Advent Calendar for ME

Invest in ME Research begin their advent calendar with Myalgic Encephalomyelitis itself, using an article from some of the most knowledgeable and pioneering of advocates for people with ME. The article is called ‘Information for Clinicians and Lawyers’ and was written in 2001 by Eileen P. Marshall, Margaret Williams and Professor Malcolm Hooper. Day 1 – What is ME?

 

 

The advent calendar is part of the charity’s Christmas / New Year Funding Appeal.

Please help promote this appeal on social media and through hospitals, GP surgeries and schools.

The more we can educate and the more we can raise awareness then the more rapid will be the solutions.

Sign up to receive the free Invest in ME Research Newsletter by email.

 

Thank you for supporting Invest in ME Research!

 

Christmas Shopping
Awareness and Fundraising
IiMER Funding Appeal
 

Barnaby’s Birthday Fundraiser for Invest in ME Research

That excellent Eaton-Jones fellow is celebrating his birthday by fundraising for Invest in ME Research. Barnaby wrote,

“On Saturday, I turn 45. Every year is a struggle for most people with health issues but this is a charity about the most underfunded and maligned of diseases that affects so many people that it *should* be up there with the more ‘known’ ones. I’ve suffered with it for over 25 years and I have fought for better awareness and understanding. Of all the many M.E. charities, this one – for me – seems to be doing the most to get to the root of this disease and work out a way to somehow give all level of sufferers hope for the future. If you can spare the minimum donation of £4, I’d be most grateful. But, I also understand if you can’t in these times of austerity and uncertainty. Thanks for reading and, if you’re able to, thank you for supporting.”

Barnaby’s Facebook Fundraiser is open for two weeks and if it doesn’t give you the option to donate in your currency you can follow his friends’ kind lead and donate via our current JustGiving page Let’s C Research!

There’s also some exciting news. It has been Barnaby’s lifelong dream to have something broadcast on BBC Radio and it will happen! ‘I’m Sorry I’ll Read That Again…. Again!’ airs on BBC Radio 4 Extra from 21st December. See the tweet below for dates and times for the four weekly episodes and read all about it here.

 


 

Best Birthday Wishes Barnaby Eaton-Jones and congratulations on your news!

Thanks everyone supporting Invest in ME Research!

 

Barnaby’s Birthday Fundraiser on Facebook

Let’s C Research on JustGiving

Caroline John’s Christmas Appeal Donation

Another bauble added to the Invest in ME Research Christmas Tree courtesy of a generous £1000 donation by Caroline John from Scotland.

Caroline is a bespoke jewellery designer who has had ME for over three decades. Her story led the charity to write on the topic of people long-term ill ME.

Caroline’s story and the charity’s article are at this link.

Thank you Caroline and everyone supporting Invest in ME Research!

p.s. If you’re bagging a Black Friday deal online and want to help the charity at the same time, please remember the Ways to Raise Funds for Free for Invest in ME Research.

Will’s Birthday Fundraiser for Invest in ME Research

(Alex Woodvine pictured before and after Myalgic Encephalomyelitis)

Fundraiser for Invest in ME Research by Will Woodvine

As many of you know, ME has destroyed my youngest Son’s life and had a devastating impact on my family.

Alex is bed-bound for the vast majority of the day and is housebound the remainder of the time. He has lost the majority of his friends and feels isolated from the world. He faces a bleak and uncertain future.

My wife gave up a job she loved to care for Alex full time and this has had its own impact on her, with no time for Kathryn to live the life she should have.

Matthew, my eldest son, has also had to deal with the effect that ME has had on our family. This has not been easy for him at all, and is something that no teenager should have to deal with.

You can probably imagine the impact this has had on the family that I love, and how it makes me feel.

A father (and husband) is supposed to protect his family.

ME affects more people in the UK than Multiple Sclerosis but it is little heard of, misunderstood by the medical profession in general and there is no funded research into this chronic condition.

For my birthday this year, I’m asking for donations to INVEST in ME RESEARCH. I’ve chosen this non-profit for very obvious reasons, and I hope that you’ll consider contributing as a way of celebrating with me. Every little bit will help me reach my goal. I’ve included information about INVEST in ME RESEARCH below.

Invest in ME Research is an independent UK charity facilitating/funding a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS) and promoting better education about ME. The charity is run by volunteers – patients or parents of children with ME. No paid staff & all work is performed for free.
We are a small charity but with a growing number of supporters with big hearts and determination to get the best possible research carried out to find the cause of ME and develop treatments. investinme.org

Click here for Will’s Facebook Fundraiser for Invest in ME Research

Best Birthday Wishes to Will and thank you for your support.

Invest in ME Research Christmas/New Year Fund Appeal

Help Us Fund the Future for Research into Myalgic Encephalomyelitis…
 

 

Invest in ME Research has launched a funding appeal for Christmas and New Year. The Press Release is here. Please feel free to share the link far and wide.

Over this Christmas and New Year period IiMER is hoping to raise funds toward another PhD studentship and to allow more medical students to participate in research as part of building a Centre of Excellence for ME.

The charity has kindly linked to our latest JustGiving page Let’s C Research for this appeal and we will add other donations to keep a running total on the page.

You can also keep posted on the funding appeal here, where a generous £1000 donation by Bombardier Shorts of Belfast in support of Ben Scott’s fundraising for IiMER appears as the first bauble on the Christmas tree.

There is a news page and Advent Calendar.

Our Christmas 2018 page shows some ideas to help raise awareness and funds for Invest in ME Research this festive season. Please contact us if you’d like us to share your event or fundraising for the charity on our blog or social media.

This can be a very tough time of year for people with disabling chronic illness and their loved ones, so let’s make this Christmas count for ME.

Thank you for supporting the Invest in ME Research Funding Appeal!

 

Donate Here

 

Christmas Shopping
Awareness and Fundraising
IiMER Funding Appeal