Together they came up with the concept of standing in front of a blank wall and silently hold up signs to convey their message. They asked Sarah Louise “Feather” Jordan for permission to use her song to play throughout their video as they filmed themselves holding up the signs. We feel the song compliments the girls vision of their video perfectly.
Both girls suffer moderate/severe M.E. which means they spend most of their days housebound, they have to plan how to use their energy as they have so little and the rare trips out have to be carefully orchestrated so not to make them too ill.
To make the video the girls spent hours with sheets of A4 paper and black sharpie pens creating the signs to hold up. This process took many hours and ended up with the whole family getting involved. This was because it took an awful lot of energy for the girls to do just one sheet as each word had to be coloured in to make it bold enough to be visible on the screen.
This is the finished product, which we hope you enjoy. Please feel free to share this video far and wide and help us to spread the message that M.E. is a severe, chronic, debilitating illness that affects so many of our population. Together we can make a difference!
As I live and feel and think
Then love would shine like amber
And my joy would be bright pink,
My faith would be deep copper
While our heartbeats shimmered red,
The walls that keep me prisoner
Would be gold with stars instead,
I’d turn my slate-grey sorrows
Into oceans of soft blue
And everything that matters most
Would be all the shades of you,
So everywhere my palette
Could be blended with your own
As we keep painting something
That the world has never known
On a canvas that’s unfurling
With each breath our lungs have kissed;
We’ll paint the new day dawning
With its dew and clearing mist
And then we’ll daub a message
On the blank space of the sky
Which reads “we’ll live with beauty
Til the moment that we die