December Doings for ME!

December Awareness and Fundraising for Invest in ME Research

Help me celebrate Life by helping a good cause.
Jon Campling: justgiving.com/fundraising/walktall4me

For a summary of Jon Campling’s activties in support of Invest in ME Research throughout 2017 see our blog Campling Can.

Follow the daily adventures of IIMER Bear in the run up to Christmas through his advent calendar on Instagram or Twitter and on Facebook via Anna Mitchell admin of Invest in ME Research Group.

Order the charity’s Christmas Cards here:
http://www.investinme.org/shop.shtml#cc

Order Five Portions of on Etsy here: etsy.com/uk/shop/FivePortionsOf
Profits from each box are kindly donated to IiME Research.

I have a few things made up ready to post as not making anything at the moment due to health and eye problems. Please take a peek & feel free to share Thanks, Lynne. www.etsy.com/uk/shop/ME2UDezignz

If you’re doing any Christmas shopping online please check out our ways to Raise Funds for Free as well as our Shop tab above.

This year instead of a present for Christmas Kate Chaplin would love nothing more than a donation to “Invest In ME Research”.
Join in Kate’s Christmas on JustGiving: www.justgiving.com/fundraising/kate-chaplin

During the first week of December all proceeds of the sales of any or all of my books will be donated to Invest in ME Research.
Rosalynde Lemarchand: roslemarchand.blogspot.com.es/2017/11/why-we-need-to-keep-fighting.html

You can generate an extra donation to IiME Research when you buy anything on Amazon at no extra cost to you by using this referral link.

Becca Hams’ fundraising page in honour of the late Lynn Gilderdale’s 40th birthday remains open for donations until 20th December 2017. Lynn sadly took her own life on 4th December 2008 ending 17 years of suffering from very severe ME. https://mydonate.bt.com/fundraisers/lynngilderdale40

Please contact us or send us a message on Facebook or Twitter if you’d like us to highlight your awareness or fundraising for the charity Invest in ME Research.

Best Wishes for December everyone.

Thank you for your support!

Make ME crafts


If your looking for that extra special present for someone much loved this Christmas, then look no further than Make ME crafts. Including beautiful jewellery, stunning cards, unusual bookmarks and even hanging octopuses there is something for everyone at Make ME crafts!

What’s more you’ll also be raising much needed funds for IiMER as a proportion of every item sold goes towards the charity. Many of the items are made by ME sufferers themselves or else crafty sympathisers. So shop until you drop knowing it’s for a good cause!


If your interested in helping you can register as a seller or contact them for more information on how to help. It doesn’t matter if your interested in donating craft supplies, becoming a regular trader, selling a one off item or anything else. It all helps. Our departments are slightly bare ATM so we welcome any support with open arms!


“At ‘Make ME’ we aim to focus on the little things that people with this condition can accomplish, bit by bit, instead of the bigger things we can’t; to shift attention to the positive ways we can still make a difference.

Being ill doesn’t mean we have to stop being creative.Even if we’re stuck at home, or in bed, we can still contribute. Using the power of the internet and keeping our projects flexible enough to manage around our health, we can get our lovingly created crafts out there, raising awareness and fighting for real and effective M.E. treatments.



Crafts made by sufferers are listed at their own pace, as they complete them, with many sellers working on projects as and when they’re able. There is absolutely no rush – no pressure. There are no demands or time-constraints.



It’s not about how fast you can do something, it’s about how well you can do something. We may be ill but we haven’t lost our talent, our passion or our creativity. We just can’t manage things on the same scale as healthy people. We might not be able to keep up with the break-neck pace of the world outside, but that doesn’t mean we can’t do something constructive; something worthwhile, bit by bit. To borrow a phrase from Tesco “Every little helps”. Make ME crafts 





Visit their website www.makemecrafts.com

No Isolation for ME

Opportunity to trial No Isolation AV1 robot, by Invest in ME Research:
http://www.investinme.org/IIMER-Newslet-1711-02.shtml

Invest in ME Research concentrates much effort on finding, funding and facilitating biomedical research into myalgic encephalomyelitis (ME) as this, we believe, provides the only means to resolve the situation in which millions of people find themselves.

But a disease such as ME presents many challenges to a patient and to a family.

It can provide challenges also to schools when a child or young person is unable to continue full time education.

Isolation is one of the most insidious consequences of ME – the full effects often not realised until much later.

We want to help change that.

In Norway, a small white robot has become a stand-in in the classroom for children and youths suffering from ME.

We want this possibility to be offered to young people affected by ME throughout the UK – and, at the same time, spread awareness of this disease throughout the education system.

At our IIMEC12 conference in London in June 2017 we invited a Norwegian company – No Isolation – to display new thinking on how to resolve some of this situation.

The Norwegian start up has developed a robot that helps children and youths with long-term illness participate in the classroom on their own terms.

The robot, called AV1, acts as the students’ eyes, ears and voice in the classroom on days where they cannot be physically present.

After discussions the company has made an offer to Invest in ME Research to provide three AV1 robots to be trialled by three families.

We will be contacting local education authorities to make them aware of the possibilities to help young people with ME. We invite support for this initiative by assisting us with contact to local schools and education authorities.

Meanwhile, if there are families that have a child who has been forced to stay at home due to ME, and who would like to participate in a trial of the robot at their school and work with IiMER and No Isolation to describe the results, then please contact us.

There will be three robots to trial.

If you would like to be one of the families trialling AV1 and would be prepared to report back during the trial and work with us, No Isolation and the school/school authority then we would be very keen to hear from you.

We invite support to help us promote awareness of the problems that young people face due to the effects of ME and how innovative use of technology can alleviate some of those effects due to isolation.

Invest in ME Research will receive no financial reward for this campaign.

The charity does this in order to highlight and overcome a major consequence of becoming ill with ME.

Full details and press release are at this link.

Thank you for your support!

More on Let’s Do It for ME blog…

Back The Future of Biomedical Research for ME!

A Day with a Son with ME

Christmas cards and more for IiMER!

Christmas cards for IiMER are now available! From snowy street scapes and snow encrusted blooms to cute robins there’s plenty to choose from. Visit the IiMER shop to order now!

Alison Orr at Cards 4 IiME also has a load of festive goodies for us. From a greater selection of Christmas cards, advent calendars, ribbon, tags, festive paper and more she’s got all your Christmas accessorie needs parcelled up. 

Back the Future of Biomedical Research for ME!

Dates have been announced for the 2018 international biomedical research conference events, organised and hosted by Invest in ME Research, and held at One Great George Street, Westminster, London SW1P 3AA.

This will be the 13th Invest in ME Conference (IIMEC13) and the 8th Biomedical Research into Colloquium (BRMEC8), with an international reputation as events that can drive forward progress in this disease, which will benefit patients and healthcare organsations and, ultimately, society.

The BRMEC* colloquiums are two-day events which bring together researchers and clinicians from countries around the world. The intent is to make progress in research into ME via collaboration, sharing, discussion and creation of new initiatives. As such the charity considers this a key event in the week’s proceedings.

An extra day has been added to the 2018 colloquium, specifically for early career researchers, and is headlined ‘Thinking the Future‘.

The IIMEC* conferences attract researchers, professionals working in healthcare (GPs, nurses, paediatricians etc.), students, media personnel, politicians and ME patient groups, patients and carers from around the world.

The conferences maintain a friendly atmosphere with the focus on research, treatments and progress.

Rt Hon Jeremy Corbyn MP, Leader of the Labour Party and Leader of the Opposition, has kindly agreed to give the opening speech at IIMEC13 and this news has been very warmly welcomed by patients, families, carers, researchers, as may be seen by the messages in this online Thank You card, which anyone may sgn.

Registration is now open for the conference with Early Bird ticket prices available until 3rd March 2018: http://investinme.eu/IIMEC13.shtml#register

If you belong to a local ME support group, there’s an option to recommend a GP or other healthcare professional for a concessionary rate. The conference is CPD-accredited so this a good opportunity.

Invest in ME Research is run by volunteers and all work is carried out for free. The charity does not receive government funding or huge donations from big institutions to run the conference. Therefore, to enable them to provide the best events possible they welcome donations or sponsorship from companies, organisations, support groups and individuals to make the International ME Conferences and Colloquiums a success.

The undercover agents at Let’s Do It for ME can’t attend these important annual events in person as we are housebound by ME, so this year we had the idea of donating what it would cost us to the charity instead.

We thought other supporters might like to do the same, whether as one lump sum or as smaller donations throughout the year, so we have set up a JustGiving page as an easy option for like-minded supporters: https://www.justgiving.com/fundraising/fundraising-4me

You could donate just the ticket price, or add in travel and accommodation costs, but every donation helps this small charity to make their international biomedical research conference events bigger and better year on year, enabling an increasing number of outstanding scientists from around the world to get involved in finding answers to this dreadful disease, so please feel free to donate any amount from £1 upwards if you wish to, or just help spread the word to help raise awareness and education about biomedical research into ME (Myalgic Encephalomyelitis).

Here’s a JustTextGiving option for UK sponsors.

Text BRME75 (e.g. £10) to 70070

Text donations add to the totals here: https://www.justgiving.com/fundraising/fundraising-4me

For other ways to sponsor the conference events see: http://investinme.eu/IIMEC13-sponsorship.shtml

If you are an organisation or potential corporate sponsor then please see the charity’s conference site for info on sponsorship opportunities and contact details: http://investinme.eu/index.shtml#sponsors

If you would like to see the full presentations from previous conferences (including June 2017) then you can order the conference DVDs: http://investinme.eu/IIMEC13-pastconferences.shtml
Past editions of the Journal of IiMER and newsletters are also at the above link.

Whether like us, you can’t go in person, or would just like to be part of the future of biomedical research into this disease by sponsoring productive international cooperation, we thank you for your support!

DONATE TO THE FUTURE OF BIOMEDICAL RESEARCH FOR ME