Marianne is aiming to do that ‘no booze thing’ for 33 days plus 100 km walk to raise £1000 for IiMEs Rituximab clinical trial
In her own words;
“21 years ago my wonderful sister got the dreadful illness, M.E.
M.E. Is a shockingly debilitating illness that can change and affect the entire way the body and brain function.
The symptoms of M.E. are many and wide ranging:
•Extreme fatigue, when even lifting a spoon is an effort.
•Extreme pain when the skin is touched.
•Crazy lack of temperature control. Ha ha, this summer my sister and I went to Nice and whilst I was sat in my swim stuff sunning myself she was fully dressed and wrapped in two towels. She still had goose bumps despite it being 32c!
• every possible digestive problem you can think of!
• ‘brain fog’, when the simple act of reading a sentence becomes an impossible task.
Throughout my sister’s illness as a family we have tried anything and everything available to help get rid of this dreadful disease. Sadly nothing has fixed it.
There has been a groundbreaking discovery that the drug Rituximab – used to treat some cancers – can treat M.E. It is very very exciting! Invest in ME is raising the money to run the trial of the drug.
In order to run the trial in the UK £520,000 needs to be raised. So far £497,000 has been raised, so the trial is in sight!
To raise money for ‘Invest in M.E.’ to go directly to the Rituximab clinical trial I am Giving up booze from 4th October- 5th November and will be exercising 100km each over the course of the 33 days, roughly 3 1/5 km per day with maybe a lengthy walk in there too. 🙂 🏃🏻🏃
We wanna raise money to help find a treatment for this dreadful illness but also to raise awareness of the illness.”
Visit her justgiving page here: https://www.justgiving.com/fundraising/Marianne-100km-no-booze
NOVEMBER UPDATE She did it for ME!
— Marianne Haynes (@mariannedotboom) November 6, 2016