Nationwide Recommend a Friend Offer

We have a generous offer from Katherine T Owen for anyone considering switching their banking to the Nationwide Building Society.

Katherine will recommend you via Nationwide’s Recommend a Friend. You will both get £100 from Nationwide and Katherine will donate £50 to Invest in ME Research for everyone who switches via her recommendation email.

You would need to switch your main current account to a Nationwide FlexAccount, FlexPlus or FlexDirect account within 90 days of the recommendation, and transfer at least two Direct Debits as part of the switch (standing orders and recurring card payments don’t qualify). Switching can be done online. The the £100 will be taken back if you close the account within 6 months. Full details, T&C, FAQs here: nationwide.co.uk/products/current-accounts/our-current-accounts/recommend-a-friend-tab

Ali Cross is the first to take up Katherine’s offer and both have kindly donated £50 to Invest in ME Research.

If you want to switch to Nationwide and help Invest in ME Research at the same time then please contact us to put you in touch with Katherine.

Many thanks to Katherine, Ali and everyone supporting Invest in ME Research!

 

More ways to Raise Funds for Free for Invest in ME Research

IIMEC13 DVD Out Now

Invest in ME Research have begun distribution of the IIMEC13 DVD.

The DVD set includes full presentations at the charity’s 13th international biomedical research conference held in Westminster, London in June 2018, plus the pre-conference evening dinner speech this year by Carol Head, President of the USA organisation Solve ME/CFS Initiative. Prevous pre-conference dinner speakers from across the pond include Hillary Johnson, Linda Tannenbaum, David Tuller. DVDs of past conferences are also available.

David Meachen at DJM Digital has performed another excellent job in professionally authoring these conference DVDs which may be used to obtain points for continual professional development. David has been working with the charity since the first conference in 2006 to produce the best possible record of these CPD-accredited conferences. The DVDs are heavily subsidised by the charity in order to make them available to as many patients, patient groups, carers and researchers, healthcare, media and politicians as possible.

IIMEC13 marks 13 years of commitment to biomedical research into ME by Invest in ME Research. A remarkable achievement, level of commitment and perseverance by a small group of patients and carers, ably supported by scientists and clinicians working to the same high professional standards.

“Invest in ME has been able to increase awareness and disseminate knowledge to scientists, clinicians, and patients within the ME community. With limited resources, but unlimited creativity and imagination, these patients and their supporters have showed the world what can be done. They are an inspiration for the world.” Dr. Leonard A. Jason and Zachary A. Siegel.

The 2018 conference attracted delegates from twenty different countries – from Europe, North America, Japan and Australasia.

The conference day was preceded by the 8th Invest in ME Research International Biomedical Research into ME Colloquium – a two day closed researchers’ meeting with almost 100 eminent researchers invited to attend from fourteen countries. Through the multiple international collaborations the charity has formed there was an incredibly positive atmosphere beginning with the BRMEC8 Colloquium and continuing through the IIMEC13 Conference days.

The charity added an extra event this year, a day for young or early career biomedical researchers, called Thinking The Future. Dr. Vicky Whittemore announced at the conference that NIH would follow suit.

Organisations assiting Invest in ME Research in sponsoring IIMEC13 were Solve ME/CFS Initiative, RME Sverige, Norges ME Forening, Irish ME Trust.

Solve ME/CFS Initiative also supported Katya Lavine, Stanford ME/CFS Initiative researcher, with an SMCI MeetME Travel Award to attend the events. Katya’s excellent account of the events is here and she concluded,

“I am even more excited about the momentum of this community, the groundbreaking research on the horizon, and the brilliant minds devoting their lives to this disease. Solving M.E. is more than an issue of science. It is an issue of justice. Moving forward humbly in my own work on M.E., I am grateful for my time at IIME and for the passionate international community I have the chance to work alongside.”

The IIMEC13 conference showed the major initiatives and research taking place to continue an international collaborative strategy for biomedical research into Myalgic Encephalomyelitis which Invest in ME Research has been championing since after the 2007 #IIMEC2 conference.

The presentation by Professor Theoharis Theoharides was preceded by a moving tribute to the late Anne Örtegren, outstanding advocate, great friend to Invest in ME Research and staunch supporter of the Let’s Do It for ME campaign.

Just a few weeks before her death Anne wrote,

“I’ve followed LDIFME for all these years and you do an amazing job!

I also feel very strongly about IiMER and am just in awe of what everyone involved have accomplished. Where would we be without them/you?”

On a personal note to regular followers of our blog and supporters of our campaign to help raise awareness and funds for the Invest in ME Research Centre of Excellence for ME, it is obviously terribly hard to lose our friends and fellow supporters, and we hope you are ok.

Every time we are knocked down by another loss, we have no choice as a team but to get back up again and keep going until we have the medical tests and treatments that we need, not only to honour the lives lost, but for future generations and of course, in the hope that we may regain our own lives.

So we are back on the road to reaching the next £200k of our £1,000,000 target to support next phases of the biomedical research programme of the Invest in ME Research Centre of Excellence for ME. If you’d like to be more involved in supporting our campaign please contact us or the charity directly. Whether you’ve been with us over the past seven years since we launched our campaign or are newly aboard, we sincerely thank you for your suppport.

The agenda pictured below shows the IIMEC13 speakers and topics. Professor Simon Carding was unable to attend, so Fiona Newberry and Katharine Seton spoke on his behalf and that of fellow PhD candidate Shen-Yuan Hsieh.

You can find the full agenda and conference reports on the IiMER Conference website and a report by Dr. Rosamund Vallings & Dr. Sarah Dalziel here.

IIMEC13 gallery and comments by delegates here.

The Journal of IiMER is here.

Order the DVD here.

If possible, perhaps buy a copy for your doctor or MP or let them know this is available? Your doctor can obtain CPD points for watching and your MP can be better informed in preparation for a full parliamentary debate on ME research and treatment in the House of Commons, which Carol Monaghan MP is pressing for. See our summary of the 3-hour Westminster Hall debate in June here and our blog about writing to your MP here. The book by former MP and Chair of IIMEC13, Dr. Ian Gibson and his friend Elaine Sherriffs is available on Amazon, search ‘Science, Politics and ME’ and raise an extra donation to Invest in ME Research at no extra cost to you by buying via Amazon Smile or this referral link.

We end with a selection of tweets of the Invest in ME Research Conference events, starting with AA hero Scott apparently saving the day!

We have never been to the conference ourselves, by the way, as we are mostly long-term house or bedbound by ME, so we very much appreciate supporters able to be there in person and keeping us involved on Facebook or Twitter #IIMEC13 #BRMEC8 #ThinkingTheFuture2018 including ever-so-modest IIMER Bear, who debuted at last year’s conference, Emma Joy whose husband Adam has since cycled from London to Paris in 22 hours fundraising for IiME Research, Mike Harley flying the flag and Nancy Van Hoylandt brandishing the umbrella for the European ME Alliance and European Federation of Neurological Associations.

Thanks so much to everyone supporting Invest in ME Research.

Let’s keep doing it for ME.

https://twitter.com/iimerbear/status/1001100635209596933



IIMEC13 DVD
Journal of IiMER
Donate to IiME Research

December Doings for ME!

December Awareness and Fundraising for Invest in ME Research

Help me celebrate Life by helping a good cause.
Jon Campling: justgiving.com/fundraising/walktall4me

For a summary of Jon Campling’s activties in support of Invest in ME Research throughout 2017 see our blog Campling Can.

Follow the daily adventures of IIMER Bear in the run up to Christmas through his advent calendar on Instagram or Twitter and on Facebook via Anna Mitchell admin of Invest in ME Research Group.

Order the charity’s Christmas Cards here:
http://www.investinme.org/shop.shtml#cc

Order Five Portions of on Etsy here: etsy.com/uk/shop/FivePortionsOf
Profits from each box are kindly donated to IiME Research.

I have a few things made up ready to post as not making anything at the moment due to health and eye problems. Please take a peek & feel free to share Thanks, Lynne. www.etsy.com/uk/shop/ME2UDezignz

If you’re doing any Christmas shopping online please check out our ways to Raise Funds for Free as well as our Shop tab above.

This year instead of a present for Christmas Kate Chaplin would love nothing more than a donation to “Invest In ME Research”.
Join in Kate’s Christmas on JustGiving: www.justgiving.com/fundraising/kate-chaplin

During the first week of December all proceeds of the sales of any or all of my books will be donated to Invest in ME Research.
Rosalynde Lemarchand: roslemarchand.blogspot.com.es/2017/11/why-we-need-to-keep-fighting.html

You can generate an extra donation to IiME Research when you buy anything on Amazon at no extra cost to you by using this referral link.

Becca Hams’ fundraising page in honour of the late Lynn Gilderdale’s 40th birthday remains open for donations until 20th December 2017. Lynn sadly took her own life on 4th December 2008 ending 17 years of suffering from very severe ME. https://mydonate.bt.com/fundraisers/lynngilderdale40

Please contact us or send us a message on Facebook or Twitter if you’d like us to highlight your awareness or fundraising for the charity Invest in ME Research.

Best Wishes for December everyone.

Thank you for your support!

Make ME crafts


If your looking for that extra special present for someone much loved this Christmas, then look no further than Make ME crafts. Including beautiful jewellery, stunning cards, unusual bookmarks and even hanging octopuses there is something for everyone at Make ME crafts!

What’s more you’ll also be raising much needed funds for IiMER as a proportion of every item sold goes towards the charity. Many of the items are made by ME sufferers themselves or else crafty sympathisers. So shop until you drop knowing it’s for a good cause!


If your interested in helping you can register as a seller or contact them for more information on how to help. It doesn’t matter if your interested in donating craft supplies, becoming a regular trader, selling a one off item or anything else. It all helps. Our departments are slightly bare ATM so we welcome any support with open arms!


“At ‘Make ME’ we aim to focus on the little things that people with this condition can accomplish, bit by bit, instead of the bigger things we can’t; to shift attention to the positive ways we can still make a difference.

Being ill doesn’t mean we have to stop being creative.Even if we’re stuck at home, or in bed, we can still contribute. Using the power of the internet and keeping our projects flexible enough to manage around our health, we can get our lovingly created crafts out there, raising awareness and fighting for real and effective M.E. treatments.



Crafts made by sufferers are listed at their own pace, as they complete them, with many sellers working on projects as and when they’re able. There is absolutely no rush – no pressure. There are no demands or time-constraints.



It’s not about how fast you can do something, it’s about how well you can do something. We may be ill but we haven’t lost our talent, our passion or our creativity. We just can’t manage things on the same scale as healthy people. We might not be able to keep up with the break-neck pace of the world outside, but that doesn’t mean we can’t do something constructive; something worthwhile, bit by bit. To borrow a phrase from Tesco “Every little helps”. Make ME crafts 





Visit their website www.makemecrafts.com

No Isolation for ME

Opportunity to trial No Isolation AV1 robot, by Invest in ME Research:
http://www.investinme.org/IIMER-Newslet-1711-02.shtml

Invest in ME Research concentrates much effort on finding, funding and facilitating biomedical research into myalgic encephalomyelitis (ME) as this, we believe, provides the only means to resolve the situation in which millions of people find themselves.

But a disease such as ME presents many challenges to a patient and to a family.

It can provide challenges also to schools when a child or young person is unable to continue full time education.

Isolation is one of the most insidious consequences of ME – the full effects often not realised until much later.

We want to help change that.

In Norway, a small white robot has become a stand-in in the classroom for children and youths suffering from ME.

We want this possibility to be offered to young people affected by ME throughout the UK – and, at the same time, spread awareness of this disease throughout the education system.

At our IIMEC12 conference in London in June 2017 we invited a Norwegian company – No Isolation – to display new thinking on how to resolve some of this situation.

The Norwegian start up has developed a robot that helps children and youths with long-term illness participate in the classroom on their own terms.

The robot, called AV1, acts as the students’ eyes, ears and voice in the classroom on days where they cannot be physically present.

After discussions the company has made an offer to Invest in ME Research to provide three AV1 robots to be trialled by three families.

We will be contacting local education authorities to make them aware of the possibilities to help young people with ME. We invite support for this initiative by assisting us with contact to local schools and education authorities.

Meanwhile, if there are families that have a child who has been forced to stay at home due to ME, and who would like to participate in a trial of the robot at their school and work with IiMER and No Isolation to describe the results, then please contact us.

There will be three robots to trial.

If you would like to be one of the families trialling AV1 and would be prepared to report back during the trial and work with us, No Isolation and the school/school authority then we would be very keen to hear from you.

We invite support to help us promote awareness of the problems that young people face due to the effects of ME and how innovative use of technology can alleviate some of those effects due to isolation.

Invest in ME Research will receive no financial reward for this campaign.

The charity does this in order to highlight and overcome a major consequence of becoming ill with ME.

Full details and press release are at this link.

Thank you for your support!

More on Let’s Do It for ME blog…

Back The Future of Biomedical Research for ME!

A Day with a Son with ME