Update on IiME Gut Microbiome Research

Professor Tom Wileman will be presenting preliminary results of the IiME research on the role of gut microbiota in Myalgic Encephalomyelitis (ME) in London in June at the 11th Invest in ME Conference and 6th Biomedical Researchers into ME Colloquium. News page here.

The current phase of this research is to collect blood and stool samples from severely ill patients by visiting some in their homes. The patients need to be current patients of Dr Amolak Bansal, as ethics rules demand that a named doctor is responsible for any patients taking part in research. Dr. Bansal leads the specialist clinic in Sutton, Surrey. Patients have been sampled all through the project once ethical approval had been obtained.

The PhD student working on this research, Daniel Vipond, is organising this latest sampling of patients in the most effective way possible. He will be travelling from the week of the 11th April to ME sufferers homes to collect blood and stool samples. Rachel Fulton posted in Invest in ME group on Facebook:

“It has taken years to get this project off the ground and a huge amount of fund raising. I would be so grateful if more people can take part in this study. We will ALL benefit from more bio-medical research doing into ME.”

If you are a patient of Dr. Amolak Bansal with a firm diagnosis of ME, particularly if you are housebound or severely affected, and would like to take part, please get in touch with Daniel Vipond as soon as possible.

Email daniel.vipond@ifr.ac.uk or call 07943149314.

Contact details are on the participation posters published in April 2015.

The Let’s Do It for ME campaign was launched by patients with severe ME to help raise awareness and funds for this research, the foundation project of the IiME UK Centre of Excellence research strategy.

The Institute of Food Research and University of East Anglia issued press releases in March 2014 and Susie Fowler-Watt interviewed Professor Simon Carding for a May 2015 report by BBC Look East. Our thanks to everyone involved.

Read all about the IiME Gut Microbiota Research on our page here.

The current total raised for the IiME Gut Microbiota Research is £166k of £200k target. You can donate from any country on JustGiving
or text MEGR66 (£1-£5 or £10) to 70070 (UK only).

Or donate on Invest in ME website here.

Thank you for your support!

April 2016

Gut-Microbiota-166k
 
Participation Posters Published April 2015

3 comments on “Update on IiME Gut Microbiome Research

  1. My daughter has server m.e she is 20 years of age she has had m e for 7 years now she wants to take part in the study we live in portsmouth so what do we do next she is house bound at the moment thanks for your help .

    • Hi Deborah, for this phase of the research, patients need to be currently under the care of Dr. Amolak Bansal, the consultant immunologist leading the CFS Service at Epsom & St Helier University Hospitals. If your daughter isn’t currently a patient of Dr. Bansal and doesn’t have a specialist locally, or would like to be seen by another specialist (it’s unlikely patients would be referred just for the purpose of taking part in research) then she could be referred through the usual NHS pathways. This is the information page about the clinic, with links to referral forms for GPs and clinicians – https://www.epsom-sthelier.nhs.uk/chronic-fatigue-syndrome
      Contact details for the study on the patient participation posters, and contact details for Invest in ME are on their main website here – http://www.investinme.org/IIME-Newslet-1504-01.htm
      Best wishes to your daughter and sorry that she has been so ill from such a young age.
      As patients ourselves, we are hopeful that the research will help us all as it develops.

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