A few suggestions and events for Give it UPtober 

A few suggestions and events to inspire us for Give it UPtober;

Julia Blake is giving up Acohol www.justgiving.com/fundraising/julia-blake3

Julia smith and Nick Amor are giving up magnums www.justgiving.com/fundraising/givinupmagnums

It could be everything and anything including;

  • Acohol
  • Your favourite sweet, biscuit, cake, ice cream or other favourite snack
  • Chocolate 
  • Social media 
  • Public transport pass
  • Television 
  • Caffeine 
  • Radio

For the last six years, until recently, I’ve been unable to sit up or get out of bed, eat and drink, see friends and family, tolerate any light or sound which means no computer or television. Just consider how much people with ME miss out on and then see if there’s one tiny thing you could give up, just for a month, to hopefully eventually lead to sufferers being able to gain more!

My brother is even talking about giving up beer!

Visit Give it UPtober on Facebook 

Lynn Gilderdale’s 40th Birthday

By Becca Hams

A donation page to celebrate what would have been
Lynn Gilderdale’s 40th Birthday on 20th September 2017. https://mydonate.bt.com/fundraisers/lynngilderdale40

On 20th September of this year it would have been my very courageous friend’s 40th Birthday.

Sadly she is no longer here to celebrate this special birthday with us. Lynn (aka Jessie) took her life aged 31 in 2008 after enduring endless suffering from very severe ME since the age of 14. It broke my heart, and many others, the day she died. I think of her all of the time, everything that I achieve whilst being ill however little it is, I always keep her in my thoughts and do it for her too.

To celebrate what would have been her 40th Birthday I asked her Mum, who was Lynn’s selfless, dedicated full time carer, if she would mind people donating towards a charity that was close to Jessie’s heart in celebration of her first ‘big birthday’ since she passed away.

I’ve set up this donation page where money will go to the charity Invest in ME in Jessie’s memory, however big or small, I know it’s something she would’ve been thrilled about as raising money and especially awareness was always something she was passionate about. I hope we can raise some funds and I will also be hoping to make it down to her memorial garden in East Sussex to lay some flowers for her too. Thanks for reading.

Donate here to celebrate Lynn Gilderdale’s 40th Birthday https://mydonate.bt.com/fundraisers/lynngilderdale40

Thank you for your support.

GIVE IT UPtober 2017


A simple idea to give up a small luxury during the month of October and donate the saving to Invest in ME Research – a charity run entirely by dedicated volunteers working so hard on behalf of people with ME (Myalgic Encephalomyelitis) and driving progress with a biomedical research strategy to find cause & cure.

We appreciate how few luxuries are left for people with ME, however we are determined and eager to find a cure, and we invite our willing wellie friends and families to join us in giving up a little something in October for ME.

This event has raised nearly £6000 including Gift Aid in the three years it has run, so huge thanks to everyone involved.

We are just £2k away from the £200k target for the Gut Microbiota Studies and funding is also needed for next phases of the research at the Invest in ME Research Centre of Excellence for ME.

Donate on JustGiving at GIVE IT UPtober (worldwide)

Text (UK only) GIUT88 (£1-£5 or £10) to 70070 e.g. GIUT88 £5

Join our group page on Facebook – Give It Uptober

Follow on Twitter #UPtober

Thank you for your support!

Back the Future of Biomedical Research for ME!

Dates have been announced for the 2018 international biomedical research conference events, organised and hosted by Invest in ME Research, and held at One Great George Street, Westminster, London SW1P 3AA.

This will be the 13th Invest in ME Conference (IIMEC13) and the 8th Biomedical Research into Colloquium (BRMEC8), with an international reputation as events that can drive forward progress in this disease, which will benefit patients and healthcare organsations and, ultimately, society.

The BRMEC* colloquiums are two-day events which bring together researchers and clinicians from countries around the world. The intent is to make progress in research into ME via collaboration, sharing, discussion and creation of new initiatives. As such the charity considers this a key event in the week’s proceedings. The IIMEC* conferences attract researchers, professionals working in healthcare (GPs, nurses, paediatricians etc.), students, media personnel, politicians and ME patient groups, patients and carers from around the world.

The conferences maintain a friendly atmosphere with the focus on research, treatments and progress.

Registration is now open for the conference with Early Bird ticket prices available until 3rd March 2018: http://investinme.eu/IIMEC13.shtml#register

If you belong to a local ME support group, there’s an option to recommend a GP or other healthcare professional for a concessionary rate. The conference is CPD-accredited so this a good opportunity.

Invest in ME Research is run by volunteers and all work is carried out for free. The charity does not receive government funding or huge donations from big institutions to run the conference. Therefore, to enable them to provide the best events possible they welcome donations or sponsorship from companies, organisations, support groups and individuals to make the International ME Conferences and Colloquiums a success.

The undercover agents at Let’s Do It for ME can’t attend these important annual events in person as we are housebound by ME, so this year we had the idea of donating what it would cost us to the charity instead.

We thought other supporters might like to do the same, whether as one lump sum or as smaller donations throughout the year, so we have set up a JustGiving page as an easy option for like-minded supporters: https://www.justgiving.com/fundraising/fundraising-4me

You could donate just the ticket price, or add in travel and accommodation costs, but every donation helps this small charity to make their international biomedical research conference events bigger and better year on year, enabling an increasing number of outstanding scientists from around the world to get involved in finding answers to this dreadful disease, so please feel free to donate any amount from £1 upwards if you wish to, or just help spread the word to help raise awareness and education about biomedical research into ME (Myalgic Encephalomyelitis).

Here’s a JustTextGiving option for UK sponsors.

Text BRME75 (e.g. £10) to 70070

Text donations add to the totals here: https://www.justgiving.com/fundraising/fundraising-4me

For other ways to sponsor the conference events see: http://investinme.eu/IIMEC13-sponsorship.shtml

If you are an organisation or potential corporate sponsor then please see the charity’s conference site for info on sponsorship opportunities and contact details: http://investinme.eu/index.shtml#sponsors

If you would like to see the full presentations from previous conferences (including June 2017) then you can order the conference DVDs: http://investinme.eu/IIMEC13-pastconferences.shtml
Past editions of the Journal of IiMER and newsletters are also at the above link.

Whether like us, you can’t go in person, or would just like to be part of the future of biomedical research into this disease by sponsoring productive international cooperation, we thank you for your support!


Register by Friday 18th August to Run the Royal Parks Half Marathon for Invest in ME Research!

Places left to run the Royal Parks Half Marathon for Invest in ME Research in London on 8th October 2017. Deadline for registration is 5pm Friday 18th August, so please ask any well friends or family members who may be willing to run for research for ME (Myalgic Encephalomyelitis) to contact the charity asap:
click here for details.

This Royal Parks Half Marathon route winds through four of London’s eight Royal Parks (Hyde Park, Kensington Gardens, St James’s Park and The Green Park) in all their autumnal splendour, taking in the capital’s world-famous landmarks on closed roads. There are 16000 runners. The course is 13.1 miles (21 km) long.

This will be a great opportunity for Invest in ME Research to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – and to raise awareness of the need for biomedical research into this disease. The charity wrote:

We would love to have you on the team for this year’ s Royal Parks Foundation Half Marathon.

We only ask that you pledge to raise a minimum sponsorship of £150 (excluding gift aid)- there is no registration fee as the charity is covering that cost.

To apply, simply contact us with title ‘Royal Parks Half Marathon’ and complete our online application form.

If you have been successful in securing a place in the public ballot, we’d love to have you on our team – simply simply contact us with title ‘Royal Parks Half Marathon – Own Place’ . There’s no minimum sponsorship, just raise as much as you can!

Please click here for full details, contact, terms and conditions: http://www.investinme.org/IIMER-Newslet-17-07-03.shtml

Thank you for your support!