May ME Awareness Month

Welcome to ME Awareness Month May 2019!

A bit about us…

Let’s Do It for ME is a patient-driven campaign supporting the work of the charity Invest in ME Research and helping to raise funds for the biomedical research of their UK Centre of Excellence for ME initiative.

We want tests to enable accurate diagnosis and effective medical treatments established for Myalgic Encephalomyelitis (ME).

ME is a chronic disease involving muscle, brain, spinal cord, and dysfunction of immune, gastro-intestinal, endocrine, and cardiac systems. For more about ME see IiMER Awareness Leaflet and FAQs about ME.

Our crowdfunding enabled the Centre of Excellence biomedical research projects to commence in 2013 and the ongoing efforts were noted by MPs in recent Parliamentary debates on ME treatment and research.

Let’s Do It for ME awareness and fundraising is fully inclusive of age and illness severity, from the most severely ill supported by carers, to fit and healthy friends and family, our wonderful willing wellies!

We’ve had sponsored silences, screen-free weekends, readathons, sleepathons, through to some pretty extreme challenges, such as Mike Shepherd’s North Pole Marathon. You name it, Invest in ME Research supporters have probably done it!

Click on the images in the grid below for ways to take part in or to support May ME Awareness 2019 in aid of Invest in ME Research charity.

There’s also a page for May 2019 fundraisers here.

If you’re only able to share links that is still much appreciated.

We are severely ill ourselves but aim to update throughout May 2019 so please contact us with anything you’d like added or highlighted.

Special dates for May include renowned international Invest in ME Research Conference Week including Thinking the Future for Early Career Researchers 28th; Biomedical Researchers Colloquium 29-30th; ME Conference 31st; and Janet Smart’s Black Dress Day 31st May.

Until 17th May you can nominate Invest in ME Research for a Movement for Good donation of £1,000.

Please email Invest in ME Research directly at info@investinme.org for help with other awareness and fundraising aids, such as the charity’s T-shirts, wristbands, info materials, collection boxes etc.

To support our awareness you can also buy a range of products, such as our famous bear, with the Let’s Do It for ME and other logos and slogans from our online shops with 100% seller profit paid directly to Invest in ME Research. Spreadshirt’s offering free delivery til 7th May.

You can also buy the new book of poems 31 Days in May by The French Femme or simply share the poems she posts each day of the month.

Fundraisers can create pages for Invest in ME Research on these platforms

EveryclickGoFundMEJustGivingMyDonateWonderful

Here’s to Happy May ME Awareness and Fundraising!

Thank you for supporting Invest in ME Research! 

Take Part…

Add Twibbon
Blue It for ME
C Selfie Campaign
Black Dress Day for ME
Cordon Bleu for ME
Have a Cuppa for ME
Pets Walkies for ME
Swim a Mile in May for ME
The Big Shave for ME
The Big Sleep for ME
Share a Poem
Walk for ME 2019
Conference Week
Contact Your MP
Sign Our Guestbook
Support Fundraisers

Thank you for supporting Invest in ME Research!

Nova Magazine Spotlights ME

Nova Magazine has published an excellent article by Will and Kathryn Woodvine featuring their teenage son Alex, who is severely ill with Myalgic Encephalomyelitis, and their amazing friend Arry’s Mountain Mayhem 100 miles in 24 hours off road cycle challenge fundraising for Invest in ME Research.

The article is in the SpotLight section on page 26 of the May 2019 issue of Nova Magazine. You can find it in flipbook format on the home page of the magazine’s website, and also share the text directly from this webpage:
novamagazine.co.uk/invest-in-m-e/

Titled Invest in M.E, the piece also features One Stupid Dot, the poem by musician Mama Chill (aka Stacy Hart of Team Let’s Do It for ME) which has struck a chord with so many people and was performed on What’s Up TV. You can find the poem on Stacy’s Runnin On Empty M.E awareness page along with her music videos for ME Awareness: officialrunninonempty.com/m-e-2

Nova Magazine is also delivered free to every household in Newport, Shropshire and the surrounding area, so this is wonderful awareness and Kathryn is absolutely delighted, “Hopefully it’ll raise a lot of ME awareness and maybe even a donation or two! Thanks Teresa for organising such a fab article 💙”

Please feel free to share widely during May ME Awareness Month.

Arry is fundraising at: justgiving.com/fundraising/wwwinvestinmeorg



Thank you for supporting Invest in ME Research!

31 Days in May

New book of poems for May ME Awareness Month

by The French Femme

Rosalynde Lemarchand is pleased to announce the publication of her new book ’31 days in May’ under her nom de plume The French Femme.

Ros’s new book of 31 short poems about the reality of living with ME (Myalgic Encephalomyelitis) has been especially written for May ME Awareness Month.

Each day in May Ros will be sharing a poem from the book, so keep an eye on her blog or Facebook page or @frenchros on Twitter.

All proceeds from the book will be donated to Invest in ME Research and the charity’s Chairman, Kathleen McCall, has written the foreword. Ros has set up a JustGiving page Rosalynde’s 31 days in May for donations to the charity.

Ros writes,

Please feel free to share my blog and any of my poems.

I don’t write and publish my poetry to make a living but rather to increase awareness and understanding and to help others who suffer like myself.

It takes a great deal of time and effort and there is always payback on my health. 

I hope my collection of poems convey a strong and simple message. I want better understanding and support. I want the suffering to end.

Please support me and Invest in ME Research.

Thank you.

À bientôt
from the French Femme
xxx

The book is available in both paperback and kindle versions on Amazon in many countries throughout the world. Links to some of these are in Ros’s blog: roslemarchand.blogspot.com/2019/04/31-days-in-may.html

If buying anything from Amazon UK you can generate an extra donation to Invest in ME Research by using this referral link or via Amazon Smile.

Merci Beaucoup!

Thank you for supporting Invest in ME Research!

Charity Acclamation Award

UPDATE: INVEST IN ME WAS SHORTLISTED – VOTING NOW OPEN!

Well done and many thanks to all who nominated Invest in ME Research for a chance to win one of three cash prize donations!
Click here to vote for Invest in ME from the shortlist of charities:
claims.co.uk/charity-acclamation-award



Previously…

Deadline for nominations 29th April 2019!

In 2019, claims.co.uk launched the Charity Acclamation Award, designed to recognise charities for the vital work they carry out. Members of the public can nominate their favourite charities using the online nomination form.

The Charity Acclamation Award aims to reward small, grassroots charities not only with appreciation, but with a cash prize towards their cause.

There are three prizes available:

1st prize: £3,000
2nd prize: £1,000
3rd prize: £500

Managing Director of claims.co.uk and Chair of Judges, John Quail said: “For years, we’ve seen the fantastic work that grassroots charities do, and we want to give back. Nobody knows how great these charities are quite like those who have directly received support from them – and that’s why we need help choosing!”

To enter, complete the nomination form and share any personal experience you have of Invest in ME Research, whether that’s through direct support, or recognition of their contribution to your community, using as much detail as possible to help the charity’s chances of being selected.

  • Entrants must be aged 18 and over.
  • Only one entry per person is permitted.

You will need to enter the charity’s name – Invest in ME Research – and their website address: http://www.investinme.org

The panel of judges will then choose a shortlist and you’ll have a chance to vote for them to make sure they come out on top.

Things to consider in your nomination:

  • How did they change yours, your loved one’s or your community’s life?
  • How do you think the money would help them?
  • If you could say one thing to the charity, what would it be?

Entries close on the 29th April 2019.

Full info, nomination form, T&C here: claims.co.uk/charity-acclamation-award

Thank you for supporting Invest in ME Research!

Nominations Open for Ecclesiastical’s Movement for Good £1,000 Awards!

Please nominate Invest in ME Research – charity number 1153730 –
for a chance to win £1,000 award in Ecclesiastical’s Movement for Good.

Ecclesiastical is giving £1,000 donations to 500 charities and £50,000 grants to 10 charities, £1m in total. First up are the £1000 awards.

Nominations are open from Tuesday 23 April to Friday 17 May. 

500 winners will be drawn at random from the pot of nominations.

Anyone can nominate a charity and it’s quick and easy to do.

You can only nominate a charity once and your nomination is identified by your unique email address.

The more nominations the greater the chance of winning.

“Charitable giving is at the heart of what we do – and has been for over 130 years. Today, we’re the only financial services group that exists to gives its profits to charity. We’re proud to be doing things differently. To be giving back to the communities we serve and championing the issues that really matter to them – working together to build a movement for good.” Ecclesiastical

Nominate here: ecclesiastical.com/movement-for-good/nominate-a-charity/

You will need the charity name Invest in ME Research
and the charity number 1153730

Thank you for your support!

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS), as defined by WHO-ICD-10-G93.3. and promoting better education about ME.

Invest in ME Research is run by volunteers – patients or parents of children with ME – with no paid staff.

Overheads are kept to a minimum to enable all funds raised to go to promoting education of, and facilitating and funding biomedical research into, ME.

The charity believes that biomedical research into ME is crucial in order to make progress in treating this disease. We also believe that education of healthcare staff, the media, government departments, patient groups and patients is to be a priority.

The charity’s objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.

We are a small charity but with supporters who have big hearts – and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments. Read more…