Walk for ME at Chorlton Water Park

Salford and Trafford ME Group welcome others to join their Walk for ME 2017
Tony Fryer

Tony Fyer and Julie Byron of the Salford and Trafford ME Group (SATMEG) are walking around Chorlton Water Park for May ME awareness and raising funds for Invest in ME Research.

They would love other people to join them on their walk, so please do get in touch if you live in, or know someone who lives in, the Manchester area and would like to be involved. Julie wrote:

Both myself and my son Joe suffer with ME which has robbed us of my job and Joe’s school life. There is no effective treatment for ME and a complete lack of understanding of the condition.

We are hoping that research will lead to greater understanding, treatments and ultimately a cure so we and the 250,000 others struggling to live with ME can claim their lives back.

David, I and the dogs are walking around Chorlton Water Park, this is a relatively short walk but my ME means I’ll need to rest along the way – for many this is an easy walk but for me it will be a challenge.

We’re hoping to be joined by others in the Manchester area to raise awareness as well as much needed funds.

Julie’s JustGiving page is here: www.justgiving.com/fundraising/Julie-Byron

Tony’s JustGiving page is here: www.justgiving.com/fundraising/Tony-Fryer

Julie Byron

Please share widely. Thank you for your support!

About Walk for ME

Great South run for IiMER 

A Team of 100 runners (hopefully more) will take part in the Great South Run as a member of Team100, each raising £100 for ‘Invest in ME Research. The event is being held by Ian Monnery  in support of his wife Nikki who has had M.E since 2003. The run takes place in the beautiful setting of Portsmouth Uk. The Great South Run has become one of Europe’s most popular mass participation races over 10 miles, with a record 21,000 entries for the 2009 race. It’s held on 22 Oct 2017

Contact info@investinme.org if you’d like to take part

To donate 

www.justgiving.com/fundraising/Ian-Monnery1
mydonate.bt.com/fundraisers/investinmeresearch

M.E needs your poetry


“With May 12th (International M.E Awareness day) approaching us Hay Green has decided as normal she will be releasing a book to raise funds for Invest In ME Research. Unfortunately she’s too poorly to write and publish her own content at this stage so she needs need your help! 

“I’m going to publish a book full of poetry from M.E sufferers, including myself, and need your poetry! Any you have already is great, and / or if you would like to write more for the book then that’s fine too – you can have as many entries in the book as you wish. 
I will have all of my 5 paperback books up for grabs to 5 lucky entrants as a thank you for submitting your content. After May 12th, winners will be chosen at random. 
Please email me your entries, and share widely! 100% of all proceeds from the book will be donated to Invest In ME Research.

Love Hay x”
You can enter as many poems as you wish

Email Hay Green at hayley101tips@yahoo.co.uk if your interested in submitting your poetry or have any questions 

The deadline for submissions is 30th of April 

The Mighty Deerstalker for Invest in ME Research

By Victoria McNiff on JustGiving: www.justgiving.com/fundraising/InvestinMEforKirsten

Vicky Mcniff

We are taking part in The Mighty Deerstalker half stalker, probably the hardest off-road-Tweed-clad-pipe-lit-plus-four-and-headtorch-wearing run that exists, and the biggest nightrun in the U.K. We are not all very fit and this will be a huge challenge, but we are doing this to raise money for Invest In ME, a volunteer run charity which raises money for biomedical research into ME (which is also known by the rather misleading name of Chronic Fatigue Syndrome).

There are millions of people across the world today living with the complex neurological disease, Myalgic Encephalomyelitis who are actively and indefinitely missing from their childhood, their adolescence and their adulthood; their education, their careers, their social lives and their ability to contribute to society.
Despite scientific progression in many illnesses and diseases, ME remains a stagnant orphan condition, continually missing millions of pounds in funding for research and treatment, and missing millions of doctors, researchers and specialists to assist sufferers in their every day lives. At a time where more and more lives are being destroyed by this disease, both young and old, this complacency must and will change.

We have seen the devastation personally, 12 year old Kirsten went rapidly from a very fit and achieving young girl who loved school and many sporting and social activities, to to one who now at 14 is barely able to leave her dark bedroom, with dizziness, nausea, exhaustion, migraines, intense light and sound sensitivity, very poor and unrefreshing sleep, but most of all profound fatigue (more like gravity increasing so you can’t move than simple tiredness), which is worsened by any physical or mental excertion.

Signed up to do the half Deerstalker so far are Kirsten’s dad Mark, her brother Joseph, her uncle Richard, aunt Michelle, and cousin Jake. Mark and Michelle are now signed up to do the FULL stalker, the crazy main run race of uncertain length. Also joining them is Kirsten’s uncle Dennis and cousin Tigen.

Donate here: www.justgiving.com/fundraising/InvestinMEforKirsten

Thank you for your support!

Ben buddies up for Barca

Ben Scott runs Barca Marathon 2017 for Invest in ME Research: www.justgiving.com/fundraising/BenRuns4ME

Mike Ben

Hi, Thanks for checking my page out! My name is Ben Scott and I’m about to take on my fourth marathon to raise money for Charity. This time round I’ll be running my second marathon for Invest in ME Research who are doing some amazing work to fund biomedical research into the causes and potential treatments for ME. The fundraising on this page includes both Invest in ME marathons as I’d like to keep a running total in case the marathon bug has me back doing another one.

Why choose Invest in ME Research?

I’ve chosen this charity after ME/Chronic Fatigue Syndrome/Postviral Fatigue Syndrome hit me pretty hard when I was in my late teens and hit my wife Debbie even harder in the last couple of years. It’s like a flu that never seems to go away, leaving you totally drained by even the simplest of tasks. It’s a widely misunderstood condition, or range of conditions, that may well cover several illnesses which happen to have similar symptoms. It can range from a shorter term setback to a long term severe case where the patient is bed-bound for years.

ME is as confusing for the medical profession as it is for the patient – there isn’t even really clear agreement on what to call it, although “ME” is becoming the recognised term. Some of the long-standing research into treatment has been discredited and may even make patients worse, leaving both patients and GP’s confused over what to do. However, there have been some really encouraging results from studies across the world into new treatments which Invest in ME are supporting further research into. The iron is currently hot – the medical and research communities have a new impetus to tackle ME head-on and there is some real momentum building behind a renewed collective effort to get to the bottom of this condition. There is no better time than now to support this charity. If you’re interested I’d encourage you to check out

I’ve also been inspired by my mate Mike Harley who is running a marathon in every country in the EU – including Barcelona this year so I’m out there giving him a bit of moral support (and someone he can beat to the finish easily) . Check out mikeseumarathons.eu for details of his inspirational challenge.

And finally.. On a personal note I never thought I’d run a marathon. I’ve now run (and walked a bit) three of them. Due to ME hitting me around my GCSE’s and A-Levels I gave up my first sport of Hockey, which I loved, for around 5 years and honestly never thought I’d get to feel fit again. It’s depressing (big and small D) and frustrating and I know how lucky I am to be able to go out and do things like this and push myself again. So I’m partly doing it for me, as a challenge and because I can; and I’m partly doing it as I’d like to think that someone with ME might read this and it might help them to see the light at the end of what can be a long old tunnel. If you’re living with ME right now then hang in there, it’s tough.. but you’re tougher!!

Thanks for reading my page and thanks for any donation that you make, it really will be put to great use by a great charity.

Ben

Donate here: www.justgiving.com/fundraising/BenRuns4ME

Find Ben Scott of Ben Runs 4 ME on Facebook and Twitter