IiMER International Conference Week London 2019


 

Invest in ME Research has announced dates for events taking place in London for their International Conference Week in May 2019 on biomedical research into ME (Myalgic Encephalomyelitis).

The second Thinking the Future conference for young or early career researchers will be on 28th May 2019.

The ninth Biomedical Research into ME Colloquium (BRMEC9) will take place over two days 29th-30th May 2019.

The above are privately held meetings for researchers from around the world to be able to discuss or share work in progress and plan future collaborations.

The fourteenth International ME Conference (IIMEC14) will be on 31st May 2019 and is open to anyone to attend by pre-paid ticket only (not at the door or on the day). A great opportunity for patients well enough to go in person, family, carers, medical and healthcare professionals, political representatives, journalists etc.

IiMER will post more details in due course of next year’s events on their conference/colloquium website, where you can also find details of past events, the Conference Reports, Journal of IiMER and the Conference DVDs, which are accredited by the Royal Colleges so that doctors may gain professional development credits for watching.

The 2018 IIMEC13 Conference DVD is available to buy at this link: http://investinme.eu/IIMEC13.shtml#dvd

Here is the IIMEC13 presentation by Professor Ron Davis of Stanford.


 

Thank you for supporting Invest in ME Research.

GIVE IT UPtober 2018

Let’s give it up for our simple October fundraiser for Invest in ME Research…


We warmly welcome you to invite friends and family to join us in giving up a treat or small luxury during the month of October and donating the money saved to Invest in ME Research – the small charity with a BIG CAUSE!

As supporters will know, Invest in ME Research is dedicated to finding cause/s and cure/s for this disease. The charity is run entirely by hard working volunteers so every penny donated is spent on their biomedical research strategy.

An estimated 250,000 people in UK have ME (Myalgic Encephalomyelitis). 10% of them are children diagnosed from as young as two years of age. 25% are severely ill, some unable to move, speak or swallow. Some sadly lose their lives.

Please join us in helping Invest in ME Research to change that.

The fourth year of our GIVE IT UPtober fundraising page on JustGiving starts with a current total of £4676.11 plus £396.88 gift aid thanks to your efforts and some generous matching sponsors! justgiving.com/fundraising/giutober

The code for text donations is GIUT88 followed by £1 to £5 or £10 to 70070.

You can, of course, use other ways to donate if you prefer.

If on Facebook, you can invite friends to our GIVE IT UPtober event page or you can join the event page hosted by Paul Kayes for each week of October 2018 via our Facebook group in support of the Invest in ME Research Centre of Excellence.

Twitter hashtags #GiveItUptober #Uptober #LetsCresearch

Let’s give it up for the amazing charity that gives so much for others.

Thank you so much for your support!

What a Weekend for Fab Friends of People with ME!

 

In the sizzling summer heat Olivia Robinson and Rachel Froebel did the AJ Bell Triathlon and Mike Harley ran the Sturminster Newton Half Marathon in training for the next of his 28 EU Marathons for Invest in ME Research.

All three are raising awareness and vital biomedical research funds for the charity because their friends have Myalgic Encephalomyelitis (ME).

What’s Up TV also kicked off their campaign to help raise awareness of ME.

 

AJ Bell London Triathlon 2018

 

Actress Olive Robinson (pictured left) fitting in her training and the triathlon in the middle of 16 shows in Newcastle, explained…

“M.E. affects an estimated 250,000 people in the UK, and around 17 million people worldwide. One of those precious humans is my best friend of 25 years. A once, very active woman who now spends most of her days in a chair, bed or wheelchair. A reader, dog walker, runner, swimmer, weight lifter, shape-thrower (!) who’s bound by her body’s inability to produce energy. People have often asked me how I have been so diligent with my training and the answer is so simple…”

Read Olivia’s story

Rachel Froebel wrote…

“A very close friend of mine Sofija has been diagnosed with M.E. (Myalgic Encephaloyelitis, also known as Chronic Fatigue Syndrome). It is a severe neurological disease that leaves 25% of patients bed bound. There is currently little treatment available on the NHS and no cure. Many people don’t understand the impact this disease has on people’s lives so I want to contribute to supporting this vital cause and would hugely appreciate your contributions.”

Read Rachel’s story

 

Mike’s EU Marathons


By Michael Harley…

“Over 250,000 people in the UK suffer with the ME and that includes 25,000 children as well as one of my good friends who has suffered for almost 10 years with the illness. Watching him drift from year to year without improvement is extremely hard to watch, I want to try to do something to stop this. He’s not depressed or making it up, he’s one of the most popular and positive people I know. He’s ill. Invest In ME (www.investinme.org) are committed to raising funds and awareness to find the cause and cure and are a voluntarily run organisation doing some amazing work. They’re the only organisation really making progress in working with scientists and researchers to find cures and treatments. They will be opening a specialist centre of excellence for ME in 2018 where patients can get diagnosis and treatment and have even crowd-funded enough to hold their own clinical trials to find a cure/treatments. They are also funding the PhD’s of students investigating the cause and possible treatments of the disease.”

Read Mike’s story

 

What’s Up TV

 

On Saturday What’s Up TV opened their new series on Sky One (in which they hope to build awareness of ME) by featuring a performance of the powerful poem One Stupid Dot by Stacy Hart, who writes as Runnin On Empty (ROE) and makes music as the amazingly talented Mama Chill.

 

What a weekend – many thanks everyone supporting!

 

Runners wanted for Royal Parks Half Marathon October 2018

See more Fundraisers for Invest in ME Research 2018

Join Team IiMER Royal Parks Half Marathon October 2018

Invest in ME Research has secured FIFTEEN places in the London Royal Parks Half Marathon on Sunday 14th October 2018 and some are still available.

If anyone you know may be willing and able to join Team IiMER 2018 in this event then details are at: investinme.org/IIMER-Newslet-1801-02.shtml

This will be another great opportunity to raise awareness of the charity’s strategy of funding high-quality biomedical research into ME (Myalgic Encephalomyelitis) and the development of a UK/European Centre of Excellence for ME.

All funds raised for Invest in ME Research will go to supporting, promoting or funding biomedical research into ME so please spread the word.

This Royal Parks Half Marathon route takes in the capital’s world-famous landmarks on closed roads and winds through four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens in all their autumnal splendour.

There are 16000 runners in the marathon.

The course is 13.1 miles (21 km) long.

To find out more about joining Team IiMER in the Royal Parks Half Marathon 2018 and to contact Invest in ME Research please click here.

Pictured below, Christian, Helen and Gemma did the Royal Parks Half Marathon for Invest in ME Research in 2017 (T-shirt designs may differ for 2018).

Huge thanks to Team IiMER and everyone supporting!

Get in Great Company for Fantasy Football League 2018/19!

The York ME TGA Inter-Company Fantasy Football League is open for season 2018/19. Open for all businesses to join in, not just York-based.

⚽ All funds raised go directly to UK charity Invest in ME Research.


The York ME TGA Inter-Company Fantasy Football League is open for season 2018/19 and all funds raised will again be going directly to Invest in ME Research. Open to ALL businesses, and they don’t have to be York-based to join up, so please share widely to let companies know about this opportunity to have a bit of fun and gain some bragging rights, while helping a great cause!

Bill Clayton of The York ME Community runs this Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness Myalgic Encephalomyelitis (ME) that affects around 250,00 people in the UK.

Entry for a company team will be £25.00, and if they wish to enter more than one team, the remainder will be only £15.00 each. Once teams are up and running, registration fees will be requested to be paid to The York ME Community fundraising page on Just Giving, going directly to the charity, Invest in ME Research: justgiving.com/fundraising/The-York-ME-Community

There will be a trophy, bragging rights, media coverage, as well as publicity from The York ME Community world wide website and social media.

Remember the company does not need to be York based to join up – everyone is welcome!

Companies are asked to sign up before 10 August, which is the league start date.

If you have any questions at all, please contact Bill Clayton at:

billclayton@live.co.uk

Full details here: york-me-community.org/york-inter-company-fantasy-football-league-for-the-york-me-tga-shield-201819/

Former winners are pictured below.

NG Plumbing and Heating topped the York Inter Company Fantasy Football League 2017/18 (special prize courtesy of Nestlé of York)

First in line, Bransby Wilson Group won the inaugural York Inter Company Fantasy Football League TGA Shield 2016/17

Many thanks to The York ME Community and everyone supporting!