October Updates

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The excellent excellent display picured above was set up by the Morecambe Bay ME Group and features various posters and brochures by and in support of Invest in ME Research. See the hand-painted cartoon by Amy Stone and other posters on our page for ME Awareness.

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Nicole-Mardon ran the Cardiff Half Marathon because her best friend’s mum, Kate Mincher (centre) suffers from ME. Read more here – justgiving.com/fundraising/Nicole-Mardon

Mike Harley ran marathons in Brussels and Toulouse! Mike’s 28 EU Marathons fundraising page is here – justgiving.com/fundraising/mikeseumarathons

Gemma Warren ran the Milton Keynes Winter Half Marathon for IiME “because we need to fund more research into M.E.” Gemma’s fundraising page is here – justgiving.com/fundraising/Gemma-Warren6

Stu Nimmo ran the Manchester Half Marathon supporting Karen Morris here –justgiving.com/fundraising/isupportmeresearch

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Marianne Haynes is doing that no booze thing and running 100k. Read why here – justgiving.com/fundraising/Marianne-100km-no-booze

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Salli Murray is going Alcohol Free for 60 days. Read her story here – justgiving.com/fundraising/Salli-Murray

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Well done everyone doing Give It Uptober for ME! The totals won’t be in yet but here’s the fundraising page – justgiving.com/fundraising/GIUtober

We were thrilled at the news that the fabulous charity that we all support – Invest in ME Research – has been awarded an Awards for All grant by The Big Lottery to support their proposal for a Centre of Excellence for ME. Keep up with news on the charity’s new website dedicated to the Invest in ME Research Centre of Excellence for ME – www.cofeforme.eu

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Every £1 makes a big difference as Invest in ME Research is run entirely by volunteers and the 1st of the month One Day – One Pound is the ideal to donate just £1 to the charity’s vitally important and progressive work.

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For more October Events see our Halloween Special.

Totals for Invest in ME Research on B-cell/Rituximab and Gut Microbiota.

Thanks so much for your support!

Halloween Special

Invest in ME Research and supporters have been dreadfully busy!

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Death Eater actor Jon Campling has been doing more hair-raising charity collections for Invest in ME Research Funds!

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Halloween specials below by Lynne Allan at ME2UDezignz

FREE DELIVERY of Cards 4 Invest in ME ends at the witching hour midnight 31st October!

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Dr. Jo Cambridge (UCL expert leading the IiMER B-cell research) presented at an international conference organised by European ME Alliance Swedish member organisation RME and is pictured (centre) wearing some scarily wild socks! Jo’s PhD student colleague Fane Mensah has been in Florida to give a poster presentation at the International Association for CFS/ME (IACFS/ME) Fort Lauderdale Conference thanks to a travel grant from US org. Solve ME/CFS, and reinforcing fantastic international support for the IiMER Centre of Excellence! Check out the news and fab photos here and here.

A timely reminder of The ME/CFS Ghost

Hide behind the sofa to watch this Scary Bear video by Karen Morris of www.justgiving.com/isupportmeresearch

Don’t have nightmares! Howling thanks for your support!

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Marianne is doing that ‘no booze thing’ for 33days plus 100k!

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Marianne is supporting the rituximab trial

Marianne is aiming to do that ‘no booze thing’ for 33 days plus 100 km walk to raise £1000 for IiMEs Rituximab clinical trial

In her own words;

“21 years ago my wonderful sister got the dreadful illness, M.E.

M.E. Is a shockingly debilitating illness that can change and affect the entire way the body and brain function.

The symptoms of M.E. are many and wide ranging:

•Extreme fatigue, when even lifting a spoon is an effort.

•Extreme pain when the skin is touched.

•Crazy lack of temperature control. Ha ha, this summer my sister and I went to Nice and whilst I was sat in my swim stuff sunning myself she was fully dressed and wrapped in two towels. She still had goose bumps despite it being 32c!

• every possible digestive problem you can think of!

• ‘brain fog’, when the simple act of reading a sentence becomes an impossible task.

Throughout my sister’s illness as a family we have tried anything and everything available to help get rid of this dreadful disease. Sadly nothing has fixed it.
There has been a groundbreaking discovery that the drug Rituximab – used to treat some cancers – can treat M.E. It is very very exciting! Invest in ME is raising the money to run the trial of the drug.

In order to run the trial in the UK £520,000 needs to be raised. So far £497,000 has been raised, so the trial is in sight!

To raise money for ‘Invest in M.E.’ to go directly to the Rituximab clinical trial I am Giving up booze from 4th October- 5th November and will be exercising 100km each over the course of the 33 days, roughly 3 1/5 km per day with maybe a lengthy walk in there too. 🙂 🏃🏻🏃

We wanna raise money to help find a treatment for this dreadful illness but also to raise awareness of the illness.”

Visit her justgiving page here: https://www.justgiving.com/fundraising/Marianne-100km-no-booze

 

NOVEMBER UPDATE She did it for ME!