Happy Birthday Jon Campling!

Best Birthday Wishes to Jon Campling and Big Birthday Thanks
for all he does to support Invest in ME Research!

Jon aims to raise £501 for the charity to help celebrate his 51st birthday today.

Donate to Jon’s birthday fundraising for IiME Research on
www.justgiving.com/fundraising/support-invest-in-me-for-my-birthday

Follow @joncampling on Twitter.

Find Actor Jon Campling on Facebook.

Catch up on Jon’s support for IiME Research in 2017 on Campling Can.

Thank you for your support!

£500 matching donations period for Movember 2017!

For this “Movember” for men’s health we have a matching donations period of up to £500! Plus I’ve included a couple of links to some interesting recent research projects which suggest gender differences in ME/CFS.

For those of you who haven’t heard of “Nomenbar for ME” it is LDIFME’s take on “Movember” awareness raising month for men’s health.

It’s true, in common with many other autoimmune diseases, that ME is more common among women than men with an approximate ratio of 4:1.  However men of all ages, races and types still suffer from it.


Do men and women suffer from different phenotypes of the disease? Researchers at the Vall d’Hebron University Hospital in Barcelona recently tried to find out by comparing the characteristics of 1309 consecutive ME/CFS patients (Fukuda-defined). Of the 1309 patients, 119 (9.1%) were men and 1190 (90.9%) were women. The researchers found a number of significant differences between the sexes in a variety of clinical and demographic factors such as but not limited to; age of diagnosis, symptoms and coexisting conditions. It’s still impossible to say from just one such simple study whether this suggests specific phenotypes but, as the authors say, as ME is best seen as a neuro-inflammatory process and there are neuro-immune differences between the sexes it’s quite possible. Read more.

There has also been interesting findings regarding energy metabolism. It’s been proven that all ME sufferers suffer from problems with their Cytric acid cycle; basically the body’s ability to gain energy from carbohydrates. Instead it makes energy from different, lower yielding sources of energy. However it seems there’s a sex difference here too; Øystein Fluge of Haukeland University Hospital in Bergen, Norway, and his colleagues studied amino acids in 200 people with CFS, and 102 people without it. The levels of some amino acids in the blood of women with CFS was abnormally low – specifically for the types of amino acid that can be used by the body as an alternative fuel source.These shortfalls were not seen in men with CFS, but that could be because men tend to extract amino acids for energy from their muscles, instead of their blood. And the team saw higher levels of an amino acid that’s a sign of such a process.” It seems that both male and female CFS patients may have the same obstruction in carbohydrate metabolism to energy, but they may try to compensate differently,” says Fluge. Both sexes had high levels of several enzymes known to suppress pyruvate dehydrogenase (PDH), an enzyme vital for moving carbohydrates and sugars into a cell’s mitochondria – a key step for fully exploiting sugar for energy. Read more.

As usual we are inviting “guest blogs” this month from men with ME telling their story. Email us at fundraising4ME@gmail.com or contact us via Facebook or Twitter if you want to participate

Visit our main Movember blog including links to all the guest blogs since 2015 ldifme.org/2015/11/01/nomenbar-for-m-e/

Visit this year’s JustGiving page solely dedicated to Movember. Remember there is a £500 matching donations period so help us reach our target to raise more for IiMER! Donations can also be made offline but please state when donating offline if it’s specifically for Movember for men’s health  www.justgiving.com/fundraising/nomenbar4me

Thank you for your support!

Calling all fans of Princess Leia 


Jen Govey

“Hi there dear friends.

I am going to dedicate my next DressForME challenge to the memory of Carrie Fisher. I will be spending her birthday, the 21st of October, dressed as Princess Leia.  

If you are a #StarWars fan, please do join me in this DressForME Tribute Challenge for less than the cost of a Glass of Twi’lek at the Cantina on Tatooine and help me raise much needed funds for ME Research.

The #DressForME Challenge:
1. Dress up extraordinary, do something ordinary!
2. Take a photo/film it and upload to social media: Facebook, Twitter, instagram, youtube using the Hashtag #DressForME
3. Donate to my JustGiving page (see bottom) and let me know what you did! 😜
4. Nominate 3 friends to take up the DressForME challenge! 

If you do not wish to dress up, but would like to sponsor me! Please make a donation at my justgiving page and cheer me on. 
I’m raising money for Invest in ME Research. I hope you will join me and we have a little fun on the way! 🙂

Thank you so much for your time and generosity. This will make a huge difference to the lives of those living with ME, plus I will love you forever! 😍Please feel free to nominate your friends or anyone who would be up for a little fancy dress fun for charadee! Much appreciated!!  

Love Jen xxx”

Visit www.justgiving.com/fundraising/dressforme

Georgina and Will’s 25 mile walk

Visit Georgina and Will’s justgiving page


By Georgina and Will (aged 11 and 12)

“We want to raise money for IiME because we have relatives who’s lives have been effected by M.E. Some have been wheelchair bound which have not only affected their lives, but family members lives too. Biomedical research is desperately needed to inform accurate testing and treatment. Cancer research gets around £1,200 every week, comparing to invest in M.E that’s what they get per year. 

We would be so grateful if you donated to our fundraising event. 

P.S. We may need some new feet after this!

Georgina & Will

( age 11 & 12)”

That’s why they’re doing a 25 mile walk! Big thanks from IiME!

Team 100 are running the Great south run for IiMER 

Will Martin is organising for a team of 100 runners, dubbed team 100, to run one of the biggest 10 mile marathons in the U.K. on October 22nd. The Great South run is based in Southsea, Portsmouth every year and is expected to attract more than 20,000 participants this coming October 


Will Martin has already run the marathon three times before. He was inspired to create team 100 after watching the sufferings of his friend and ME sufferer Ali Head (see video).

Will says of the run “Going on past experiences of taking part, I know how great the crowds are with people calling your name. It is fantastic to be running through Southsea and the city and I cannot wait.”

The idea of team 100 is for 100 runners to participate in the run, each raising £100 each and hopefully plenty of awareness!

For more information or to get involved visit;

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