800k…and Counting to a Million!


WAYS TO DONATE TO INVEST IN ME RESEARCH

We’re off on the next leg of our fundraising journey to raising a million pounds for Invest in ME Research Funds for their Centre of Excellence biomedical research programme aiming to establish diagnostic tests and medical treatments for Myalgic Encephalomyelitis (ME).

We’ve created a new JustGiving fundraising page.

On BT MyDonate.

You can also raise donations to Invest in ME Research at no extra cost to you when shopping online, or by buying from sellers donating some or all of their profits to the charity, and simply sharing links on social media helps to raise awareness of the charity’s work on establishing a Centre of Excellence for ME.

Thank you so much for your support!

* June 2018 Status Update on Invest in ME Research Centre of Excellence for ME

* Write to your MP

* Our summary of parliamentary debate on ME treatment and research

Dear MP…

In a Westminster Hall debate on ME treatment and research on 21 June 2018, Sir Henry Bellingham, MP for North West Norfolk, called for government support for the Invest in ME Research Centre of Excellence for Myalgic Encephalomyelitis.

Sir Edward Davey (Kingston and Surbiton) and Dr. David Drew (Stroud) voiced their agreement, and Steve Brine, Under-Secretary of State for Health and Social Care, said it sounds very promising.

We’ve drafted a letter, which you are welcome to copy and paste or adapt to send your own MP to inform or update them on the progress of the Centre of Excellence and to ask them to support Sir Henry’s call on your behalf.

To find your MP’s contact details, put your postcode in the box on this page.

*****************************************************

Dear (MP name),

I write to request your support for the Invest in ME Research Centre of Excellence for ME (Myalgic Encephalomyelitis), as highlighted by Sir Henry Bellingham during a Westminster Hall debate on ME treatment and research on 21 June 2018.

Two main points of note are that the research and treatment of ME is a cross-party matter of public health for people and public services in every constituency; and that the Invest in ME Research Centre of Excellence for ME is of national and international importance.

The proposal to establish a hub-and-spoke model UK Centre of Excellence for ME, based at Norwich Research Park with international cooperation, was published May 2010 by UK charity Invest in ME Research.

The work is now well underway, currently involving researchers based in Norwich, Oxford, Cambridge, London, Surrey, and in collaboration with other countries.

As noted by Sir Henry Bellingham:

“That was funded by patients and carers, who raised a staggering £800,000 for what will be groundbreaking, world-class research.”

“Invest in ME Research has set up a centre of excellence for research in the Norwich Research Park, and it is planning to create a hub for European biomedical research, which is good news indeed. It already has five PhD students and is hoping to push out a consultant-led clinical service. Here we have the infrastructure and base for that extra Government funding, to build on the money that has been raised by patients and carers.”

“I hope the hon. Gentleman will support my campaign to get the Government to invest in the Invest in ME Research Centre of Excellence in Norwich. I did not mention that it has a really good chance of forging first-class links with not only European biomedical research institutes but institutes in the United States and Asia, where other groundbreaking research is being done. The Government should support and invest in success.”

Please read the June 2018 update on the Invest in ME Research Centre of Excellence, a bullet-point summary of the current status of this project, which has impressed USA’s NIH and is deserving of support by all UK political representatives and the relevant government departments: http://www.investinme.org/ce-cofeforme.shtml#exsu

The summary concludes on page 7:

“Invest in ME Research is therefore asking for support from MPs to engage actively with this project with a view to securing the final, and vital, elements of the UK Centre of Excellence for ME and create a future whereby people with ME may be given back their lives.”

The Let’s Do It for ME campaign aims to raise awareness of the Invest in ME Research Centre of Excellence for ME and a summary of the Westminster Hall debate with relevant extracts is here: http://ldifme.org/parliamentary-debate-on-me-research-and-treatment/

Thank you for reading and I look forward to your reply.

Yours sincerely,

(Your name and address)

******************************************************

As stated in the letter, our summary of the debate is here and includes the extracts below. Hansard transcripts of the extracts.

Sir Henry Bellingham

Extract: https://goo.gl/yvW33P

Hansard Transcript: https://goo.gl/B8mDdw

Sir Edward Davey, Andrew Selous, Sir Henry Bellingham

Extract: https://goo.gl/XbwWZW

Hansard Transcript:https://goo.gl/QKQmav

Sir Henry Bellingham, Dr David Drew

Extract: https://goo.gl/gZSVRe

Hansard Transcript:https://goo.gl/NaUJrf

Steve Brine (Parliamentary Under-Secretary of State for Health and Social Care)

Hansard Transcript: https://goo.gl/VMT96v

Click here to read our full summary of the debate.

Donate here to help us make it to a £million.

Donate to Invest in ME Research

You can donate directly to Invest in ME Research via bank transfer, cheque, text, Big Give, BT MyDonate, Everyclick, JustGiving, PayPal.

Gift Aid gives the charity an extra 25% of your donation from the government if you are a UK tax-payer, so please tick the Gift Aid box when you donate via a fundraising platform, or download a Gift Aid declaration form.

Bank Transfer

Bank: Lloyds TSB Heartsease

Sorting code: 77-66-53

Account number: 22439568

Bank Transfer from outside the UK

IBAN: GB63 LOYD 77665322439568

BIC/SWIFT: LOYDGB21E05

Cheque

Send cheques payable to ‘Invest in ME Research’ to:

Invest in ME Research
PO Box 561,
Eastleigh,
Hampshire,
SO50 0GQ

(add Gift Aid to your donation with Invest in ME Research Gift Aid form)

UK Text IBRF33

£1, £2, £3, £4, £5 or £10

to 70070

(you can add your name and Gift Aid if eligible by text)

Click on the icons below to donate online to Invest in ME Research

or to: paypal@investinme.org



Please help spread the word….

Let’s Do it for ME is a patient-driven campaign launched in 2011 in support of the proposal by UK charity Invest in ME Research to establish a centre of excellence for biomedical research and patient care based in East Anglia, and in collaboration with other leading UK and international biomedical researchers.

We help to raise funds for the biomedical research into Myalgic Encephalomyelitis that the charity is organising and/or funding. Our crowdfunding for specific ME research is the first of its kind in UK and has inspired similar projects in Europe and USA. We have helped to raise over £800,000 enabling the biomedical research strategy to get underway, and we are aiming for £1,000,000.

The current focus of the research is on the role of the immune system, including infection and autoimmunity. The research projects are described here: investinme.org/ce-projoverview.shtml

There is also a scheme for medical students to be directly involved in biomedical research by intercalating in their fourth year: investinme.org/ce-ms-studs.shtml

Invest in ME Research is also renowned for their international conference events, which have grown year on year since the first in 2006, bringing patients and carers together with doctors and scientists and others to galvanise change in the way that ME is researched and treated across the world. Sponsorship is welcome: investinme.eu/index.shtml#sponsors

Invest in ME Research is a founder member of the European ME Alliance of 15 like-minded patient organisations, member of the European Federation of Neurological Associations and formed the European ME Research Group.

Invest in ME Research is run entirely by volunteers who either have ME or are parents and carers of ME patients. They are driving the agenda of scientific research into diagnostic tests and treatments for myalgic encephalomyelitis in UK in collaboration with international researchers of world renown.

Please join us in helping them to do all of this for ME.

Thank you for your support!

June 2018 update: Invest in ME Research and the Centre of Excellence for ME were referred to by Sir Henry Bellingham and Sir Edward Davey during a debate in Westminster Hall on 21st June secured by Carol Monaghan. We’ve added a page to the website about this with the relevant clips: Parliamentary Debate on ME research and treatment

Let’s Do It for ME
ldifme.org

in support of Invest in ME Research
investinme.org

Invest in ME Research Centre of Excellence for ME
investinme.org/research-centre.shtml

Invest in ME International Conference & Biomedical Researchers Colloquium
investinme.eu

European ME Research Group
http://www.investinme.org/em-index.shtml