My M. E. Story by Ronan Lavin

Ronan & Nicola Lavin
Ronan & Nicola Lavin

Alright lads I “moustache” ye a question. I am doing Movember for Invest in M.E. and anything ye can muster up to help “shave” some lives would be greatly appreciated. Follow the link below to donate what ye can www.justgiving.com/movember4me. On a serious note my wife suffers from this and it is getting worse. Millions of people around the world suffer from this and chances are you know or are related to someone who has this terrible illness. Funds are desperately needed for research. Thanks for your support. I’ll update ye with a pic in about a week when I have it grown.

I met my wife Nicola about 6 years ago and fell for her instantly. She is fun smart and beautiful but later into the relationship something happened. My wife had her son Aaron 14 years ago and after the birth she wasn’t the same. She developed postpartum cardiomyopathy and everything changed for her after that she never got back to the way she was. But it got worse when some years later she went for routine operation and since then her M.E. has become worse.

It is so hard to see your loved one go through such hard times and not being able to do anything to help, this is extremely upsetting and it makes you feel so useless. My wife has been having to spend more and more time away from work which is also tough financially. This is so hard for her as she absolutely loves her job and is extremely hard working. Despite all of this she has not ceased to amaze me. I am so proud of her to see that despite having an illness that is really debilitating and has such a stigma attached to it she pulls through. She is the strongest person I have ever come across. She was able to raise over 1.5 million dollars for M.E. research with the Chilli M.E. Challenge and this is still growing. To find out more about M.E. see her Chilli M.E. Challenge intro video.

The researchers in USA and Australia supported by the Chilli M.E. Challenge are all involved in the Invest in ME International Conference & Biomedical Researchers into ME Colloquium and workshops. We live in Ireland and the Irish ME Trust is kindly donating Irish Chilli M.E. Challenge donations to Invest in ME Biomedical Research Funds. Both charities are members of the European ME Alliance of like-minded organisations intent on moving things on for people with M.E. This year the European ME Alliance joined the European Federation of Neurological Associations and also formed a European ME Research Group. They get no government funding so all this work in UK, Ireland, and the other EMEA countries is funded by donations, so please do what you can to raise awareness and funds to keep this vital work going on the fastest track and help millions of people get their lives back.

Aaron, Nicola, Ronan
Aaron, Nicola, Ronan

Donate to support Movember for M.E. at www.justgiving.com/movember4me

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