Welcome to No-Men-Bar for M.E. We want to use ‘Movember’ awareness-raising of men’s health issues to raise ME Awareness by featuring some male supporters of UK charity Invest in ME Research (IiMER) who either have ME or are friends or carers of people with ME (Myalgic Encephalomyelitis).
If you’re growing a mo for IiMER for Movember this year, thank you!
To double the value of your donations to the charity, please use the JustGiving page Matching Movember as a very generous friend of severe ME sufferer Geoff Allen has offered to match donations up to a maximum of £1500.
Like many autoimmune diseases, ME is more common among women than men, so people may not be aware that men and boys of any age also get ME.
Just last year (2015) oversight for research into ME/CFS was shifted by the American National Institutes for Health (NIH) from the Office of Research on Women’s Health to the National Institute of Neurological Disorders and Stroke (NINDS). NIH was represented at the 2016 Invest in ME Conference (IIMEC11) by Dr. Vicky Whittemore, a Program Director at NINDS, joined by the world’s finest biomedical researchers and expert doctors in this disease.
Eirik Randsborg from Norway helped us launch NoMenBar for M.E. in 2015. He wrote, “I am married to a woman who has had ME diagnosis since 2004, becoming more severely affected the last years (she has also developed polyneuropathy the last year). Ever since we have been a couple, I have been an advocate and I am at the moment vice chairperson of the Norwegian ME association”. This association is a member organisation of the European ME Alliance (web address in image kindly created by Sally Burch).
We hope you love Eirik’s ‘little protest song’ as much as we do!
Movember / Nomenbar for M.E Stories 2015 –