ME or are parents and carers of ME patients. They are driving the agenda of scientific research into diagnostic tests and treatments for myalgic encephalomyelitis in UK in collaboration with international researchers of world renown.

Thank you for your support.

Let’s Do It for ME!
ldifme.org

in support of Invest in ME Research
investinme.org

Invest in ME Research Centre of Excellence for ME
investinme.org/research-centre.shtml

Invest in ME International Conference & Biomedical Researchers Colloquium
investinme.eu

IIME B-cell / Rituximab Research
ukrituximabtrial.org

Walk for ME at Chorlton Water Park

Salford and Trafford ME Group welcome others to join their Walk for ME 2017
Tony Fryer

Tony Fyer and Julie Byron of the Salford and Trafford ME Group (SATMEG) are walking around Chorlton Water Park for May ME awareness and raising funds for Invest in ME Research.

They would love other people to join them on their walk, so please do get in touch if you live in, or know someone who lives in, the Manchester area and would like to be involved. Julie wrote:

Both myself and my son Joe suffer with ME which has robbed us of my job and Joe’s school life. There is no effective treatment for ME and a complete lack of understanding of the condition.

We are hoping that research will lead to greater understanding, treatments and ultimately a cure so we and the 250,000 others struggling to live with ME can claim their lives back.

David, I and the dogs are walking around Chorlton Water Park, this is a relatively short walk but my ME means I’ll need to rest along the way – for many this is an easy walk but for me it will be a challenge.

We’re hoping to be joined by others in the Manchester area to raise awareness as well as much needed funds.

Julie’s JustGiving page is here: www.justgiving.com/fundraising/Julie-Byron

Tony’s JustGiving page is here: www.justgiving.com/fundraising/Tony-Fryer

Julie Byron

Please share widely. Thank you for your support!

About Walk for ME

Great South run for IiMER 

A Team of 100 runners (hopefully more) will take part in the Great South Run as a member of Team100, each raising £100 for ‘Invest in ME Research. The event is being held by Ian Monnery  in support of his wife Nikki who has had M.E since 2003. The run takes place in the beautiful setting of Portsmouth Uk. The Great South Run has become one of Europe’s most popular mass participation races over 10 miles, with a record 21,000 entries for the 2009 race. It’s held on 22 Oct 2017

Contact info@investinme.org if you’d like to take part

To donate 

www.justgiving.com/fundraising/Ian-Monnery1
mydonate.bt.com/fundraisers/investinmeresearch

M.E needs your poetry


“With May 12th (International M.E Awareness day) approaching us Hay Green has decided as normal she will be releasing a book to raise funds for Invest In ME Research. Unfortunately she’s too poorly to write and publish her own content at this stage so she needs need your help! 

“I’m going to publish a book full of poetry from M.E sufferers, including myself, and need your poetry! Any you have already is great, and / or if you would like to write more for the book then that’s fine too – you can have as many entries in the book as you wish. 
I will have all of my 5 paperback books up for grabs to 5 lucky entrants as a thank you for submitting your content. After May 12th, winners will be chosen at random. 
Please email me your entries, and share widely! 100% of all proceeds from the book will be donated to Invest In ME Research.

Love Hay x”
You can enter as many poems as you wish

Email Hay Green at hayley101tips@yahoo.co.uk if your interested in submitting your poetry or have any questions 

The deadline for submissions is 30th of April 

Rebecca Ayling is on the hunt for a cure for ME…


“I was diagnosed with M.E when I was 13 years old. I had symptoms for a few years before this, but it took me those few years to be diagnosed because there is no criteria to be diagnosed with M.E. During this time, I felt like I wasn’t living, I was just existing. I was in my bedroom sensitive to light, noise and smells so I was unable to be around anyone else, unable to watch TV, unable to use a mobile phone, pretty much unable to do anything. I lost a lot of weight because I couldn’t eat because I always felt sick. I slept nearly 20 hours everyday. I had to leave school as my school didn’t believe I was ill and began court proceedings with my parents for my attendance. Luckily, the judge saw my medical records and instantly proved that I was ill and it was not mine nor my parents fault that my attendance was poor. This stress only made my illness worse so I left school. Thankfully, the removal of this stress helped me to improve enough to be able to do my GCSE’s at home. My parents had to fund these online courses, each costing £295. The LA refused to help fund any of my education from home. I was very grateful to manage to get 6 GCSE’s, 4 of these being grades A*-C. I have also managed to go to sixth form and do my A levels. I am on a part-time timetable and I have taken my A levels over a 3 year period. That’s my story. 


However, it’s important to note that I am only a moderate sufferer of M.E. There are people who suffer severely from M.E who are permanently bed bound. Recently, I had a 2 week period of being mostly bed bound and I couldn’t leave the house. This gave me a taste of what it really is like to have severe M.E. It made me realise just how cruel and heartless this illness is. It has no mercy. This is why I wanted to share my story and try and raise money for Invest in M.E who are currently carrying out research into the causes and possible treatment options for those M.E sufferers. 


Any donations, even £1 would mean the world to us.” Rebecca Ayling

Visit Rebecca’s justgiving page www.justgiving.com/fundraising/Rebecca-Ayling2