May ME Awareness Month

Welcome to ME Awareness Month May 2019!

A bit about us…

Let’s Do It for ME is a patient-driven campaign supporting the work of the charity Invest in ME Research and helping to raise funds for the biomedical research of their UK Centre of Excellence for ME initiative.

We want tests to enable accurate diagnosis and effective medical treatments established for Myalgic Encephalomyelitis (ME).

ME is a chronic disease involving muscle, brain, spinal cord, and dysfunction of immune, gastro-intestinal, endocrine, and cardiac systems. For more about ME see IiMER Awareness Leaflet and FAQs about ME.

Our crowdfunding enabled the Centre of Excellence biomedical research projects to commence in 2013 and the ongoing efforts were noted by MPs in recent Parliamentary debates on ME treatment and research.

Let’s Do It for ME awareness and fundraising is fully inclusive of age and illness severity, from the most severely ill supported by carers, to fit and healthy friends and family, our wonderful willing wellies!

We’ve had sponsored silences, screen-free weekends, readathons, sleepathons, through to some pretty extreme challenges, such as Mike Shepherd’s North Pole Marathon. You name it, Invest in ME Research supporters have probably done it!

Click on the images in the grid below for ways to take part in or to support May ME Awareness 2019 in aid of Invest in ME Research charity.

There’s also a page for May 2019 fundraisers here.

If you’re only able to share links that is still much appreciated.

We are severely ill ourselves but aim to update throughout May 2019 so please contact us with anything you’d like added or highlighted.

Special dates for May include renowned international Invest in ME Research Conference Week including Thinking the Future for Early Career Researchers 28th; Biomedical Researchers Colloquium 29-30th; ME Conference 31st; and Janet Smart’s Black Dress Day 31st May.

Until 17th May you can nominate Invest in ME Research for a Movement for Good donation of £1,000.

Please email Invest in ME Research directly at info@investinme.org for help with other awareness and fundraising aids, such as the charity’s T-shirts, wristbands, info materials, collection boxes etc.

To support our awareness you can also buy a range of products, such as our famous bear, with the Let’s Do It for ME and other logos and slogans from our online shops with 100% seller profit paid directly to Invest in ME Research. Spreadshirt’s offering free delivery til 7th May.

You can also buy the new book of poems 31 Days in May by The French Femme or simply share the poems she posts each day of the month.

Fundraisers can create pages for Invest in ME Research on these platforms

EveryclickGoFundMEJustGivingMyDonateWonderful

Here’s to Happy May ME Awareness and Fundraising!

Thank you for supporting Invest in ME Research! 

Take Part…

Add Twibbon
Blue It for ME
C Selfie Campaign
Black Dress Day for ME
Cordon Bleu for ME
Have a Cuppa for ME
Pets Walkies for ME
Swim a Mile in May for ME
The Big Shave for ME
The Big Sleep for ME
Share a Poem
Walk for ME 2019
Conference Week
Contact Your MP
Sign Our Guestbook
Support Fundraisers

Thank you for supporting Invest in ME Research!

31 Days in May

New book of poems for May ME Awareness Month

by The French Femme

Rosalynde Lemarchand is pleased to announce the publication of her new book ’31 days in May’ under her nom de plume The French Femme.

Ros’s new book of 31 short poems about the reality of living with ME (Myalgic Encephalomyelitis) has been especially written for May ME Awareness Month.

Each day in May Ros will be sharing a poem from the book, so keep an eye on her blog or Facebook page or @frenchros on Twitter.

All proceeds from the book will be donated to Invest in ME Research and the charity’s Chairman, Kathleen McCall, has written the foreword. Ros has set up a JustGiving page Rosalynde’s 31 days in May for donations to the charity.

Ros writes,

Please feel free to share my blog and any of my poems.

I don’t write and publish my poetry to make a living but rather to increase awareness and understanding and to help others who suffer like myself.

It takes a great deal of time and effort and there is always payback on my health. 

I hope my collection of poems convey a strong and simple message. I want better understanding and support. I want the suffering to end.

Please support me and Invest in ME Research.

Thank you.

À bientôt
from the French Femme
xxx

The book is available in both paperback and kindle versions on Amazon in many countries throughout the world. Links to some of these are in Ros’s blog: roslemarchand.blogspot.com/2019/04/31-days-in-may.html

If buying anything from Amazon UK you can generate an extra donation to Invest in ME Research by using this referral link or via Amazon Smile.

Merci Beaucoup!

Thank you for supporting Invest in ME Research!

Send E-Cards for ME

A new way to donate to Invest in ME Research!


You can now send e-cards and donate to Invest in ME Research via DontSendMeACard.com so it’s not too late for last minute Christmas cards.

There is also an option for companies to send corporate Christmas e-cards.

Simply select the occasion, type your message, choose how much you wish to donate, from a minimum donation of £1 with no maximum amount.

You can make your donation via PayPal or credit card.

You are only ever charged what you select to donate e.g. if you select to donate £10 you pay £10.

You can add Gift Aid if you pay UK tax and the charity can then claim 25p extra for every £1 donated.

You can send up 100 e-cards to friends and family per donation, either all at once or one at a time.

Donations are sent instantly to the charity, less a 5% fee for each transaction.

When friends, family, colleagues, receive your e-card, they will see that you donated, but they won’t see the amount, so if you would like people to know then you could state your donation amount in your personal message.

Please let all your contacts know about this new donation option.

Find all your e-cards here.

Christmas e-cards here.

New Year e-cards here.

Season’s Greetings and Thank You for supporting Invest in ME Research!


 

TopCashBack Referral Offer

Until 10am 3rd December 2018 offer of £20 for Invest in ME Research and a £5 Amazon voucher for you (when you’ve qualified for £10 cashback) by signing up to TopCashback via Paul Kayes referral link.

Some great percentages on currently e.g. up to 15% at Curry’s PC World.

Here is the link to use if signing up….

https://www.topcashback.co.uk/ref/paulk22

TopCashback.co.uk is the UK’s most generous cashback website and is recommended by Martin Lewis of MoneySavingExpert. Sign-up via our Tell-a-Friend link and TopCashback will make an extra donation to Invest in ME Research via Let’s Do It for ME co-founder Paul Kayes. You then get to choose whether to receive all of the money in your account yourself or opt to donate all, or a percentage of it. There is also a mobile app. Read more and sign up here. There will be a banner stating you have been referred by ‘Paulk22’.

 

 

Thank you for supporting Invest in ME Research!

Work for Good: Matching Donations until Christmas!

Offer for businesses donating for the first time through Work for Good.
 

 

Invest in ME Research is a charity member of Work for Good, a social enterprise created to make it easy for businesses to incorporate philanthropy into their day to day work and to donate to charities through this platform.

A very generous donor (who wishes to remain anonymous) has pledged to double donations via Work for Good from now until Christmas.

The match donor will double a maximum of £1,000 per business, first come first served, whilst funds remain for any business making donations through the Work for Good platform for the first time.

“This gives you and your business a great opportunity to make your first donation(s) to the causes you care about through Work for Good. By doing so, your money will go further since we’ll match what you give. How’s that for an early Christmas present?!” More here.

Work for Good is the brainchild of Rupert Pick, who was inspired to give back to the amazing hospital staff who care for his daughter Ottie. Ottie was born 10 weeks premature, weighing less than 3lbs and with two rare genetic conditions that affect both her bones and her heart. When Rupert decided to donate the fees from his next workshop to the Evelina London Children’s Hospital, it made him wonder about all the wonderful things that could happen if only more businesses chose to give through their work. Read more here, how it works for businesses here, FAQs here and find the Invest in ME Research page here.

Best Christmas Wishes to Ottie, Rupert and all involved at Work for Good.

Please spread word of this opportunity and the kind matching donations offer to any businesses you may know. Let’s #DoGoodatChristmas!

Thank you for supporting Invest in ME Research!

 
P.S. Don’t forget the PayPal Matching Donations on Giving Tuesday starts just after midnight tonight so be quick to hit the donate button before the max £50,000 for all charities is reached.