Donate £1 to 1st Class ME Research

The original idea by Ruth Gilchrist for One Day – One Pound and event by Louise Cairns was for as many people as possible to donate just £1 on May 12th International ME Awareness Day to the charity Invest in ME Research to show support and help raise vital funds for 1st class biomedical research for tests and treatments for ME (Myalgic Encephalomyelitis). We extended this to include a reminder of our ongoing fundraising for this vital cause on the 1st of each month.

Donations at any time are welcome. Every £1 makes a big difference to the vital work of this small charity – Invest in ME Research.

Donation options include JustGiving, PayPal, Bank Transfer, Cheque, or JustTextGiving. They are also registered with Big Give, and BT mydonate

Gift Aid is an extra 25% of your donation from the government if you are a UK tax-payer, so please tick the Gift Aid box when you donate if this applies to you.

DONATION OPTIONS

JustGiving

UK Text APFR99

£1-£5 or £10

to 70070

(you can add your name and Gift Aid if eligible by text)

or donate from any country, any amount from £2 here:

https://www.justgiving.com/onedayonepound/

PayPal

To: paypal@investinme.org

Bank Transfer

Bank: Lloyds TSB Heartsease

Sorting code: 77-66-53

Account number: 22439568

Bank Transfer from outside the UK

IBAN: GB63 LOYD 77665322439568

BIC/SWIFT: LOYDGB21E05

Cheque

Send cheques payable to ‘Invest in ME Research’ to:

Invest in ME Research
PO Box 561,
Eastleigh,
Hampshire,
SO50 0GQ

(add Gift Aid to your donation with Invest in ME Research Gift Aid form)



Please help spread the word….

Let’s Do it for ME is a patient-driven campaign launched in 2011 in support of the proposal by UK charity Invest in ME Research to establish a centre of excellence for translational research and patient care based around Norwich Research Park in East Anglia; the first of its kind in UK/Europe and in collaboration with other leading UK and international biomedical researchers.

We help to raise funds for the biomedical research into myalgic encephalomyelitis that the charity is organising and/or funding in their development of the centre of excellence. Our crowdfunding for specific ME research is the first of its kind in UK and has inspired similar projects in Europe and USA. We have now helped to raise over £690,000 for the IiME Research strategy to develop and are aiming for £1,000,000.

The current focus of the research is on the role of the immune system, including infection and autoimmunity. Two major research projects are on the role of the gut microbiome and research on B-cells leading to a UK clinical treatment trial of rituximab. There is also a scheme for medical students.

Invest in ME Research is run entirely by volunteers who either have ME or are parents and carers of ME patients. They are driving the agenda of scientific research into diagnostic tests and treatments for myalgic encephalomyelitis in UK in collaboration with international researchers of world renown.

Thank you for your support.

Let’s Do It for ME!
ldifme.org

in support of Invest in ME Research
investinme.org

Invest in ME Research Centre of Excellence for ME
investinme.org/research-centre.shtml

Invest in ME International Conference & Biomedical Researchers Colloquium
investinme.eu

IIME B-cell / Rituximab Research
ukrituximabtrial.org

Walk for ME at Chorlton Water Park

Salford and Trafford ME Group welcome others to join their Walk for ME 2017
Tony Fryer

Tony Fyer and Julie Byron of the Salford and Trafford ME Group (SATMEG) are walking around Chorlton Water Park for May ME awareness and raising funds for Invest in ME Research.

They would love other people to join them on their walk, so please do get in touch if you live in, or know someone who lives in, the Manchester area and would like to be involved. Julie wrote:

Both myself and my son Joe suffer with ME which has robbed us of my job and Joe’s school life. There is no effective treatment for ME and a complete lack of understanding of the condition.

We are hoping that research will lead to greater understanding, treatments and ultimately a cure so we and the 250,000 others struggling to live with ME can claim their lives back.

David, I and the dogs are walking around Chorlton Water Park, this is a relatively short walk but my ME means I’ll need to rest along the way – for many this is an easy walk but for me it will be a challenge.

We’re hoping to be joined by others in the Manchester area to raise awareness as well as much needed funds.

Julie’s JustGiving page is here: www.justgiving.com/fundraising/Julie-Byron

Tony’s JustGiving page is here: www.justgiving.com/fundraising/Tony-Fryer

Julie Byron

Please share widely. Thank you for your support!

About Walk for ME

Great South run for IiMER 

A Team of 100 runners (hopefully more) will take part in the Great South Run as a member of Team100, each raising £100 for ‘Invest in ME Research. The event is being held by Ian Monnery  in support of his wife Nikki who has had M.E since 2003. The run takes place in the beautiful setting of Portsmouth Uk. The Great South Run has become one of Europe’s most popular mass participation races over 10 miles, with a record 21,000 entries for the 2009 race. It’s held on 22 Oct 2017

Contact info@investinme.org if you’d like to take part

To donate 

www.justgiving.com/fundraising/Ian-Monnery1
mydonate.bt.com/fundraisers/investinmeresearch

M.E needs your poetry


“With May 12th (International M.E Awareness day) approaching us Hay Green has decided as normal she will be releasing a book to raise funds for Invest In ME Research. Unfortunately she’s too poorly to write and publish her own content at this stage so she needs need your help! 

“I’m going to publish a book full of poetry from M.E sufferers, including myself, and need your poetry! Any you have already is great, and / or if you would like to write more for the book then that’s fine too – you can have as many entries in the book as you wish. 
I will have all of my 5 paperback books up for grabs to 5 lucky entrants as a thank you for submitting your content. After May 12th, winners will be chosen at random. 
Please email me your entries, and share widely! 100% of all proceeds from the book will be donated to Invest In ME Research.

Love Hay x”
You can enter as many poems as you wish

Email Hay Green at hayley101tips@yahoo.co.uk if your interested in submitting your poetry or have any questions 

The deadline for submissions is 30th of April 

The Mighty Deerstalker for Invest in ME Research

By Victoria McNiff on JustGiving: www.justgiving.com/fundraising/InvestinMEforKirsten

Vicky Mcniff

We are taking part in The Mighty Deerstalker half stalker, probably the hardest off-road-Tweed-clad-pipe-lit-plus-four-and-headtorch-wearing run that exists, and the biggest nightrun in the U.K. We are not all very fit and this will be a huge challenge, but we are doing this to raise money for Invest In ME, a volunteer run charity which raises money for biomedical research into ME (which is also known by the rather misleading name of Chronic Fatigue Syndrome).

There are millions of people across the world today living with the complex neurological disease, Myalgic Encephalomyelitis who are actively and indefinitely missing from their childhood, their adolescence and their adulthood; their education, their careers, their social lives and their ability to contribute to society.
Despite scientific progression in many illnesses and diseases, ME remains a stagnant orphan condition, continually missing millions of pounds in funding for research and treatment, and missing millions of doctors, researchers and specialists to assist sufferers in their every day lives. At a time where more and more lives are being destroyed by this disease, both young and old, this complacency must and will change.

We have seen the devastation personally, 12 year old Kirsten went rapidly from a very fit and achieving young girl who loved school and many sporting and social activities, to to one who now at 14 is barely able to leave her dark bedroom, with dizziness, nausea, exhaustion, migraines, intense light and sound sensitivity, very poor and unrefreshing sleep, but most of all profound fatigue (more like gravity increasing so you can’t move than simple tiredness), which is worsened by any physical or mental excertion.

Signed up to do the half Deerstalker so far are Kirsten’s dad Mark, her brother Joseph, her uncle Richard, aunt Michelle, and cousin Jake. Mark and Michelle are now signed up to do the FULL stalker, the crazy main run race of uncertain length. Also joining them is Kirsten’s uncle Dennis and cousin Tigen.

Donate here: www.justgiving.com/fundraising/InvestinMEforKirsten

Thank you for your support!